Tag: reality

The Journey of a Thousand Legs

The Journey of a Thousand Legs

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Let’s Get Real

 

 

You’ve been through a lot. You had an amputation, you’ve healed, you’ve gotten fitted for your first socket.

Today you go in to put it all together and walk out the door and on with your life, right? Easy Peasy!

Yes! It’s the most exciting, most freeing day in an amputee’s life, for most people, however it doesn’t end there, and it doesn’t just magically take you back to “normal”.

Managing expectations and understanding how the journey is different for everyone will be helpful for your mental game.

First off, you need to understand that sockets make or break your experience with using a prosthesis. Just because you have the best foot or microprocessor knee (MPK) doesn’t mean you’ll be successful or walk better. Many aspects will factor in to how you handle your prosthesis.

 

Your prosthetist and his/her skills at listening to you, observing you and creating a socket that is best suited for you is so very important. Also important is your volume change, healing, and pain level.

Even if you have the best, most attentive prosthetist (like my guys, Randy and David at The Limb Center) who have created the most intimate socket for you, taking into account your contours and sensitivity, doesn’t mean that when you get your final socket you’ll be off and running. There are many aspects of those first 1-2 weeks of wearing the new socket that you will have to work through.

 

First, putting it on for the first time will take practice and more practice. Putting it on and off multiple times each morning wouldn’t be uncommon. It is not Lego pieces that snap together perfectly, your limb will conform  and fill your new socket better over time and your inner socket will mold to your limb over time and make it easier to put it on correctly the first time each morning.

Next, you will find that anything manmade isn’t perfect, even a remake of your test socket into a final socket, even though the same mold is used. This means that even if your test socket is feeling like the right fit, you’ll find that your final socket is a little different. It feels different, fits different, and can cause new rubs and rashes. It’s crazy, but by the end of my very first day in my brand new socket it was falling off….even though I was wearing my test sockets everyday, all day, for several weeks. My volume changed!

Finally, the best thing you can do is to continue to wear your socket to see what it’s doing, how it’s fitting, where it rubs or creates issues on your skin. My prosthetist always says 72 hours is a good gauge of how it REALLY is going to fit you. In 72 hours you can really test it and find how it functions in different situations and at different times of the day. Let’s face it, our bodies change throughout the day, and from day to day. To truly be able to communicate clearly what changes need to be made to your socket you have to put it to the test and make notes of what and where you are feeling things.

 

 

It would be so nice to receive your brand new leg and be off to the races but that is not reality for amputees. So many things can change and alter our fit, from one socket to the next, and from day to day and hour to hour. All you can do is learn patience and communicate clearly to your prosthetist so they know what you are feeling and what you need.

I went back to my guys two times, already, after wearing my brand new leg for 5 days.

This is a process. When you know this you can avoid some of the frustrations associated with socket fitting, and avoid feeling all alone in this journey. We all have some sort of adjustment to make once we get our “final”socket. And the fact is, when you are in your first 2-3 years post-amputation as soon as you get a socket you’ll have outgrown it so quickly that you’ll feel like you never even had a chance to really break it in and get use to it before it’s time for a new one.

 

This is a part of the journey of the 1000 legs, (at least that’s what it feels like).

My photo at the top is my actual sockets minus 6 ( a total of 18 in 6 years- most of those, probably about 15 where made in the first 3 years!)

Embrace the journey, be prepared for the time it takes and the process it takes to hone in to getting the best fit. Trust me, it’ll be worth it. When you get a great fit ti will make a world of difference.

 

 

Simple:

This week, if you are in a socket that you just received, wear it. Really give it a good try, even if it’s uncomfortable. Gather as much data and intel about the fit and the sore areas so you can ask your prosthetist. to make adjustment, with confidence. The better you communicate the sooner you’ll be in a socket that fits well and allows you to get back to life.

If you are about to get a new socket, or your first socket, I hope this helps you manage expectations so you come through this process in a positive state of mind.

Be excited, for sure. Getting a first socket or a new socket brings hope to you and your family. It’s exciting to design it, and to have your independence back, just understand that it is a process that you will have to navigate.

You will do just fine. You are not alone. I hope that brings comfort to you and a hope of a bright future as an amputee.

 

I hope you have a blessed week until we meet again.

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

Anticipation

Anticipation

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Let’s discuss Anticipation and Expectations as an amputee.

Every journey is different, every path navigated in life is unique, so why would anyone think that becoming an amputee that we would share the exact same journey?

We will have a similar structure as to what steps come first, second, third, etc, but wWHEN they come, HOW quickly you move from one step to the next, AND when setbacks will happen are all unique to each individual.

Understanding this, and excepting it will help with your success and also your stress.

When we drop the idea that “I want to be doing what Sue is doing.”, or “I want to run like John.” we can embrace our own journey for all its worth, and except the path we are on, which will reduce stressors and help us achieve.

