Tag: tips

Picking Apart Phantom Pain

Picking Apart Phantom Pain

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The Real Mental Side of Phantom Pain

 

Ok, let’s talk about Pain. Not just any pain, but the “real” phantom pain.

It comes on without warning.

It can destroy our mood, our productivity, and our confidence.

When it does happen, and for amputees we will all have the pleasure of experiencing it at some point on our journey, it’s enough to cause us to doubt we will ever be able to function again because we can’t see an end to it in sight. It’s the most disabling thing about being an amputee because we cannot control it.

Just two weekends ago I experienced one of my many episodes of phantom pain. I was fine when I woke on Sunday morning, enjoyed a few hours of “normalcy” then out of the blue, like lightning strikes, I was seized with a multitude of sharp, knife driving pains, in the bottom of my non-existent foot!

At first it was just startling and I was wracking my brain as to why it might be acting up. You see, for me, I know what things might cause me to have a flair up of pains from the activities of the day or night before, but not this day. Nothing I could have done would prepare me for this nor could I comprehend what had made these phantom pains come on.

As the day wore on these flashes of pain came more sudden and more often. They are so real feeling that my “foot” was getting sore from all the stabbing.

The prickles on the cactus and thorns on the tree remind me of the sharpness of my phantom pains

 

If that isn’t a mental attack on the brain I don’t know what is!

If you are an amputee you need to make sure you have a toolbox of info and memories to use as you navigate throu9gh each episode of phantom pains.

Join me today as I discuss what a toolbox is and how you create one.

Remember to be kind to yourself when these pains hit. They will try to crush you and break your spirit but you can and will get stronger with each experience. Just know that it’s ok to shut down for a while as your head tries to understand what’s happening to your body.

You are strong enough and you will make it through.

These episodes don’t last forever, and you will soar once again.

 

Be the warrior you were meant to be and rise up!

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

much love,

 

Purpose in the Waiting

Purpose in the Waiting

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Podcast: Play in new window | Download (Duration: 35:21 — 36.9MB)

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Like a little kid excited and waiting for Christmas morning with great anticipation only to be sad when the presents are all opened, stockings are emptied and bedtime arrives once again.

We too, can find ourselves wrapped up in waiting for life.

We wait for the next appointment, the next fitting, the next promotion, the next relationship, the next thing to be excited about. But what about now? What about the moments that are hard and challenging? Are you letting life waste away and pass you by while you wait or are you living with intention and purpose?

One place I find my purpose

It’s hard, I understand that. As an amputee we spend the first 2-3 years just waiting on healing, the next socket, the insurance company, the follow-up appointment, refitting, adjustments, etc, etc, etc.

Just when we think we have everything going well with our leg something changes, and we start all over again.

I spent the first 3 1/2 years changing and fluctuating before I got my latest socket which I have been in for over a year. And yet, I still have my moments that are hard and challenging. Isn’t that life?

How about you? What’s got you stuck? Do you know what you’re living for?

 

 

This week, if you are in a funk and can’t focus on the present find someone that you can reach out to and help.

Maybe a neighbor could use a visit, or a friend needs an errand run. Whatever it is, whomever you choose to help, realize that you can do so much good and real live your life even in a season of waiting.

Sometimes the first step in helping ourselves is to think about others and find our purpose in being a help to them. Finding purpose in your waiting is key to happiness and feeling content. Remember that when you wake, and have breathe in your lungs then you are meant to be here and to make a difference in the world.

Go out and seize each day, live your life don’t wait to live it.

Tomorrow isn’t promised.

Let your warrior out and rise up! You deserve to live and be happy, even in the waiting.

 

Have a blessed week.

As always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

Compete

Compete

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Find Your Purpose, Set Goals, and Get to Work

This is me BEFORE my knee injury that led to amputation

Competition gives you focus and direction in life. It helps to define your day, provides a sense of purpose, and helps build character and resilience.

All my life I have been competitive. I had big brothers around always “toughening me up”, and sports were an every moment event, whether competing on our home basketball court or joining teams that played every weekend.

I think these moments served me well, and prepared me for a life after limb loss.

For some of you, the journey has been a long and hard one. It hasn’t been easy and you may feel like giving up.

Maybe you even think that “this is as good as it gets”, but I’m here to tell you, DON’T GIVE UP!!!

You can do this! Last week I talked about mindset, well, this is the time to put your mindset to the test and work on positive self-talk.

 

 

On the hard days, when things hurt or you feel out of sorts, or maybe you are not at a point of wearing your prosthetic yet, you may get discouraged…heck! Maybe you ARE discouraged. Now is the time to buckle in and dig deep. This is the time to set those goals and reach for them.

