Tag: prosthetist

Cutting Edge Comfort

Cutting Edge Comfort

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Bionic Skins: Working Towards the Perfect Fit

We all want to feel our best, and live a life without pain, but at times it seems so out of reach for us amputees.

Donning a prosthesis that is suppose to emulate a real leg gets the job done but, trust me, it is far from comfortable and often it becomes such a painful devise that amputees choose not to wear it for too long, even taking days off from wearing it, leaving them feeling incomplete and frustrated.

Today I wanted to share with you an extraordinary company, created by Dr. Hugh Herr-bilateral below knee amputee, MIT professor and co-leader of the Yang Center for Bionics at MIT,  Bionic Skins is changing the comfort game for the better.

Lauren and Eric head up the Bionic Skins headquarters in Bedford, Mass. and graciously came on my podcast to share what Bionic Skins is, how it works, and the hopes and aspirations Hugh and his team have for building a better and more comfortable prosthesis for the amputee community.

Eric is the “numbers guy”, checking stats, running the biometrics of the patients and making sure the measurements taken are accurate…
among other hats he wears for the company.

 

 

Lauren is the prosthetist; working with the patients, creating the sockets,
and making sure the fit is everything it should be for comfort and durability.

 

As we sit down and talk you can see how bright the future is for amputees. The technology is getting better and the understanding of what is needed for improving the quality of life for amputees is increasing. More research is being done, and talking with amputees helps bridge the gap of what we currently have, what we struggles with,  and what is still needed to live actively and without restrictions.

Bionic Skins is doing just that.  They are currently work with patients, and taking new patients, that are below knee amputees all the while continuing to research, build studies, and improve on the technology that they are producing in house and through MIT’s Media Lab.

 

Check out their website HERE

You can also follow them on social Media platforms like Instagram and Facebook @bionicskins to stay up to date on their research and studies in which you may qualify to take part.

Also, you can listen to my interview with Hugh Herr, himself, from this past April, on my podcast HERE

Hugh and I discuss Bionic Skins toward the end of my interview where he discusses his design and how it was created.

 

Thank you again, Lauren and Eric, for taking time out of your busy schedule to talk to us about the incredible work you’re doing  to improve our lives. You are amazing people! Keep doing what you’re doing and I look forward to checking in with you again in the near future!

 

I hope you’ve enjoyed, and found promise for a brighter future, listening to today’s podcast. Please remember to like, share and SUBSCRIBE to my podcast and my YouTube channel so you don’t miss an episode!

Have an amazing week and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

Dr Hugh Herr-Founder of Bionic Skins and “Yours Truly’ all set up for a gait study I did last year at MIT.

 

In The Beginning

In The Beginning

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What to Expect as a New Amputee

 

As with anything new there is a learning curve. Becoming an amputee is no different. However, since few people know of anyone that’s an amputee before they, themselves, become one, there are so many questions without answers.

It seems overwhelming, confusing and quite scary.

Have no fear, even though each one of us is very different as we deal with our own amputation, we also have many similar benchmarks or stages we go through.

First thing you need to know is that you will get through this and you are going to do great. If you can embrace that mindset, a mindset of positivity, then you are already on your way to bringing that to fruition.

I believe in manifesting my own destiny and I have deep faith in my purpose and that the journey I am on was set before me by a higher power.

Speak positive and empowering words to yourself, and you will manifest positive and empowering outcomes.

After your surgery you will have time to adjust to your new body image and center of gravity, time to rest and heal, and time to prepare for what’s to come. At this point it’s a great idea to focus on getting some core strength back and balance. These things you can work on as you wait for the fitting process.

Me trying on my very first socket (L) and me a couple sockets later (R). See the weight change?

 

Adjustments are always being made, even when the socket feels right the leg direction can be off (too far forward leaning, not adducted enough). These things depend on your type of amputation and your hip alignment.

 

I’ve been fortunate enough to take my “test socket” home and work out in it to make sure it is made to withstand the riggers of my activity levels.

 

Here’s how my guy, Randy, creates my sockets. He casts my residual limb.

 

Once you’ve been given the green light by your surgeon that you are ready to be fitted for your prosthesis then you will head to your prosthetist’s office, discuss your goals, dreams, activity levels and where you want to be and where you see yourself in the future. This will help them fit you correctly and get you the best prosthesis for you and your goals.

