Tag: phantom pain

Stressed Out!!

Stressed Out!!

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Dealing With Stress to Alleviate Phantom Pain

 

Ahhh, stress!

It wouldn’t be a day or a week without something triggering stress. A bid decision, a deadline, a fight with a friend, or even traffic!

As amputees we also face the uphill battles of healing, socket fittings, sores and painful steps, and phantom pains. Sometimes it feels like we never get a break. It feels like the weight of the world is placed on our shoulders and we can’t come up for air.

What we all need to learn is that every time we feel stressed out we have, in our own power, the ability to change the outcome. We control the narrative and we control how we come out on the other side.

“Mind over Matter” isn’t just a cliche it is truth.

 

 

When we hold in stressors we destroy our immune system, disrupt our nervous system, and create more problems than we need to.

We need to find ways to release negativity and stressors in our life. They will always be there, so instead of letting them take control and reeking havoc on your health you need to find ways to work through them and find a peace in your life.

When we learn to breathe, slow down, relax, and let go of the things we cannot control, then start feeding our mind with positive and affirming words we can begin to heal ourselves and give our bodies a chance to heal.

This week I challenge you.

 

 

Find time to slow down and breathe slowly and deeply through troubles and stressors you are feeling. Realize what you can control and what you cannot. If you can’t control something it’s time to let it go.

Use animals to help you find quiet time and centering. Horses especially are extremely intuitive and can read you from a mile away. If you bring in negative energy or a lot of “baggage” they won’t want to be close to you, and I don’t know about you, but I go see my horses for the kisses and love they pour into me. If I come preoccupied and upset, holding onto something negative, they sense it and walk away from me. I must clear my mind and center/ground myself if I want meaningful interaction with them.

 

Our closeness happens when I let my fears, anxiety, and stressors melt away and I focus on being present with my girl.

Words of affirmation and positivity. Speak them and repeat them as often as you need to about yourself until you have created a positive mindset. If you consistently beat yourself up over little things or become negative about your healing then this is where you need the most work. Our brain is a very powerful tool that believes what we speak into it. Speak only good and positive and watch your circumstances change for the better!

 

 

Finally, have grace upon grace for yourself. You won’t be perfect and you will stumble as you go through life, we all do, the challenge is to pick yourself back up, dust yourself off, and try again.

You’ve got this and I know you can do it. As you begin to make the changes needed to reduce stressors in your life you will start to notice phantom pains not being your focal point which then makes their grip on you much less.

Don’t give your pain power! Deny them and don’t continue to talk about them. The less time you pay attention to the pains you feel the less likely you are to be consumed and debilitated by them. You deserve better!

You can do this!

Be positive, breathe and focus on the positives! Watch your stress melt away and your phantom pains calm down.

Wishing you a week filled with health and happy thoughts.

And as always,

Be Healthy,

Be Happy,

Be YOU!!

Much love,

 

 

The Neuroscience of Phantom Pain

The Neuroscience of Phantom Pain

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The Latest Research Behind Phantom Pain

 

You may have heard the saying, “Mind over Matter” a few times in your life. I know I have, but did you know that it is more than just a saying? Did you know that our brains are capable of helping us cope when we struggle, especially when we deal with pain?

Today I learned how the brain can actually help us changing the way we think and perceive the pain we feel.

We have the ability to redirect and reconnect our brain waves to cope with phantom pain, or any pain, that we experience.

Today, I was honored to have on Dr Felipe Fregni, professor of Physical Medicine and Rehabilitation at Harvard Medical School and Professor of Epidemiology at Harvard TH Chan School of Public Health, as well as the Director of the laboratory of Neuromodulation at Spaulding Rehabilitation Hospital. He has been researching how the brain perceives pain and what is happening during bouts of pain to our brain.

Dr Felipe Fregni, Harvard Professor

 

The hope is that if we learn how our brain works and how it changes during moments of pain or discomfort then we can start to use that information to better equip the individual to work through pain and eliminate it without medication!

Wouldn’t that be something!

Studying the brain to find connections

 

Dr Fregni splits his time teaching at Harvard and working the lab at Spaulding Rehabilitation Hospital

 

Dr Fregni and his staff and students have been researching this topic for a while now and getting the data they need from participants, like myself, and they could use you too!

Their goal is to create a device that you can wear to assist in pain elimination through brain waves. They started this study with bringing people into their lab to trial what they had created. Now they are onto phase 2 and getting new participants to work from home with their device.

As an amputee I am excited to see research into phantom pain and how we deal with it and finding ways to cope without medication. Dr Fregni also mentioned that their research also branches into helping stroke victims and paralysis as well!

When we figure out how pain is communicated within our body we can then begin to find ways to lessen or even eliminate it.