Goal setting and POSITIVE expectations are found to be key to reducing stress and helping us reach success.

Join me for how to go about doing this, and at the end of the podcast check out your Call to Action on what you can be doing right now whether you are awaiting amputation, had an unexpected amputation, or just want to get out of your own way in life so you can find success.

 

Enjoy this episode, share with those you know who need some motivation and as always,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

Keep looking up! Reach for the stars, dear Warri0rs!!

 

In The Beginning

In The Beginning

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Podcast: Play in new window | Download (Duration: 32:17 — 33.5MB)

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What to Expect as a New Amputee

 

As with anything new there is a learning curve. Becoming an amputee is no different. However, since few people know of anyone that’s an amputee before they, themselves, become one, there are so many questions without answers.

It seems overwhelming, confusing and quite scary.

Have no fear, even though each one of us is very different as we deal with our own amputation, we also have many similar benchmarks or stages we go through.

First thing you need to know is that you will get through this and you are going to do great. If you can embrace that mindset, a mindset of positivity, then you are already on your way to bringing that to fruition.

I believe in manifesting my own destiny and I have deep faith in my purpose and that the journey I am on was set before me by a higher power.

Speak positive and empowering words to yourself, and you will manifest positive and empowering outcomes.

After your surgery you will have time to adjust to your new body image and center of gravity, time to rest and heal, and time to prepare for what’s to come. At this point it’s a great idea to focus on getting some core strength back and balance. These things you can work on as you wait for the fitting process.

Me trying on my very first socket (L) and me a couple sockets later (R). See the weight change?

 

Adjustments are always being made, even when the socket feels right the leg direction can be off (too far forward leaning, not adducted enough). These things depend on your type of amputation and your hip alignment.

 

I’ve been fortunate enough to take my “test socket” home and work out in it to make sure it is made to withstand the riggers of my activity levels.

 

Here’s how my guy, Randy, creates my sockets. He casts my residual limb.

 

Once you’ve been given the green light by your surgeon that you are ready to be fitted for your prosthesis then you will head to your prosthetist’s office, discuss your goals, dreams, activity levels and where you want to be and where you see yourself in the future. This will help them fit you correctly and get you the best prosthesis for you and your goals.

Your prosthetist will create a “test socket” for you-this could take a couple of weeks- and then you will go in, try it on, walk around in it and they will adjust it for a more comfortable fit, then off you go with your brand new leg.

PT should begin at this point, if you haven’t already been working with one to gain core strength and balance.

I know this can be scary and you might feel apprehensive at first but remember, they want to help you succeed at walking and using your prosthesis correctly so you don’t hurt yourself.

Communicate with them, let them know what feels good and doesn’t feel good, what scares you, what you don’t understand, and what you want to be able to do. Discuss your dreams and goals with them.

Now as you start using your new leg you will start noticing changes in your volume of your leg. The more you start doing life again the more your volume of your residual limb will change and then you run into the frustrating aspect of being an amputee, the socket fit.

You can literally get a brand new socket made to fit your leg perfectly and the very next day it won’t feel as snug. You’ll start to add socks on top of your liner, one after the next, just to accommodate your leg shrinking in size. The more socks you use the less connected you will feel and then you won’t trust your prosthesis to stay in place and behave the way it should.

But don’t worry, your prosthetist will be taking measurements and once those measurements align with your insurance company’s guidelines you can be fitted for a new socket.

The problem?

It is the whole process all over again!

You get a new casting of your limb (some cast, some use digital renderings, just depends on what they like to use), they create a new “test socket” and adjust it to fit nice and snug. Next they create a new final socket and you go back in, try it on, walk around, make adjustments and then you’re on your way…..until this one begins to fit poorly.

The reality: the first 2-3 years are a series of nicely fitting socket, loosening, refitting, recreating, and then all over again.

I, myself, went through 16 sockets in the first 3 years!

The sooner you know and understand this sequence of events, the better it is for you to mentally grasp the journey so these moments don’t gut punch you and make you feel like a failure, or that you’re doing something wrong, or that this is heading down an irreversible path.

Embrace this journey.  It is unique and challenging, but you will learn so much about yourself and build so much character, and experience, so quickly.

No one has the same experiences as they become an amputee but this is a basic outline of some pretty typical moments you will see to some degree.

Just remember you are stronger than you think and you will make it through this.

 

 

Plain and simple, this week I want you to face those fears.

I know you and see you. You are getting ready to head into your first physical therapy and have no idea how you will manage. You are worried you won’t be able to tolerate the leg, that you aren’t strong enough or even brave enough for this life….but you are!

As I tell myself when I encounter something that puts fear into my heart and doubt into my brain, “One step at a time, Ang”.

I can do anything, one step at a time.

One Step At A Time. Yes, that can be a metaphor, but I mean it literally.

