Tag: phantom sensation

Alone in the Dark

Alone in the Dark

Getting Through the Tough Times

 

Oh the nights are so tough!

Have you been there?

Have you laid in the utter darkness and the quiet is deafening, the pain is unbearable, and you feel like you will ever get through this moment of phantom pain?

Yep, the reality is, we all go through it at some point or another, to varying degrees.

The last two nights, for me, have started great, I feel asleep and wasn’t feeling anything in the way of phantom pain. However, as soon as I shift, the sensations would start and the I couldn’t shut them off!

It’s almost unbearable. To sit in the dark, feeling like your body is screaming out loud, and no one else knows. My husband, laying right next to me, has no idea what I am feeling or that I am even going through this…. and he won’t know until morning.

Have you experienced this?

How about when you are out and about in a crowded store or venue, and your limb is on fire, or a sore within your socket is rubbing raw and stinging? And no one knows the pain you are feeling as you stand in line at the grocery store?

Such is the life of an amputee.

It comes and goes.

Most of the time there is no warning, it just comes at you.

 

 

So how do you deal with this, seeing as this is your life now?

First off, we all deal with pain differently, what works for one person won’t work for another.

As you experience these “episodes” you will learn what works for you (oh, and for added fun, what worked last time for you might not work the next). You can only prepare yourself for the mental battles ahead.

Communicate. Let the people around you know how you are feeling and what you need. They can’t see what’s happening within you and not everyday, all day is bad. Make sure you speak up and not assume they understand.

 

 

Build mental toughness. Use positivity and positive self-talk to get through hard times. You can redirect how your brain process what you are going through by the way you address it, internally and out loud.

 

 

Try not to fall back on medications every time you feel “out of sorts”. This goes for people dealing with the average phantom sensations/pains. I do not know what you’ve been going through and what you have been prescribed, so you need to do what you need to do but I will tell you that I will only use Tylenol or Advil once in a blue moon, when all else fails and when I can’t take anymore. There is no right way to handle an episode, but if you can stay away from prescription medication, and start leaning on your own devices to handle the mental situation, then do it. You’ll be stronger in the long run and your body will thank you.

 

 

These moments are truly times to develop your mental toughness. Sometimes we just need to hit them head on to become a stronger version of ourselves so we are ready for the next battle.

Finding time for myself to breathe and let go, helps me thru hard times

 

Don’t forget you were made to fight, and survive. You are a Warrior, you just need to unleash its within you and believe that you are strong enough to handle it.

Rise up, Warrior, and face your battles with inner strength!

You can do it, and you are not alone!

 

I pray you have a wonderful week ahead,

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

Remember: You are Beautiful, so just Be-YOU!
Picking Apart Phantom Pain

Picking Apart Phantom Pain

The Real Mental Side of Phantom Pain

 

Ok, let’s talk about Pain. Not just any pain, but the “real” phantom pain.

It comes on without warning.

It can destroy our mood, our productivity, and our confidence.

When it does happen, and for amputees we will all have the pleasure of experiencing it at some point on our journey, it’s enough to cause us to doubt we will ever be able to function again because we can’t see an end to it in sight. It’s the most disabling thing about being an amputee because we cannot control it.

Just two weekends ago I experienced one of my many episodes of phantom pain. I was fine when I woke on Sunday morning, enjoyed a few hours of “normalcy” then out of the blue, like lightning strikes, I was seized with a multitude of sharp, knife driving pains, in the bottom of my non-existent foot!

At first it was just startling and I was wracking my brain as to why it might be acting up. You see, for me, I know what things might cause me to have a flair up of pains from the activities of the day or night before, but not this day. Nothing I could have done would prepare me for this nor could I comprehend what had made these phantom pains come on.

As the day wore on these flashes of pain came more sudden and more often. They are so real feeling that my “foot” was getting sore from all the stabbing.

The prickles on the cactus and thorns on the tree remind me of the sharpness of my phantom pains

 

If that isn’t a mental attack on the brain I don’t know what is!

If you are an amputee you need to make sure you have a toolbox of info and memories to use as you navigate throu9gh each episode of phantom pains.

Join me today as I discuss what a toolbox is and how you create one.

Remember to be kind to yourself when these pains hit. They will try to crush you and break your spirit but you can and will get stronger with each experience. Just know that it’s ok to shut down for a while as your head tries to understand what’s happening to your body.

You are strong enough and you will make it through.

These episodes don’t last forever, and you will soar once again.

 

Be the warrior you were meant to be and rise up!

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

much love,

 

Inventors & Innovators: TheraV for Phantom Pains

Inventors & Innovators: TheraV for Phantom Pains

TheraV Founder and CEO Amira Radovic

We are kicking off Limb Loss/Limb Difference Awareness Month (LLLD) with the founder and CEO of TheraV.

Amira found her passion to help people by creating a non-invasive, non-pharmaceutical device that helps soften phantom pains through the use of vibration therapy.

Phantom pains are a very real, very painful, and often times disabling reaction after losing a limb. Most amputees will experience some level of phantom pain throughout the course of their lives. I would also say that all amputees feel some sort of phantom sensation (a feeling that the missing limb is still there and feels like pins and needles or a numbing sensation), I know I feel that everyday, all day, but I have become accustom to them.

Phantom pains, on the other hand, are intense. They come without warning, last days, sometimes weeks, and can feel like you are being shocked, set on fire, or like a knife stabbing your limb and cutting you open. I have had the distinct privilege (sarcastic voice) of experiencing those crazy, uncontrollable, and sleep depriving pains four times in my five years of being an amputee! I wouldn’t wish that on my worst enemy!

Amira’s father was a civil engineer and she had dreams of becoming an engineer, herself. She said she was always fascinated with the idea of using technology to enhance the human ability so she studied biomedical engineering at the University of Delaware. As a junior she had an opportunity to work at a prosthetic office. There she was introduced to the mental and physical pain that came with limb loss and the reality of phantom pain. She worked for years and talked to many amputees to come up with her TheraV for phantom pains, despite the lack of data and the stigma that surrounded phantom pains.

This week I had the honor of having her on my podcast to share where her idea came from, how it works, and where she’s taking it next. Like all great inventors, she is continuing to dive deeper into the mysterious world of phantom pains, what produces them, what helps, and how she can improve her already amazing product.

I am grateful for the time I got to speak with her and to hear her story, her passion, and what got her into the world of amputees and phantom pain.

An amazing thing about TheraV is that it can also be used by able-bodied individuals for things like restless leg syndrome or CRPS! Amazing, right?

If you are struggling with any of these issues, and would like to be rid of medications you might consider giving TheraV a shot.

Check out her website HERE.

 

With a world of big Pharma and large corporations it’s hard for the individual to break into the market. Please visit TheraV website, check them out on social media and give them a follow. By purchasing your own therapy for your home you not only have a safe way to manage pain you are helping Amira reach more people and giving them a chance to live without pain.

Thank you, Amira, for joining my podcast this week and for all you are doing for our amputee community.

Phantom pains are real pains.

Your research and devotion to reducing and eliminating them is so commendable! Thank you!

 

 

 

Remember to subscribe to my podcast so you don’t miss out on a month packed with inventors and innovators who are making a huge impact in our amputee community! also. p


lease share this link and podcast with someone who could benefit. My goal is always to help empower and educate those in need. Help me make an impact this month!

 

Thank you and have a blessed week.

As always,

Be Healthy,

Be Happy,

Be YOU!!!!

 

 

Much love,