When I find myself in the struggle where pain is winning and I feel like doing nothing and getting depressed about this moment in life that things aren’t going as planned, that’s when I find something to take my mind off of it. I usually find something that brings out the competitor in me. This gives me a goal, a purpose, and consumes my time which takes the attention off of what I’m struggling with.

 

How about you? What do you do to fill your time? Give yourself purpose? Or distract your thoughts changing them into a positive flow?

 

 

Now it’s your turn.

Let’s turn your situation into something positive and meaningful, even if you feel like everything is going wrong and you aren’t where you want to be.

 

Set goals.

Be realistic but challenging.

If you aren’t able to wear your prosthetic just yet then don’t get down on yourself, remember life is a journey, the good and bad of it, so make some lemonade while you wait.

Once you’ve reached those goals, then go ahead and set more. Keep creating challenges for yourself. Setting yourself up for success in the waiting will eventually make you see that you are not waiting for life to happen to you anymore, but that you are living it.

 

Enjoy the process.

You deserve it and you are strong enough.

You are a warrior!

Hope your goal setting is epic just like you!

And until next time, and as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

Believing in Yourself

Believing in Yourself

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Your Mindset is Your Greatest Asset

 

When it comes to getting it done, or being challenged to push through something tough in life, how do you fair?

Do you struggle to feel accomplished?

Do you feel like you are drowning and there is no way out?

Or how about giving up because the going got tough?

 

 

If this sounds like something you have been through before, or are going through currently, then it may be time to check your mindset and your self-talk.

There is no denying that life will through you curveballs.

Back in 2013 as I was literally kicking butt in karate for my 2nd degree black belt, I would never have thought I would have hurt myself, gone through 10 surgeries, gained almost 60 extra pounds and then elect to amputate my leg above the knee.

Just writing that sounds absolutely crazy and a horrible fiction story. But that was my reality.

Those were tough days, months and years- five years to be exact, and making the decision to amputate wasn’t the end of that journey but a beginning to a whole new shift in my life. I still had to struggle with pain, swelling, adjusting to my new body image and learning to love it. I had problems with fitting prosthetics, I had a huge neuroma that a year after my amputation I went under the knife again and had it removed. Through all of these trials, however, I was being conditioned and building my resilience to my new lifestyle.

Each of these steps I had to figure my way through physically and mentally.

Each of these moments was leading me to a better understanding of myself, my tolerance, showing my strengths and my weaknesses, so I could become better at handling the curveballs of life.

What did I find that helped me?

 

 

 

MINDSET MATTERS!

What I tell myself, how I speak to myself with my inner voice (and sometimes my outer voice). I realized that my words and thinking  could lift me up and allow me to soar,  or it was going to be my demise with negativity. Through trial and error I learned and grew.

I take challenges head on now. I am competitive with myself, and I know that my mind, my energy, and my will to succeed has brought me through tough times. I believe how I think is what has made becoming an amputee a life giving second chance for me versus my undoing.

 

 

I am no one special, but my ability to see the positive in my situation has helped me become more successful as an amputee.

It hasn’t been easy, even though it may appear that way. What you perceive as me “easily” going through something really hard has had it’s challenges, it’s pains and problems, I have cried and I have been angry, but at the end of the day I choose positive!

 

How about you?

 

 

I didn’t add a Call to Action in my podcast, forgive me. Got out of practice with April being all interviews but here’s one for those reading my site.

 

Check your attitude today.

What’s your mood?

How do you feel about yourself and your situation?

Now ask yourself if you can control what’s happening?

If you cannot control what is happening to you then this is a great time to practice patience, positive self-talk, getting active to change your thinking, and setting some goals to keep yourself motivated during the hard days.

You will get through this.

You were designed to be stronger than your circumstances, you only need too believe in yourself.

You are special!

You are unique!

You are loved!

 

Have an amazing week, be blessed.

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

 

Inventors & Innovators: TheraV for Phantom Pains

Inventors & Innovators: TheraV for Phantom Pains

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Podcast: Play in new window | Download (Duration: 42:59 — 32.8MB)

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TheraV Founder and CEO Amira Radovic

We are kicking off Limb Loss/Limb Difference Awareness Month (LLLD) with the founder and CEO of TheraV.

Amira found her passion to help people by creating a non-invasive, non-pharmaceutical device that helps soften phantom pains through the use of vibration therapy.