You will NOT be asked to do stairs on your first day of PT, nor will they ask you to try running.

Baby steps is how you start. Just as a small child learns to crawl before they stand, stand before they walk, and walk before they run, you too, will go through these sort of “baby steps”. You are doing something for the first time. It takes, strength, balance, mobility, and practice to get it right, and even then you still won’t have it down. I still catch myself not walking with a good gait and making corrections. That’s ok, it takes time.

Enjoy the journey.

Embrace what scares you and make the most of these moments.

You can do this, look how far you’ve already come!

 

Have a blessed week and get after it!

Rise up, Warrior, rise up!

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

Transparency

Transparency

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The Truth About Being An Amputee

 

Not everyday is a picnic.

This is true for everyone around the world, but when you talk to amputees who lost their limb because of an accident, disease, war, or electively, the operation is just the beginning, not the finale.

Once we heal and begin to transition into a prosthetic- wearing person we are just then beginning to experience what amputee life is like.

I started this podcast, not because I wanted to hear myself speak (I hate hearing my own voice!), but because I wanted to be the voice of reality, and transparency for this community. I wanted to be real, no matter what that was going to look like.

The past 2 weeks have been very hard for me, emotionally, mentally, and physically. Even though I have enjoyed traveling with my family, skiing and walking the Vegas strip, my residual limb has been struggling to fit properly into my skin fit socket. When the fit isn’t right it swells and becomes hard and very sore. Then through the night it settles down a little but then the next day I try to put my prosthetic on only to have an ill fit again, making it worse throughout the day.

Mind you, I have had this socket for over a year and I haven’t experienced this, then after being at higher elevations, flying, skiing without it on, I find myself not fitting well.

There’s not much to do about it but hope that I “normalize” again, soon, before it gets any worse.

This is the life of an amputee.

Some of us look like it’s all roses, but were have our days and even weeks (and some struggle for months) but we can hide it well.

Transparency is important to me because so many amputees that I’ve talked to are so frustrated because the ones they see on social media are living life and doing so well (you know, only showing the best moments) and they are not. They, and maybe YOU are one of them, that can’t figure out how you will ever wear your prosthesis or walk in it. If you’ll ever be comfortable again or without pain.

It is not an easy journey, but you can succeed in this life.

You have to understand the reality of your new circumstance and what it entails, really, before you can just be running along in your prosthetic leg. it doesn’t happen over night. it takes practice, patience, and a lot of faith.

You will feel knocked down at times, but you must get up again and keep trying, keep pushing forward.

Don’t give up….

This too shall pass and you will find your way through the challenges and struggles.

 

 

I have a simple task and request for this week.

Next month, April, is Limb Loss/Limb Difference Awareness Month and I have a full month of interviews with AMAZING individuals who have spent time creating, inventing, and innovating designs and products to help our amputee community.

You really don’t want to miss out on an episode in April so my CTA is simple:

Subscribe to my podcast and my YouTube channel (BAWarrior360) so you don’t miss any of these special people and the work they are doing. Plus, please share my podcast with someone you care about who you think could benefit from some positivity and encouragement as they navigate amputation or even medical circumstances that they struggle with.

 

 

That’s it! Subscribe, Like, Share!

I hope to continue to grow my audience so I can help and motivate more and more people in the world.

Thank you, warriors, from the bottom of my heart!

Have a beautiful and blessed week until next time!

 

And as always,

‘Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

Me and my girl ♥
Inspiration and Resilience Through Adversity

Inspiration and Resilience Through Adversity

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What inspires you? Who inspires you?
Did you know that you, too, are an inspiration? Yep, you are!
Each of us has the ability to impact another person’s life and outlook just by the way we carry ourselves, how we behave, speak, and interact with the people around us. A simple smile could give someone just the boost they need when they are struggling. Having grace and forgiveness may give another person in our lives the peace they are looking for when everything around seems to be falling apart.
We can be that for someone. The reality is, people are watching, and people are looking for someone to inspire them. Even when you aren’t at your best, or you are struggling, you have the ability to brighten someone’s day and give them a hope that they need to rise up.
If you’re like me, an amputee, or someone who is struggling to push through physical adversity, then you have an opportunity every single day to show the world that anything is possible.
First time waterskiing as an amputee…anything is possible!
Skiing again, as an amputee….anything is possible!

 

First time, EVER, surfing…anything is possible!!
Even if what you do is commonplace for you now, like me walking with my prosthetic, there are people who have never seen an amputee who are amazed by this. Smile! Show the world that you aren’t going down without a fight and that you are more than your circumstance, because you are!
Be an inspiration, you never know who is watching.
Never, ever forget, that you are an inspiration to someone!
Now go out and INSPIRE!!!!!
As always,
Be Healthy,
Be Happy,
Be YOU!!!
Much love,
Angie

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