Your prosthetist will create a “test socket” for you-this could take a couple of weeks- and then you will go in, try it on, walk around in it and they will adjust it for a more comfortable fit, then off you go with your brand new leg.

PT should begin at this point, if you haven’t already been working with one to gain core strength and balance.

I know this can be scary and you might feel apprehensive at first but remember, they want to help you succeed at walking and using your prosthesis correctly so you don’t hurt yourself.

Communicate with them, let them know what feels good and doesn’t feel good, what scares you, what you don’t understand, and what you want to be able to do. Discuss your dreams and goals with them.

Now as you start using your new leg you will start noticing changes in your volume of your leg. The more you start doing life again the more your volume of your residual limb will change and then you run into the frustrating aspect of being an amputee, the socket fit.

You can literally get a brand new socket made to fit your leg perfectly and the very next day it won’t feel as snug. You’ll start to add socks on top of your liner, one after the next, just to accommodate your leg shrinking in size. The more socks you use the less connected you will feel and then you won’t trust your prosthesis to stay in place and behave the way it should.

But don’t worry, your prosthetist will be taking measurements and once those measurements align with your insurance company’s guidelines you can be fitted for a new socket.

The problem?

It is the whole process all over again!

You get a new casting of your limb (some cast, some use digital renderings, just depends on what they like to use), they create a new “test socket” and adjust it to fit nice and snug. Next they create a new final socket and you go back in, try it on, walk around, make adjustments and then you’re on your way…..until this one begins to fit poorly.

The reality: the first 2-3 years are a series of nicely fitting socket, loosening, refitting, recreating, and then all over again.

I, myself, went through 16 sockets in the first 3 years!

The sooner you know and understand this sequence of events, the better it is for you to mentally grasp the journey so these moments don’t gut punch you and make you feel like a failure, or that you’re doing something wrong, or that this is heading down an irreversible path.

Embrace this journey.  It is unique and challenging, but you will learn so much about yourself and build so much character, and experience, so quickly.

No one has the same experiences as they become an amputee but this is a basic outline of some pretty typical moments you will see to some degree.

Just remember you are stronger than you think and you will make it through this.

 

 

Plain and simple, this week I want you to face those fears.

I know you and see you. You are getting ready to head into your first physical therapy and have no idea how you will manage. You are worried you won’t be able to tolerate the leg, that you aren’t strong enough or even brave enough for this life….but you are!

As I tell myself when I encounter something that puts fear into my heart and doubt into my brain, “One step at a time, Ang”.

I can do anything, one step at a time.

One Step At A Time. Yes, that can be a metaphor, but I mean it literally.

You will NOT be asked to do stairs on your first day of PT, nor will they ask you to try running.

Baby steps is how you start. Just as a small child learns to crawl before they stand, stand before they walk, and walk before they run, you too, will go through these sort of “baby steps”. You are doing something for the first time. It takes, strength, balance, mobility, and practice to get it right, and even then you still won’t have it down. I still catch myself not walking with a good gait and making corrections. That’s ok, it takes time.

Enjoy the journey.

Embrace what scares you and make the most of these moments.

You can do this, look how far you’ve already come!

 

Have a blessed week and get after it!

Rise up, Warrior, rise up!

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

Overcoming Fear Part 3 of 3

Overcoming Fear Part 3 of 3

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Fear of Letting Go

 

As we come to the end of this three part series on overcoming fear I feel that today’s podcast of Letting Go to be a big one, especially for amputees. Not that we all don’t struggle with letting go of: the past, what we can’t control, and toxic relationships, but because as an amputee myself I have seen and heard of so many amputees struggling with these three aspects of letting go.

 

 

For most of us, not living in the past is hard. We all tend to have some part of our heart in the past. Sometimes we fear that letting go of the past will also mean we will forget something that was beautiful about it. Memories stay but that doesn’t mean that “living” there is a good thing, especially when we deeply miss some major part of it or, worse yet, can’t forgive a transgression against us that happened in the past. I know several amputees who became an amputee due to a past wrong done to them: a drunk driver, a negligent driver that they were a passenger with, and those pasts NEED to be left there. I know I can’t speak to this struggle as it is not my story nor my journey, however, I have talked with and watched the lives of people I have met that are dealing with this and one common thread amongst them is lack of joy and lack of healing.  These are the people I have seen struggling with being an amputee, finding purpose, finding joy, and those who struggle to feel peace in their new place, struggling to feel good in their prosthetic and the fit, even not healing correctly or in a timely matter. Our minds are strong and can determine how we see ourselves and our lives, dictating how we feel and function. When we get stuck in a place of anger and blaming our circumstances on a past transgression, we aren’t punishing the offender we are punishing ourselves!