Phantom pains are a very real, very painful, and often times disabling reaction after losing a limb. Most amputees will experience some level of phantom pain throughout the course of their lives. I would also say that all amputees feel some sort of phantom sensation (a feeling that the missing limb is still there and feels like pins and needles or a numbing sensation), I know I feel that everyday, all day, but I have become accustom to them.

Phantom pains, on the other hand, are intense. They come without warning, last days, sometimes weeks, and can feel like you are being shocked, set on fire, or like a knife stabbing your limb and cutting you open. I have had the distinct privilege (sarcastic voice) of experiencing those crazy, uncontrollable, and sleep depriving pains four times in my five years of being an amputee! I wouldn’t wish that on my worst enemy!

Amira’s father was a civil engineer and she had dreams of becoming an engineer, herself. She said she was always fascinated with the idea of using technology to enhance the human ability so she studied biomedical engineering at the University of Delaware. As a junior she had an opportunity to work at a prosthetic office. There she was introduced to the mental and physical pain that came with limb loss and the reality of phantom pain. She worked for years and talked to many amputees to come up with her TheraV for phantom pains, despite the lack of data and the stigma that surrounded phantom pains.

This week I had the honor of having her on my podcast to share where her idea came from, how it works, and where she’s taking it next. Like all great inventors, she is continuing to dive deeper into the mysterious world of phantom pains, what produces them, what helps, and how she can improve her already amazing product.

I am grateful for the time I got to speak with her and to hear her story, her passion, and what got her into the world of amputees and phantom pain.

An amazing thing about TheraV is that it can also be used by able-bodied individuals for things like restless leg syndrome or CRPS! Amazing, right?

If you are struggling with any of these issues, and would like to be rid of medications you might consider giving TheraV a shot.

Check out her website HERE.

 

With a world of big Pharma and large corporations it’s hard for the individual to break into the market. Please visit TheraV website, check them out on social media and give them a follow. By purchasing your own therapy for your home you not only have a safe way to manage pain you are helping Amira reach more people and giving them a chance to live without pain.

Thank you, Amira, for joining my podcast this week and for all you are doing for our amputee community.

Phantom pains are real pains.

Your research and devotion to reducing and eliminating them is so commendable! Thank you!

 

 

 

Remember to subscribe to my podcast so you don’t miss out on a month packed with inventors and innovators who are making a huge impact in our amputee community! also. p

lease share this link and podcast with someone who could benefit. My goal is always to help empower and educate those in need. Help me make an impact this month!

 

Thank you and have a blessed week.

As always,

Be Healthy,

Be Happy,

Be YOU!!!!

 

 

Much love,

 

 

 

 

Love Is In the Air

Love Is In the Air

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Self-Love for the Win

“Love yourself first and everything else falls into line.”

                                                                                                          -Lucille Ball

 

 

This Valentine’s Day start with YOU!!

To love oneself isn’t selfish, it’s necessary.

It’s necessary for your mental health.

It’s necessary for your productivity.

It’s necessary for you to be able to love others, fully.

Have you ever truly listened to your inner voice? Pay attention, because what you say to yourself is crucial to your love and success in life.

We can be so critical of ourselves and fall into the trap of negativity that we can’t even realize our true potential. We compare ourselves to others, and we begin to doubt our abilities, our size, our beauty, our intentions, our very existence.

We are constantly bombarded with everyone’s successes and filtered pictures, great vacations and good deeds in the snapshots of social media that we lose sight of our own beauty (inside and out) and our worth in this world.

You are unique!

There is only one ‘you’ and you should be celebrated.

You are worthy, beautiful, a warrior, and special.

You must first find, within yourself, the joy of self-love before you can truly find joy in life. However, this does not come easy and can change and challenge you daily.

Are you listening? What are you saying to yourself? Is your self-talk positive or are you speaking negatively?

As an amputee, and being a part of this unique community, I can see first-hand how I could be negative and self-loathing. The world tells me that my body image is suppose to look a certain way, and I no longer conform to what is “acceptable”. Talk about a hard, internal battle. I stand in a grocery line only to see a size 2 woman on the cover of every magazine, looking gorgeous and happy. I don’t look like them, and I never will again.

I must fight the urge to compare myself, and fight to be positive about who I am, inside and out. This takes practice, perseverance, and fearlessness.

This Valentine’s Day I challenge you to love yourself FIRST! Find joy in who you are, how you were made, and believe that you are enough, JUST the way you are.

Valentine’s Day, this year, start with you….for the win!

 

Wake up and feel the breathe in your lungs.

You have a purpose!

Today, and this week, figure out what your purpose is and start by loving yourself. Love the good you can do and the good you can put out into this world.

