Tag: research

Cutting Edge Comfort

Cutting Edge Comfort

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Bionic Skins: Working Towards the Perfect Fit

We all want to feel our best, and live a life without pain, but at times it seems so out of reach for us amputees.

Donning a prosthesis that is suppose to emulate a real leg gets the job done but, trust me, it is far from comfortable and often it becomes such a painful devise that amputees choose not to wear it for too long, even taking days off from wearing it, leaving them feeling incomplete and frustrated.

Today I wanted to share with you an extraordinary company, created by Dr. Hugh Herr-bilateral below knee amputee, MIT professor and co-leader of the Yang Center for Bionics at MIT,  Bionic Skins is changing the comfort game for the better.

Lauren and Eric head up the Bionic Skins headquarters in Bedford, Mass. and graciously came on my podcast to share what Bionic Skins is, how it works, and the hopes and aspirations Hugh and his team have for building a better and more comfortable prosthesis for the amputee community.

Eric is the “numbers guy”, checking stats, running the biometrics of the patients and making sure the measurements taken are accurate…
among other hats he wears for the company.

 

 

Lauren is the prosthetist; working with the patients, creating the sockets,
and making sure the fit is everything it should be for comfort and durability.

 

As we sit down and talk you can see how bright the future is for amputees. The technology is getting better and the understanding of what is needed for improving the quality of life for amputees is increasing. More research is being done, and talking with amputees helps bridge the gap of what we currently have, what we struggles with,  and what is still needed to live actively and without restrictions.

Bionic Skins is doing just that.  They are currently work with patients, and taking new patients, that are below knee amputees all the while continuing to research, build studies, and improve on the technology that they are producing in house and through MIT’s Media Lab.

 

Check out their website HERE

You can also follow them on social Media platforms like Instagram and Facebook @bionicskins to stay up to date on their research and studies in which you may qualify to take part.

Also, you can listen to my interview with Hugh Herr, himself, from this past April, on my podcast HERE

Hugh and I discuss Bionic Skins toward the end of my interview where he discusses his design and how it was created.

 

Thank you again, Lauren and Eric, for taking time out of your busy schedule to talk to us about the incredible work you’re doing  to improve our lives. You are amazing people! Keep doing what you’re doing and I look forward to checking in with you again in the near future!

 

I hope you’ve enjoyed, and found promise for a brighter future, listening to today’s podcast. Please remember to like, share and SUBSCRIBE to my podcast and my YouTube channel so you don’t miss an episode!

Have an amazing week and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

Dr Hugh Herr-Founder of Bionic Skins and “Yours Truly’ all set up for a gait study I did last year at MIT.

 

Inventors & Innovators: Hugh Herr and Biomechatronics

Inventors & Innovators: Hugh Herr and Biomechatronics

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The New Age of Bionics

 

 

What happens to you when you find yourself in a do or die situation?

Hugh Herr was in that position as a teenager, barely making it out alive while doing something he loved and excelled at, a savant at his young age. But he didn’t make it out unscathed, he lost both of his legs below the knee.

What would you do? At that young age would you have given up, abandoned your dreams, or hid from life?

Would you believe that this situation inspired Hugh to become a creator, inventor and innovator in the prosthetic world?

He went from a kid set on rising to the top as a professional climber, to figuring out how to navigate life AND climbing again as a bilateral below knee amputee with prosthesis he created!

He changed his path to one of college and higher education. Getting his masters and doctorate degrees from Harvard and MIT, and is currently a professor at the MIT Media Lab and co-leads the Yang Center for Bionics at MIT.

He is known for creating bionic limbs that emulate the movement of natural limbs and has been called the “Leader of the Bionic Age” by Time Magazine.

He has TED talks, authored/co-authored over 200 peer-reviewed manuscripts and patents, and most recently Hugh and his research group invented the Agonist-Antagonist Myoneural Interface, which is a surgical procedure for limb amputation that allows the person with limb loss to control their synthetic limb with thought.

His research and studies are beyond amazing! The ideas and possibilities to come for those of us with limb loss from what he is inventing are going to be incredible and will make losing a limb less traumatic and more doable with the hope of what we will be capable of accomplishing with such high-tech and realistic bionics.