Doesn’t knowing this make you want to work at forgiveness, for the sake of our own lives? You aren’t saying that what this person did to you and your life is OK, you are just letting yourself let go of the one thing that could be holding you back from recovery and living a healthy, happy life….Aren’t you worth that? (I think you are!)

 

Another aspect is letting go of things out of your control.

So you’re an amputee now. Now what?

Your limb is gone, and never growing back. Time to move forward. Learning to embrace where you are at in your journey is half the battle. You can’t change what happened, but you can control HOW you handle it. If you sit and worry about healing, the prosthesis, the fear of being or not being able to walk again, etc, you are just going to stress yourself out and you are worry about something that isn’t important right this minute. Stop, breathe, live for RIGHT now. Can you find something to be happy about, right now? I bet you can. Maybe it’s that you survived, you healed well, you aren’t on pain meds anymore. Maybe it’s that you have a family that is there for you, a friend group who is surrounding you with love, support, and prayers. Maybe it’s a pet that is glad you are home (they don’t care if you have one less leg or not!) Perspective! Do you have it? You can’t control something that has already happened to you, you can’t control how long it will take you to heal, or if your prosthetist is going to be “the one”. You can control your emotions, your outlook, your decisions. Start there, and let the Higher Powers that Be do their thing. If you spend your time worried and wondering how long before staples come out, how insurance might deny you, how long before I get a prosthesis that fits right you will be exhausted from all that worrying. That’s not productive nor is it beneficial to your health (mental or physical). Learn to let go of the things you can’t control and start dealing with the items within your control. You’ll be surprised how happy you will be.

 

 

Finally, letting go of relationships. Now, as an amputee, and one who has been listening to new amputees talk about the beginning stages of getting fitted for their first prosthetics I am highly speaking of this perspective….however, some of you listening may be in a toxic relationship, one that has been negative toward you, not supportive, or downright mean, take this as you see fit.

You do not owe anyone the benefit of sticking around when it is not in your best interest!

As I speak of this I am directing this mostly toward new amputees who think that their prosthetist is their prosthetist, no matter what. Some of you how found yourself in a hospital bed, only to wake up from an accident, missing a limb, have been given a prosthetist by the hospital and you know nothing about them. Some of you live in a small town where there is only one company and you lack options. I am here to tell you that you do NOT have to sacrifice good, personal care because of those circumstances. You CAN shop around. You can change who is handling your fitting to someone more connected with you, more caring, and understanding of YOUR situation. Even though they handle amputees day in and day out, doesn’t mean they know YOU. You are unique, even as an amputee. What works for one Above Knee Amputee, doesn’t work for another. We are all different, from our age, how we became an amputee, our health and activity level, etc. These all determine how we handle a prosthetic, to how it fits, and what kind we need.

Unfortunately, we consider our prosthetist, like doctors, as the professional and take their word on all matters about our fitting. The problem is, we are the professionals of our own body and we know what feels good and what doesn’t. It’s ok to speak up. It’s ok to communicate and ask for changes. And it is definitely ok to change who you are using when you feel that you are not getting the care that you need.  Most of us don’t want to “rock the boat” and don’t want to hurt someone’s feelings, and you don’t have to. You just need to know when you’ve given your prosthetist several opportunities to make things right by you and when to cut ties and move on. You CAN interview other prosthetists to get the “best fit” for your situation and personality, after all, you will have them in your corner for the rest of your life. You deserve the best!

 

 

This week there are several things you can be doing to overcome the fear of letting go:

The Past:

Try to stay focused on the present. Letting go of past hurts and mistakes can be hard and some days will be harder than others. Just keep telling yourself that you forgive_________, and repeat it over and over again. Find ways to stay in the present and start finding goals to occupy your time. Letting go of past hurts and mistakes, or even heartbreak of losing a limb, just keep living in the now and finding the joy in the day to day events. Over time you will feel the weight of the past giving way to joys of future journeys.

The Uncontrollable:

It’s inevitable that we worry about things out of our control, so don’t fret when you succumb to that way of thinking. Recognize that you are worrying about something you can not control and refocus on what is in your control.  This takes mindfulness. You must be present and in the moment to see what you are doing and how it is not helpful. Redirect your thinking to what you CAN do in that particular situation and focus on that. Practice, practice, practice. This one is hard to let go of, but your heart and body will thank you when you do!

