Tag: residual limb

Changes and Challenges

Changes and Challenges

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Podcast: Play in new window | Download (Duration: 27:25 — 29.2MB)

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New Socket and What To Expect

 

 

Here we go again!

Last week I told you all about a huge blister that formed in my socket on the end of my residual limb, well, after talking to my prosthetist about that and a few other things that I was ignoring, he decided that it was time to make a new socket!

 

UGH!!

 

Where great sockets are made!!

 

Randy West and I getting ready to make a mess!

 

Cast is made!

 

 

I know what you’re thinking. “That’s great! You’ll have a better fit than what you have now”, and that is true, however, the idea of going through the casting and fitting process, then a week of walking around in a hard plastic shell test socket isn’t fun and then after it’s all created there is a “breaking in”period that can last up to another week. All the while you are hoping that the changes move you in the right direction.

 

My current socket being used to remake the original mold

 

 

All in all, it will be better (or at least that is the hope). My guys do an amazing job of getting me the best fit, they are incredible at what they do, and I am blessed to have them in my corner. It’s just that it is such a long and, at times, painful process that brings discomfort before it brings joy.

So I am going this week to be recast and will create a video of the process for you to see.

I bring this up for a couple of reasons.

  1. This is my life, and my podcast is about my personal journey,  that I can speak to.
  2. It’s important to note that even though I’m through the harder years of fitting my prosthesis, there will still be changes that happen down the road, and being an amputee has ever-changing challenges and struggles.

I’m excited, for sure, to get a new fitting socket and the idea of recreating my external design has me giddy. I love remaking my look.

But I am a realist as well, and I know what I am about to embark on is a process that takes time, perseverance, and grit to get through. I know what’s coming and I know it can be unpleasant at times, but I also know it will help me get the most intimate fit ever and it’s important to my livelihood.

 

I will keep you posted on social media on how it’s going. Make sure you check out my IG and/or my Facebook page @BAWarrior360 for updates.

 

 

I would tell you to continue to communicate with your prosthetist as your limb matures and when you notice things “happening” with the fit, even minor changes, that you should let them know before you get a blister like mine, or worse!

I am fortunate that I don’t develop infections like some people do, but this one could’ve been bad for a person with a high infection rate.

Be vigilant with your life, your fit, and your comfort. If things don’t feel right, please make sure you reach out to your team.

It’s better to be safe than sorry and laid up for weeks because you “pushed” through something you shouldn’t have.

Also, remember that your limb and your body are constantly changing, no matter how long you’ve been an amputee. Don’t think that you are ___ years out and you won’t see any more changes. I’m almost 6 years out and I’m heading in for a new socket because of fit, not damage to my socket.

Our bodies are always changing and fluctuating, take note, and be vigilant when you notice something look or feel different.

 

I hope you have an amazing week and until next time,

And as always,

B e Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

Choose to Shine!

 

Walk It Out

Walk It Out

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Podcast: Play in new window | Download (Duration: 26:50 — 28.6MB)

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Practice Makes Permanence

It was 1 year post-amputation before I felt confident enough to go out and try a 10K

 

Let’s cut to the nitty gritty.

Practice makes permanence not perfection.

As an amputee it takes daily, mindful practice placing one step in front of the other to get comfortable in your prosthesis.

To take time to practice what feels right and looks right is important to learning the proper gait which in turn will help keep the rest of your body healthy and stronger for the long run.

If you start getting lazy, or not taking breaks and pushing yourself too hard too fast you might find yourself getting tired and losing focus and control over your practice.

This is a journey, not an end game. I am still focused on my gait and I am almost 6 years post-amputation.

Hiking on uneven, rocky terrain takes a lot of practice!

 

See the waddle? I can tell I was being lazy or I was hurting based on this one snapshot.

 

Woah! Working on balance and leg strength is important everyday so you can go off roading!

 

And once again, I try to challenge myself on different terrain. Winter hiking boots on snow/ice! Quite the trek!

 

 

Be mindful as you work on walking.

Pay attention to your hips being engaged and swinging your legs through your step versus swinging it out and around.

Take your steps slow and be patient.

Walk wherever you can and make learning your prosthesis a full time job, it’s important!

Also, be mindful of when you’re getting tired and take a break so you don’t resort to bad posture and gait.

I know you can do it, remember it is a journey and one worth practicing al the time.

Rise up, Warriors, and get to steppin’!