One interesting thing we did touch on, which I stated at the very beginning was the mind over matter mentality. You may have heard me say that when I start hurting I tend to become active, I get moving and I find something to distract myself from thinking about the phantom pain. What Dr Fregni told me was that when we become active we start using our brain, we get neurons to fire and this makes for a healthy brain. So every time I’m struggling, my coping mechanism was to not think about the pain but to dive into something else. This is exactly what we should all be doing because we are creating connections in our brain, fire it up, and building it stronger. So mindset matters. Speaking to ourselves in positive ways matters. Even thinking about an activity we love to do creates connections in our brain for healing. What a powerful organ it is, indeed!

I want to thank Dr Fregni for coming on and guiding us through how our brain is capable of helping us heal and for building this community of researchers to help those of us who are struggling with pain and need a better way to handle it. I look forward to seeing how your research builds a stronger and healthier tomorrow for us! Thank you!

If you would like to take part in the clinical research happening right now, from the comfort of your own home you can reach out to Dr Fregni’s department with the link below.

I hope you all have a very blessed week.

And as always until next time,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

 

To see if you qualify to participate in their study please click HERE

Alone in the Dark

Alone in the Dark

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Getting Through the Tough Times

 

Oh the nights are so tough!

Have you been there?

Have you laid in the utter darkness and the quiet is deafening, the pain is unbearable, and you feel like you will ever get through this moment of phantom pain?

Yep, the reality is, we all go through it at some point or another, to varying degrees.

The last two nights, for me, have started great, I feel asleep and wasn’t feeling anything in the way of phantom pain. However, as soon as I shift, the sensations would start and the I couldn’t shut them off!

It’s almost unbearable. To sit in the dark, feeling like your body is screaming out loud, and no one else knows. My husband, laying right next to me, has no idea what I am feeling or that I am even going through this…. and he won’t know until morning.

Have you experienced this?

How about when you are out and about in a crowded store or venue, and your limb is on fire, or a sore within your socket is rubbing raw and stinging? And no one knows the pain you are feeling as you stand in line at the grocery store?

Such is the life of an amputee.

It comes and goes.

Most of the time there is no warning, it just comes at you.

 

 

So how do you deal with this, seeing as this is your life now?

First off, we all deal with pain differently, what works for one person won’t work for another.

As you experience these “episodes” you will learn what works for you (oh, and for added fun, what worked last time for you might not work the next). You can only prepare yourself for the mental battles ahead.

Communicate. Let the people around you know how you are feeling and what you need. They can’t see what’s happening within you and not everyday, all day is bad. Make sure you speak up and not assume they understand.

 

 

Build mental toughness. Use positivity and positive self-talk to get through hard times. You can redirect how your brain process what you are going through by the way you address it, internally and out loud.

 

 

Try not to fall back on medications every time you feel “out of sorts”. This goes for people dealing with the average phantom sensations/pains. I do not know what you’ve been going through and what you have been prescribed, so you need to do what you need to do but I will tell you that I will only use Tylenol or Advil once in a blue moon, when all else fails and when I can’t take anymore. There is no right way to handle an episode, but if you can stay away from prescription medication, and start leaning on your own devices to handle the mental situation, then do it. You’ll be stronger in the long run and your body will thank you.

 

 

These moments are truly times to develop your mental toughness. Sometimes we just need to hit them head on to become a stronger version of ourselves so we are ready for the next battle.

Finding time for myself to breathe and let go, helps me thru hard times

 

Don’t forget you were made to fight, and survive. You are a Warrior, you just need to unleash its within you and believe that you are strong enough to handle it.

Rise up, Warrior, and face your battles with inner strength!

You can do it, and you are not alone!

 

I pray you have a wonderful week ahead,

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

Remember: You are Beautiful, so just Be-YOU!
Traveling Amputee

Traveling Amputee

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Risks and Rewards, Tips and Tricks

Traveled to the “Happiest Place on Earth” as an amputee

 

Traveling is exhausting for anyone. Spending a day in an amusement park can take the most energetic person and turn them into a melt down of epic proportions. Add in the heat and humidity of a Florida summer AND thousands of people and it becomes an challenge that the ordinary person struggles to finish.

Now add in someone missing a leg, dealing with sweating in a prosthesis that wants to shift on you and chafe your leg, sprinkle in the dodging of people who only seem to be concerned with their own schedule, and lines that you stand in, totaling hours, throughout the day and you have one of the biggest opportunities to rise to the occasion and show what you’re made of.

 

The amount of people is amazing!

 

Traveling is fun.

The Jungle Cruise during the final show at Disney World

 

Tron ride was EPIC , and probably to the only ride that me fitting into was questionable, but absolutely doable for even me, an above knee amputee.

 

Traveling is challenging.

Overall, I decided to amputate so I could GET BACK to the life I was living before my knee injury, and that is exactly why I go thru all of those obstacles and challenges.