Relationships:

This goes out to those new amputees who feel like they aren’t in the right m medical office. Don’;t be afraid to communicate exactly what’s going on with your limb. If you still feel like you aren’t getting the care that you need, and the changes being made so you are comfortable then maybe it’s time to shop for a new provider. Don’t be afraid to do what’s right by you. It’s your life, after all! And you deserve the very best care. Be patient, be kind, but when push comes to shove, if you don’t feel like you are being heard, or time isn’t being spent on you to make necessary adjustments so you are out of pain, then it’s time to say good-bye to the old and find someone new. You deserve to be happy and feel the best you can in your prosthesis.

 

I hope this series on fear helped you in some way or another. If you feel like you know someone that this could speak to, please like and share.

I appreciate each of you and hope you are living your best life.

Until next we and as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

Angie

Who Had Your Back…….

Who Had Your Back…….

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During Your Bounce Back?

Me in my very bouncy running blade

 

April is Limb Loss/Limb Difference Month and I am excited to share with you several guest speakers throughout the month and into May, however, we had a major setback yesterday and will have to reschedule them for another week.

Turning my setback into a setup, I spent most of last night frustrated and upset that my plans, well-thought out but still botched, coming up with what I feel is a super start to this special month.

 

Our support groups, people, family, friends, and companion animals!

Yep, let’s turn the tables and give thanks to those who were by our side, through thick and thin, through the good times, and the bad. Those that helped us laugh when we wanted to cry and held our hands when we were afraid.

Who was there to support you?

Who stood on the sidelines and cheered you on?

Who protected you?

Who visited when you felt alone?

These are the people (and maybe animals) who deserve our utmost gratitude and love. They saw us at our worst and lifted us up so we could shine.

Today I am grateful for the medical staff who helped me through, for my family back home, for the friends who checked in on me and brought my family dinners, and to my husband and 2 boys who were my biggest fans, strongest supporters, carrying me through hard times and bad news, to making me laugh until I cried. I wouldn’t be where I am today without all of you! I am forever grateful for every note, call, meal, smile, appointment, taxi service, adjustment, joke, and hug you all supplied me with to get me through.

YOU are my heroes!

My hubby, high school sweetheart, and biggest supporter. I love you!

 

Best kids in the world and always there for a hug!

 

My family! 5 siblings (I’m the youngest😏), with our dad

 

 

My PTs who helped prep me for amputation(plus 4 years of PT prior to it, trying to save my leg!) They are family.

 

My best bud and Phoenix Rock n Roll Marathon challenger, Mary Wylie

 

Post amputation PTs and those who didn’t laugh when I’d come in and say, “So, I’d like to try…”
And thanks for helping me get ready to surf!

 

PT Dan and owner of Touchstone Rehabilitation. He helped me get my gait down so I’d stop bruising my femur!

 

The guys who make the magic happen! Making sure I’m set up for success with ideal fitting sockets to awesome paint jobs!

 

PA Mary representing the surgeon’s office on my 10K a year after my amputation

 

Special nurses who got me through the amputation- Day 1 of my new life

 

 

And there are so many more family and friends who were there for me. Thank you, thank you all, from the bottom of my heart!

 

 

This week, use the next 7 days until pour next episode to reach out and give a heartfelt thank you to those who have been there for YOU! Trust me, you will make their day and your bucket will be overflowing knowing that you made a difference in their lives as well.

Everyone wants to be appreciated for the moments they helped out someone they care about.

When we show that sort of appreciate, after the fact, shows them that we saw them and their kindness.

Now who couldn’t use a little more of that in their life?

 

As always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

Angie

 

Me and my support girl😍
Til Death Do Us Part

Til Death Do Us Part

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Picking a Prosthetist You Can Grow Old With…It’s YOUR Choice!

Today’s topic is one of those decisions we must all make if we decide to, or get thrusted into, becoming an amputee. We know that it won’t grow back, and we know our bodies change as we get older, so it only makes sense to find a prosthetist that you can rely on, trust, and connect with, after all, he (or she) will be your go to for all things prosthetic in your future.

Have you/Are you “interviewing” several different prosthetists and prosthetic companies? That’s a must!

Do you feel heard? You should!

Have you explained what you envision doing in your future to give them a better understanding of who you are and where you want to be (goal setting, see previous episodes!)? You must, if they are to help you to the best of their ability.