The age of bionics is growing by leaps and bounds and this past December 2023, I was blessed with the opportunity to work in the MIT Media Lab, meet Hugh, and participate in the current studies with several PhD students. I was blown away, to say the least, by what they are working on and what will be out on the market in the not too distant future. We are going to be seeing more stable, more controllable, and more comfortable fitting prosthesis which will give us our lives back and with more meaning.

 

So, yea, the first time I get to meet Hugh I look like this! Strapped in and ready to do research for the greater good!

 

This week, as we close Limb Loss/Limb Difference Awareness Month with my 4th and final interview with such an important innovator, as Hugh Herr, the pioneer of our bionic age, you do NOT want to miss what he shares about what is up and coming in the world of prosthesis and bionics.

Join me and Hugh Herr for this incredible interview!

Please share today’s podcast to bring hope and excitement for what’s to come to those in our amputee community.

Again, thank you, Hugh, for giving me the time to talk with you, pick your brain, and for your genius and creativity in helping us gain back our independence and ability to move smoothly despite our limb loss. I am truly inspired and excited for the future.

 

I hope you all enjoy today’s podcast and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

John, Me and Tony-PhD students from MIT that were in charge of the study.

 

You can watch the NOVA production of Hugh Herr’s life: NOVA “Augmented” HERE

 

Inventors & Innovators: Surfing Brings Healing

Inventors & Innovators: Surfing Brings Healing

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Adaptive Surfing with Swell Surf Foot

 

 

The Ocean is healing.

The Mana (power) of the ocean has a way of grounding you and setting you free so you can soar. It’s an unbelievable feeling!

Just before my 1 year anniversary of my amputation I traveled to Kauai and tried my hand at surfing. I hadn’t been able to get in the ocean, or really any water, for over 5 years due to surgeries and my inability to maneuver because of my injury. I was excited, and nervous.

Once I learned the basics I found a rhythm to surfing, a rhythm to the ocean. I felt the energy it had, and I felt that energy surge through me.

I no longer felt nervous, I felt carefree and alive, and I felt that ANYTHING was possible!

Today I talk with Zach Samalonis, the co-creator/inventor of Swell Surf Foot. He and Yuhan Zhang started this endeavor for a college course. They talked with surfers in the amputee community to get the data they needed to create a prototype, then designed, created and then got a few of their original designs into the hands of amputees ready and willing to try it and give feedback. I was fortunate enough to be one of them.

 

This is my original surf leg and foot alongside the Swell Surf Foot prototype.

 

Today we discuss how this adaptive equipment came to life from thoughts and research to designing and creating.

What amazes me is that neither Zach or Yuhan are amputees, but they were charged with finding a problem that needed to be solved and a community that needed their help for their capstone project their senior year at Thomas Jefferson University. The Swell Surf Foot can help bring surfing to more amputees and also brings those people to the ocean for healing. This low cost, water-proof prosthetic was developed with an increased ankle mobility to allow for correct surfing mechanics. In a world where most adaptive surfers have repurposed and fashioned make-shift surf feet because there was nothing on the market, this was filling a need, and want, in our amputee community.

What a beautiful gift their innovation is for adaptive surfers around the world.

Their dedication solving a problem and filling a need is genuine.

In a world where big companies rule the market, it is awesome to see individuals creating and making their mark.

Listen in to hear Zach talk about their inspiration, production, and dreams for the future of their product.

Find them online, give them a follow, and reach out to them if you’d like to try their product in it’s next gen status when it comes out.

 

Thank you Zach for your time today and sharing your story.

I look forward to putting on your surf foot again soon and feeling the freedom and energy of the ocean. Thanks to you and Yuhan, I have found a foot that brings comfortability, grip, and steadiness to my surfing sessions.

 

The ocean is a place for healing and finding freedom.

The Swell Surf Foot is a step in the right direction to getting more amputees out, active, and giving them the peace they need to move forward.

 

Have a blessed week and make sure you subscribe and share so that you and the people you care about don’t miss the amazing people coming up next on this podcast; each making a difference in the lives of amputees everywhere with their creativity, ingenuity, and dedication!