When you love yourself you will find that you can be a light, bringing happiness and hope to those who are lost.

Listen to your inner voice and decide if you hear positivity being spoken. If not, it’s time to switch that up.

Begin with telling yourself:

“I am beautiful/handsome”

“I am strong”

“I am worthy”

“I have value”

“I am smart”

“I am compassionate”

“I am funny”

“I am kind”

“I am fearless”

“I am a Warrior”

“I am ENOUGH!”

Write these words down. Speak these words out loud when you need to hear them.

Find your strength and self-worth from within and not from the world around you.

You ARE enough! Believe it, and begin this Valentine’s Day by loving yourself first and watch how your life changes for the better.

Rise up, Warrior, and know you are loved!

 

Until next week, and as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

 

 

 

Insurance Games

Insurance Games

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Podcast: Play in new window | Download (Duration: 41:15 — 43.4MB)

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Playing To Win; Playing For Your Future

 

Dealing with insurance can be tricky and often frustrating. I speak from experience.

It’s unfortunate that insurance companies make it so hard to understand the ins and outs of their policies as well as getting approvals especially since those who are trying to get covered are often going through really tough emotional times.

As I got myself prepared for my amputation I was doing everything to prepare myself, mentally, emotionally, physically, and financially seeing as this would be a forever life changing surgery.

My experience was not smooth, nor was it kind, but I figured out how to handle my situation, found my voice, and fought for what was right and what I needed.

Join me this week as I take you on my journey with the games that insurance companies play, and how you can play and beat them at their own game.

 

This is what I fought to get……

 

So I can do this….

 

…And this

 

….And this

 

…And this.

 

 

 

 

 

 

What are you fighting for? And if you’re not fighting for what you want, then who will???

 

Randy and David at The Limb Center and also Limbs For Humanity

 

 

This week, if you are in the middle of a big decision that takes medical insurance, make sure you do your homework and get confirmation about what is covered.

If you have been told “No” by your insurance company then it’s time to fight for what you want and need.

We must fight for ourselves, because only we know exactly what we need and want to make our lives worth living.

Help yourself by fighting for your future. Don’t give up, and don’t take “No” for an answer!

You are a warrior and you are WORTH IT!!

 

Have a blessed week and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

The First 3 Years

The First 3 Years

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Finding Hope after Amputation

 

No one really tells you what to expect after amputation, and quite frankly, even if they did, each journey is different.

The reality is that the first couple of years are filled with bumps, bruises, ups and downs. You will have highs and some of your lowest lows. There will be enormous changes, in your life, and in your body. And even when you finally get through the healing process, post-amputation, the challenges are just beginning. But with all that said, you can and will survive.

You spend A LOT of time in your prosthetist’s office the first 2 years

 

My very 1st prosthetic, one of many. Had no idea what was to come. All I knew was that I would be walking again!

 

Yet another socket!

 

Randy at The Limb Center in Phoenix, making my mold, for ( you guessed it) ANOTHER socket!

 

You will learn how your body adjusts, how it heals, what kind of strength (both physically and emotionally) you have, and you will build character…. oh boy, will you build character.

 

These are all the sockets (minus 3) that I have gone through, because of changes to my limb, in just 3 years!!!

 

The process is long and can be stressful if you don’t have patience. You will find yourself doing well one moment, only to feel like you’ve taken a step back in the blink of the eye. But don’t you give up! And don’t you worry. This is all part of the learning process and the changes you are going through, physically. Becoming an amputee and traversing the first 1-3 years is all about adaptability and change. If you can go into it knowing it is a process that could take that long, and that you will have positive moments of moving forward, riddled with backward steps, then you will be ready and able to handle what gets thrown at you.

You are a warrior, built for adversity.

Be strong.

Stay positive and active.

This is the to fight for what you want out of life.

We are in this journey together!

 

 

This week I want you to decide what it is that you really want out of your new life.

You will want to start building your own toolbox for those moments that become hard and emotionally draining.

I have so many hobbies, and things I do to pass the time, and to distract myself on the harder days, the days where phantom pains want to destroy me and my resolve.

What do you do when you get upset? Tired and frustrated? Or when you are hurting?

Most of us have a coping mechanism to help through those moments in life. This time is no different.

Be prepared to redirect your thoughts so you can get through and come out stronger on the other side.

Prepare yourself for battle; the internal battles that seek to bring chaos into y9ur life, making you doubt yourself and trying to destroy every dream you have. You are a WARRIOR! Believe it! You will succeed and be stronger for it.

Be prepared.

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

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