If you have a current prosthetist but are struggling with your fit, have you explained it to them and do you feel they are working with you to solve the problem or are they brushing it aside or, even worse, telling you it’s you, and you just have to deal with it (YES! I have actually had someone reach out to me and tell me that their prosthetist told them that!!!)?

Teamwork makes MY dream work!

 

Adjustments, adjustments, adjustments! Constantly making improvements.

 

Randy made me a surf leg so I could go live out my dream!! Now THAT is a prosthetist who listens and cares!

 

Getting every angle just right, but he said he’d come along to Hawai’i to help… just in case! 😉

 

The big question I see being asked out in the amputee community is about prosthetists. How do I know I’m getting a good one? Is ______________ a bad company to use? I don’t know if my prosthetist is good, what should I do?  And the list goes on and on.

I would start by telling you, TRUST YOUR GUT! and Interview, interview, interview! Even if you are in a “relationship” with a prosthetist now, remember this is YOUR life! YOU know what you want. YOU know what goals you have for yourself. YOU know your body better than anyone else.

I’ll say it again. TRUST YOUR GUT!

You are trying to get back to a good life, no wait, a GREAT life! And you can, I’m telling you that you can, with the right support, and right tools. Just like when you are looking for a doctor to diagnose you and check your health, you know when it feels right. It’s no different here. Don’t settle for anything less than the best. And who works for you might not work for someone else, and vice versa! Don’t listen to other, make up your own mind. Go and interview them and use the advice you heard to make an educated decision.

 

Life can be great again! Becoming an amputee isn’t the end of life as you know it, it’s the beginning of a life you’ve never dreamed of!

Chase after it with all you’ve got. Put in the leg work (pun intended) and watch it pay off for you!!

 

Remember, you are worth it!

 

 

 

Simple:

This week make a list of prosthetist in your vicinity, or areas you don’t mind traveling to (remember that the first 2-3 years you will be there a LOT!).

Call them and make an appointment to meet with them and ask questions. Even ask to talk with other amputees-most of them have a peer-to-peer program that see this prosthetist, they’ll be a great resource on how they feel about their relationship with the prosthetist.

Even if you are already in a relationship with a prosthetist, you can do the step above. If you are unhappy with the service you are receiving then look elsewhere to see what’s happening at another office and company. Maybe the grass is greenier….and nmaybe it’s not.

This is your life. You must take charge and get what you need tolive your best life, now! I believe in you! No go out, and find the prosthetist of your dreams!😉

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

Angie

 

 

Roll With the Punches

Roll With the Punches

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Life is never truly easy, for anyone. Sometimes it feels like everything is going our way when out of the blue a bomb drops.

Maybe your job or family life is struggling, or maybe your health.  Then you can feel overwhelmed and defeated.

But don’t fret. We all go through these moments. We all have valleys we must trudge through. What I have learned through life is that the valleys don’t last forever and soon you’ll be on top once again.

The problem being on top is that you never know when a valley will strike again, when you get gut punched and feel the wind knocked out of you.

If you realize that this is just how life goes, the sooner you can prepare yourself to handle those moments.

Not like you will ever be totally prepared but at least not naive to the fact that it happens. If you practice positivity, and strengthening your character, you will be better prepared for those moments. They won’t control you and every aspect of your life.

Our job is to learn from them, to build up our resilience and character to better handle those situations.

As an amputee I have these moments a lot. As soon as my socket feels great, I’m out being active, life is good….. BOOM!

My socket doesn’t fit anymore, it’s too loose, or there’s a crack that’s hurting my leg, leaving painful raw spots every step throughout the day. That’s when I need to dig down deep, realize that this too shall pass, and I must carry on. My family depends on me to function. I have goals I want to achieve and a life I want to live… to the fullest.

If you are struggling right now, life has served up some lemons and a swift punch to your gut, don’t fret. You can get through this.

We all deal with these moments, wishing they would just pass us by, but if you can see these as learning moments, to better serve you in the future then you are on the right track. Each trial we go through breaks us down to build us back up, preparing us for the next, making us stronger.  But it’s up to you to rise to that challenge, it’s not just given to you. You won’t just rise up because you sit around pouting about your circumstance. You rise up and build character if you FIGHT! You have to use those muscles to get back up, you need to speak positivity into your soul, you will struggle otherwise.

Take a look at today’s Call to Action for steps to take to work on your resilience today.