Check them out on Instagram @surfwithswell

or at Zachsamdesigns.com

 

As always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

One Size Doesn’t Fit All

One Size Doesn’t Fit All

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Not All Sockets (or Prosthetists) Are Made the Same

Randy West, myself, and David Banks

 

I consider myself so fortunate to have been directed to The Limb Center by my doctor, Dr. Judd Cummings, as I was planning for my amputation. And I think I am a good judge of character, so when I went in to meet Randy West and David Banks for the first time, pre-amputation, I knew I was getting the best care out there!

Fitting my running blade and trying it out for the first time

 

When I told Randy I wanted to surf and I brought him some surf leg plans he graciously went to work and built it for me,
just because he knew it was my dream!

 

Cheesy, but priceless, photo op with Randy, the Blue guy and my new surf leg!😎

 

They listened to me. They actually HEARD what I was telling them about my dreams, goals and aspirations….as well as my fears and doubts about going through with this surgery.

Not often, but in my situation, I was able to take my test socket out for a “test drive”

 

…and test drive it I did!! A 5K hike! It ended up being a great fit.

 

I had visited another prosthetist’s office before I knew of The Limb Center, and I had a pretty good experience there, too. I also met an amazing young lady who was an above knee amputee and a fighter, while I was there. However, three major factors first swayed me to Randy and David, before I really knew them. 1) They took my insurance- this is VERY important and the other office did not! 2) My doctor was very familiar with them and worked with them directly and, quite frankly, I trusted my surgeon and his opinion in this matter, and 3) David was an above knee amputee with 20+ years of experience being one. He could see things and understand an amputee better just by living it.

Amazing attention to detail, and always teaching me how to be independent,
by showing me how my prosthetic works and fits.

 

Then once I got to meet them and talk through my decision to amputate, I knew that we had a connection far greater than me being an office visit here and there. I had their cell phone numbers, could call or text whenever there was a problem, and time and again, they showed me that I mattered to them.

This is the type of relationship you should have and that you deserve with your prosthetist.

Randy and David join me in this podcast as we discuss the right “fit” in your relationship with your prosthetist, insurance and getting the right coverage, steps to getting your first socket, and when to turn around and walk out of that office and find the right relationship you need to be a healthy, happy amputee.  It can happen, but you need to push that for yourself and know when to do it.

Knowledge is power, and I want to arm you with as much knowledge as I can so you can feel confident and ready to advocate for yourself in the medical field, in your doctor appointments and when finding and working with your prosthetist. When we have knowledge, confidence, and opportunity we can access limitless possibilities in our lives.

 

 

People don’t realize that who you see for your prosthetics is so very important-it can make or break your desire and ability to really live your life after amputation, and it’s a relationship, like family.  You’ll be working with them for years to come so you’ll want to make sure you trust and enjoy working with them.

As always, if you have comments or questions, for me or our guests, please feel free to reach out to me. I’d be happy to help.

Time to do the research and leg work- no pun intended. Talk to people, find social media groups that work with amputees, reach out to the Amputee Coalition and your doctor to see who they recommend as a prosthetist for you.

Once you have found a couple, make an appointment to go talk with them. Read their body language and how they talk with you. Do they want to hear your history, problems, dreams and aspirations? If not, move on to the next appointment. You deserve better, and it’s out there!

Make sure you address insurance issues and coverage with the prosthetist’s office. This is expensive equipment and will need to be upgraded over time- remember, it isn’t growing back so we need to make sure we have some help in coverage of costs.

If you have a prosthetist that you are unhappy with, and they don’t seem to listen or invest any more than your short office visit then you really need to find the courage and tell them it’s not working. If you are seeing someone who,  when you tell them you’re hurting or something doesn’t feel right, and they tell you that it doesn’t get any better and you need to deal with it…that’s a red flag! Time to research other places and prosthetists and find someone who can help.

This is YOUR life and YOUR body. You need to push for the best care so you can live it to the fullest. Don’t be afraid to stand up for your rights. I’m telling you, there are really good practitioners out there, you just need to look and ask the right questions to find them.

I wish you all well, and please don’t hesitate to reach out to me for help.

 

Until next time:

Be Healthy,

Be Happy,

Be YOU

“We cannot change the cards we are dealt, just how we play the game.”

-Randy Pausch

 

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