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

Me and My Guys in Hollywood Studios, FL
The Nerve of Some People

The Nerve of Some People

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Podcast: Play in new window | Download (Duration: 1:04:57 — 43.7MB)

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Plastic Surgeons and TMR Surgery:
Tackling Phantom Limb Pain

 

Everyone deals with pain at some point in their life, but when you have an amputation you know that there is a possibility of living with a pain you can’t even touch! When the missing limb is burning, itching, throbbing, or sending sharp pains with every movement it can be unnerving -pun intended- and hard to get past.

I, like so many other amputees, have dealt with phantom limb pain since day one. Most of the time I can handle it, sometimes in the quiet of night it can be hard to fall asleep, but I have been able to deal with it.  The point when I could no longer take the pain was when I couldn’t even walk into my kitchen without the pain being so sharp and unpredictable that I stopped moving!  It takes A LOT to stop me! I have a high tolerance for pain, and this was just too much for me. I have to say, this freaked me out and made me worry that maybe this was going to be like this for the rest of my life…. and then I stepped back and gave myself a pep talk. I cannot allow myself to participate in defeatist talk. Negativity cannot reside in me, I won’t allow it. So, what did I do? I had an appointment with my prosthetist and my surgeon who performed my amputation.

I was scheduled for an MRI to see if there was a neuroma, sure enough, there was one, exactly where I felt the pain. Symptomatic, great!

Next step? My orthopedic surgeon, Dr. Judd Cummings, told me that I needed to see a plastic surgeon, and the one he suggested, who knows how to perform a surgery called TMR (Targeted Muscle Reinnervation), Dr. Roni Prucz.  He put his confidence, and my future, into this doctor’s hands… and I believed in him, so I went.

Dr. Roni Prucz
Phoenix Plastic Surgery

 

Now, I didn’t have ANY desire for yet another surgery, but I promised I’d go talk to him.  What harm could that do?

….And before I knew it, I was scheduled for surgery! Dang it!

Dr. Prucz seemed confident that he could successfully help me with the pain on the back of my residual limb, where the neuroma was, but the sharp pain that I felt ripping down my non-existent shin, he couldn’t promise that. I couldn’t pinpoint where the pain was originating from and so he would just have to do exploratory surgery in that area, and hope for the best.

Without the neuroma, my gait has become so much better, there was no more pain there. However, the sharp pain, in the other area of my limb, returned about 6 weeks after surgery, not as often and not as intense, but it reared its ugly head and my fears of life-long pain returned.

No matter what, I will rise!

 

This is where I needed to advocate for myself and not just say, “Oh well, we tried.” That wasn’t good enough for me. I needed answers and I needed this to be fixed, or at least feel better. I saw my prosthetist, then Dr. Prucz, and then over to Dr. Cummings, just trying to figure this out, gain perspective, and to see if anyone had any ideas. I would NOT rest until I had direction.

Yesterday I took my next step in helping myself, I tried a sympathetic nerve block in my L3 and….. so far, so good!!!

I needed something that didn’t require another surgery and this was a good next step, and quick. If it works then I may be looking at having that nerve bundle ablated. I’ve been moving around for 24 hours now and not feeling that pain. This is a good sign, but I hesitate to get too excited, too soon. I will do my thing, I will beat on my leg through my high level of activities, like hiking, and really push the limits of my leg and socket. For me that’s the best way to really test out what I’ve had done.

I really test my leg and socket whenever something new has been done to either of them

 

I hope this podcast gives you some insight to TMR surgery, if you’re a candidate, and how to go about finding the right person to perform this on you. As always, I’m here for you! Send me an email or leave a comment. I’d love to chat and answer any questions you might have about what I went through. Talking to people who’ve been through something will help give you perspective and  maybe even curb fears you might have.

 

 

This week I want you to let go of the past, start looking to future. We cannot move forward if all we are doing is wishing we had back what we use to have. If you’ve lost a limb, it’s gone, there’s nothing you can do about it. The choice is up to you how you’ll view this difference. The choice is yours on how you will pursue your future. You can have a pity party, or you can decide to set new goals, change direction from the course you use to be on BEFORE losing your limb, and rise up!

The time is now! Dream big! Set new goals.  Adapt and move on with your life. I know there will be setbacks, I know there will be moments of pain, but they do not define you. Your attitude and what you do with your circumstance DOES!  What are you going to do? I want to see you thrive! I want to see you challenge yourself! I want you to rise up and conquer, because YOU are a warrior!  Now go out and crush it!

 

Until next time:

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

Angie

 

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