 

 

 

 

 

This week I want you to prepare for the storm.

How you do it might be a little different from me, but a basic strategy is:

  1. Use positive affirmations about myself. Post them somewhere or at least write them down. Look back at them when the going gets tough!
  2. This week, write down a “silver lining” about each day for the next 7 days. Even in the toughest times there is good. Sometimes we have to look long and hard, but it’s there. Realizing that your world isn’t ending because of something bad is half the battle. If you start looking for the positive and the good in your life then you are armoring yourself for the battles that are sure to come.

I hope this helps you get through your week, and your future. Fight the good fight, Warrior! You and your family are worth it!

 

As always,

Be Healthy,

Be Happy,

Be YOU!!!!

 

Much love,

Angie

 

 

 

Fluid, Flexible, but Ferocious

Fluid, Flexible, but Ferocious

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Managing Expectations

 

Sometimes we just feel like nothing is going right, we can get down on ourselves, or worse,  OTHERS, because of what we are going through.  When we expect certain things to go a certain way we can be setting ourselves up for a let down of epic proportions.  I’m not saying you shouldn’t strive for your best, or to set those types of expectations/goals for yourselves. You should always work at achieving something greater than where you are at now, for example, if you want to walk to your mailbox, with your prosthetic, but have only gotten to the end of your driveway, then go for it. It’s achievable but will take hard work, time, and positive attitude.  What I am referring to is how you feel in your prosthetic or what you are expecting from your prosthetist.

My prosthetists: Randy and David
The Limb Center

Teamwork!

The work room where Randy does all his magic!

Be forewarned, you need to know the difference between a prosthetist who is giving his or her all to you and those who aren’t. You also need to know if you are just expecting too much. Remember, you lost your limb, nothing can replace the real thing. What you ARE looking for is something that will be doable to get around on and is comfortable enough NOT to cause any other issues, such as: blisters, infection, bruising, etc.  YOU have to know the difference between when you are expecting too much or when your prosthetist isn’t giving enough. And that, my friends, takes time and listening to your gut.

 

You can best determine if you are getting the best care possible if your questions are being addressed, your concerns are being heard, and actions are being taken to assure your best interests are being met.  If in your gut you feel you aren’t being heard, or given proper time to address issues you are having, then you probably aren’t in the right office.  However, you also need to understand that no practitioner is going to be able to give you ‘perfect’.  There is no such thing, and you need to manage THOSE expectations and find a common ground, one where you feel good enough about your fit, and aren’t in major pain.  My leg I have right now, after almost three years, feels the best….but it’s not perfect.  I can deal with what I have to deal with because it’s better than it’s ever been.  I have to know that this is a good thing, I lowered my expectations to an 80-90% pain free, versus looking for 100% pain free.  And I’m ok with that. I am also a better, happier, thus healthier ME, because I have come to terms with not feeling perfect.

Catch my drift?

You don’t need to settle, that’s not what I am saying, but know the difference of getting good, quality health care versus high expectations that NO ONE could possibly supply you.

I’m the lucky one. I had an amazing doctor who directed me to two of the most kind, caring and talented prosthetists around.  They care about me, my lifestyle, and making my life the best they can give.  I ask questions, tell them my symptoms and they work with me to achieve that. I don’t complain or blame them for ill-fitting sockets, I just ask for their help to make it better. I communicate clearly about what’s going on and they do the rest.  We work together and make it a “give and take” relationship that works. After all, it’s going to be a long ride with these guys.

 

 

Work on journaling your feeling and where you are struggling.  Try to keep track of and acknowledge the time of day, weather, and other factors that could be causing you issues. Is there a common thread? Can you work around that or fix it yourself? Is it your mindset holding you back or is it a true issue with your fit?

Practice being flexible and patient.

Understand and communicate with your practitioner about what you are going through, dealing with, and what you need. Pay attention to your body so you CAN communicate clearly.  These small things will help you give them the best shot of actually helping you, after all, you are the only one who can feel what you feel and describe what’s going right and wrong. It’s our job to communicate clearly and accurately so they can help us to the best of their ability.

Let go off perfection. It won’t ever get there but those thoughts will make you grumpy and frustrated with everything going WRONG that you’ll forget to focus on what is going right. Be positive!

 

You can do this, I believe in you!

Change your mindset,

Stay positive,

Find a level of comfort you CAN live with and

Get out and live your life!!!

 

As always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

Angie

 

You Don’t Know What You Have Until It’s Gone

You Don’t Know What You Have Until It’s Gone

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I love my leg, what can I say. But it’s a love/hate relationship the first week of having a new socket put on. Like a new pair of shoes that need to broken in before you run a marathon, a new socket- even made perfectly for your limb- has it’s own personality that you need to get use to. It will hit your thigh differently, rub your groin raw, bump the end of your limb til it bruises, and then…. after some perseverance, patience and a glass of wine (or two), you hit your stride with your new friend and all is right with the world!😉

 

But at first you may be reluctant to change, frustrated to tears, because yet again, you must endure what you thought you were done with. It’s hard to face the music when you know what’s going to happen…AGAIN. There’s just no escaping that reality, but you must push through, because the gains to be made and the reward to getting through that first week, or so, is amazing!

You CAN do it.

Pick your chin up, put your leg on, and dance!!!

 

Dance like no one is looking,

Sing like no one is listening,

Live like each day is your last!

 

Will it be easy, no! But nothing ever great came easy.

Strive for greatness each day. Each day, make your mark, set a goal, live your life.

If you must, do things that will distract you from the moments of pain, I do. I stay really busy! Sitting down and reading a book does not distract me, activity does. Shopping, cleaning, working out, playing with my dog, asking a friend out for coffee. Somedays we just need a distraction while we break in the new fit. That’s ok. Your goal is to get comfortable in it and the only way to find comfort is by wearing it and pushing through some pain of newness.

Please, though, know your body. What works for me may not work for you. Listen to your doctor, prosthetist, or PT-whom you trust. Let them guide you when you don’t feel confident or strong enough.

Today’s Call to Action was brought on by the tragedy of the loss of a friend.

*Embrace someone you love today, and tell them you love them!

*Be gracious and kind to those around you, even the ones who are mean or angry, we are all fighting a battle.

*Reach out to a long lost friend or relative, or someone who you sense has withdrawn and become distant. It isn’t about you, they may be fighting a battle you have no idea about and they could probably use a friend. Someone willing to see them for who they are in their heart and not how they have been acting.

Above all else, love one another. We each have our moments, our battles, our valleys. Love always wins!

Please don’t forget to subscribe to my website and podcast so you don’t miss an episode! Next week I will have my prosthetist, Randy West, on the show talking about how to know what’s working and when to move on!

Until next time,

Be Healthy,

Be Happy,

Be YOU!

 

Much love and admiration,

Angie

 

 

One Size Doesn’t Fit All

One Size Doesn’t Fit All

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Podcast: Play in new window | Download (Duration: 57:51 — 40.0MB)

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Not All Sockets (or Prosthetists) Are Made the Same

Randy West, myself, and David Banks

 

I consider myself so fortunate to have been directed to The Limb Center by my doctor, Dr. Judd Cummings, as I was planning for my amputation. And I think I am a good judge of character, so when I went in to meet Randy West and David Banks for the first time, pre-amputation, I knew I was getting the best care out there!

Fitting my running blade and trying it out for the first time

 

When I told Randy I wanted to surf and I brought him some surf leg plans he graciously went to work and built it for me,
just because he knew it was my dream!

 

Cheesy, but priceless, photo op with Randy, the Blue guy and my new surf leg!😎

 

They listened to me. They actually HEARD what I was telling them about my dreams, goals and aspirations….as well as my fears and doubts about going through with this surgery.

Not often, but in my situation, I was able to take my test socket out for a “test drive”

 

…and test drive it I did!! A 5K hike! It ended up being a great fit.

 

I had visited another prosthetist’s office before I knew of The Limb Center, and I had a pretty good experience there, too. I also met an amazing young lady who was an above knee amputee and a fighter, while I was there. However, three major factors first swayed me to Randy and David, before I really knew them. 1) They took my insurance- this is VERY important and the other office did not! 2) My doctor was very familiar with them and worked with them directly and, quite frankly, I trusted my surgeon and his opinion in this matter, and 3) David was an above knee amputee with 20+ years of experience being one. He could see things and understand an amputee better just by living it.

Amazing attention to detail, and always teaching me how to be independent,
by showing me how my prosthetic works and fits.

 

Then once I got to meet them and talk through my decision to amputate, I knew that we had a connection far greater than me being an office visit here and there. I had their cell phone numbers, could call or text whenever there was a problem, and time and again, they showed me that I mattered to them.

This is the type of relationship you should have and that you deserve with your prosthetist.

Randy and David join me in this podcast as we discuss the right “fit” in your relationship with your prosthetist, insurance and getting the right coverage, steps to getting your first socket, and when to turn around and walk out of that office and find the right relationship you need to be a healthy, happy amputee.  It can happen, but you need to push that for yourself and know when to do it.

Knowledge is power, and I want to arm you with as much knowledge as I can so you can feel confident and ready to advocate for yourself in the medical field, in your doctor appointments and when finding and working with your prosthetist. When we have knowledge, confidence, and opportunity we can access limitless possibilities in our lives.

 

 

People don’t realize that who you see for your prosthetics is so very important-it can make or break your desire and ability to really live your life after amputation, and it’s a relationship, like family.  You’ll be working with them for years to come so you’ll want to make sure you trust and enjoy working with them.

As always, if you have comments or questions, for me or our guests, please feel free to reach out to me. I’d be happy to help.

Time to do the research and leg work- no pun intended. Talk to people, find social media groups that work with amputees, reach out to the Amputee Coalition and your doctor to see who they recommend as a prosthetist for you.

Once you have found a couple, make an appointment to go talk with them. Read their body language and how they talk with you. Do they want to hear your history, problems, dreams and aspirations? If not, move on to the next appointment. You deserve better, and it’s out there!

Make sure you address insurance issues and coverage with the prosthetist’s office. This is expensive equipment and will need to be upgraded over time- remember, it isn’t growing back so we need to make sure we have some help in coverage of costs.

If you have a prosthetist that you are unhappy with, and they don’t seem to listen or invest any more than your short office visit then you really need to find the courage and tell them it’s not working. If you are seeing someone who,  when you tell them you’re hurting or something doesn’t feel right, and they tell you that it doesn’t get any better and you need to deal with it…that’s a red flag! Time to research other places and prosthetists and find someone who can help.

This is YOUR life and YOUR body. You need to push for the best care so you can live it to the fullest. Don’t be afraid to stand up for your rights. I’m telling you, there are really good practitioners out there, you just need to look and ask the right questions to find them.

I wish you all well, and please don’t hesitate to reach out to me for help.

 

Until next time:

Be Healthy,

Be Happy,

Be YOU

“We cannot change the cards we are dealt, just how we play the game.”

-Randy Pausch

 

A Vision of Hope

A Vision of Hope

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Creating a vision board when times get toughLife is a journey. Embrace it.

It has ups and downs. Be prepared for it.

“Fall Down Seven Times, Stand Up Eight”-Chinese Proverb

You are not alone in these two certain facts but we need to be able to cope and heal and thrive when times get hard. That’s when your mental and emotional game need to prove their worth. Like strength training, or the runner training for a marathon, learning to cope with adversity is something you need to prepare for and train for. Training comes when you are in the midst of it and what mindset and attitude you take into your storm. If you prepare for it and acknowledge what could come your way then you are helping yourself by preparing your mindset to thrive through the hard times and even come out on top. I’m not saying you won’t get beat up, battered and bruised through some of these valleys, even trained runners can get cramps and blisters, right? The difference is when you understand that life works with highs and lows then you won’t feel like you’ve been punched in the gut when it happens and you’ll also have a healthier train of thought that assists you when you get knocked down.

And when you get knocked down you will be able to fight to stand again, and again, and again!

Will there be harder days? Days where you struggle to get back up? Of course, everyone has those moments, so we rely on the people in our circle to help, and we learn about ourselves, and make adjustments for the next moment.

I don’t live on those harder days, I don’t dwell on them, but I don’t ignore them and pretend they won’t happen or, even worse, pretend that I’ve never had any hard days. That would be fake, ingenuine and that is unhealthy for me.

I own every circumstance I’ve been through. I tell people about them so they don’t feel alone. My goal isn’t to be perfect, just to be transparent, in the hopes it will help someone overcome their own struggles.

Listen to today’s episode to see where my journey has gone the past week to see a struggle I’m in the midst of right now and what I’m doing to cope and come out on top again.

Call to Action

Make your own Vision Board. I have pictures of mine above and below. I discuss how to create one in this episode as well. Please feel free to reach out to me with questions or to share the vision board you created. I’d love to see them and hear how they have helped you.

Enjoy the journey-the highs and lows, because without the lows we cannot appreciate the highs.

Until next time;

Be Healthy

Be Happy

Be YOU!

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