I WANT TO LIVE!!! Fully and completely.

Golfing is fun but challenging….I love a challenge!

 

Enjoying the rides, like Pirates, with my family!

 

That was an amazing day! Almost 11 miles and one exhausted momma! But look at that view (and ALL THOSE PEOPLE)!

 

What kind of life do you want?

What can you handle?

I have experienced moving around on trips and amusement parks as an able-bodied person, and injured momma in a wheelchair, and as an amputee. This week I give you some ideas of what to expect, what to pack, and how to deal with the ins and outs of highly populated places such as Disney World and Universal.

 

Get ready to pack your bags and begin your journey!

Enjoy the journey. Be present. Live your life!

You can travel, too, just be prepared (oh, and make sure you stretch!).

You may be an amputee but you can still enjoy taking trips.

 

 

This may seem irrelevant to the topic of travel but I assure you it is very relevant: STRETCH!

Make stretching a part of your day, everyday!

I didn’t and my back was screaming at me the day after our 1st park. The way I had to walk, in the heat, around all those people, looking out for myself, and my safety, made my body move in non-natural ways that over the miles and hours of being on my feet really exhausted my back and hips. I had 2 days and nights of phantom pains and back pains and all I could do was push through it and continue with our plans, trying to ignore the pain. On one of the final nights back in our resort I decided to sit on the ground and give my good leg a nice stretch only to realize how very tight I was.

Don’t wait til you have issues like I did. I am now starting to stretch every morning and evening to help my flexibility and my mobility.

Your Call to Action this week is to do the same.

Implement a stretching routine for yourself so you keep flexible. Even 5 minutes a day is better than nothing, so get started, TODAY!!

 

Also, listen into my IG Live chat Un(Limb)ited Conversation this week as Jackie, DPT and I discuss stretches for post-amputation mobility. You can find it on Instagram @BAWarrior360. Every other Wednesday at 4:00 pm MST I hope you join us!

 

OK, Warriors, rise up, and get traveling!

Life is a journey, not a destination.

Have a beautiful week

and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

Not all who wander are lost.

 

 

It’s Not Just You

It’s Not Just You

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Normalizing Phantom Pain

 

No matter what you think, every amputee has issues at some point or another.

No one is exempt from phantom pain or phantom sensations even though it appears as they do.

Most successful people, meaning those who appear to be living their best life after amputation, do not sit around thinking about phantom pain or wallowing in it, they keep moving, they keep pushing through it, until they make it through…for at least that episode.

I was once told that talking about it and harping about the phantom pain only gave it power over me, so I try very hard not to talk about it.

Moving through an episode, that is what I call them because they come on quick, last for a brief moment in time and then disappear as quickly as they came on…only to be repeated again in the future. But moving through an episode can be a lonely place and often times hard. Making a decision to keep doing life despite it and not letting it get the best of you takes mental fortitude. Some days I feel like I have it…other days, not so much.

This week is one of those weeks. Monday I struggled all day. Tuesday I forced myself to the gym and grocery shopping, only to feel exhausted by the end of it all and only to find it tough to get sleep Tuesday night… BUT, I made life happen for me, not to me!

I chose to get active and I felt better that I had, mentally, even though physically I was still struggling.

You have to choose your battles. Know when to push through  and know when your body and mind need a break.

Just don’t give up and never, for a second, think you are the only one that is struggling. You are NOT.

Be strong, dear Warrior! You will get through it!

 

I hope you have a blessed week and one filled with positive momentum forward!

U

ntil next week and as always,

Be Healthy,

Be Happy,

Be YOU!!

much love,


Picking Apart Phantom Pain

Picking Apart Phantom Pain

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The Real Mental Side of Phantom Pain

 

Ok, let’s talk about Pain. Not just any pain, but the “real” phantom pain.

It comes on without warning.

It can destroy our mood, our productivity, and our confidence.

When it does happen, and for amputees we will all have the pleasure of experiencing it at some point on our journey, it’s enough to cause us to doubt we will ever be able to function again because we can’t see an end to it in sight. It’s the most disabling thing about being an amputee because we cannot control it.

Just two weekends ago I experienced one of my many episodes of phantom pain. I was fine when I woke on Sunday morning, enjoyed a few hours of “normalcy” then out of the blue, like lightning strikes, I was seized with a multitude of sharp, knife driving pains, in the bottom of my non-existent foot!

At first it was just startling and I was wracking my brain as to why it might be acting up. You see, for me, I know what things might cause me to have a flair up of pains from the activities of the day or night before, but not this day. Nothing I could have done would prepare me for this nor could I comprehend what had made these phantom pains come on.

As the day wore on these flashes of pain came more sudden and more often. They are so real feeling that my “foot” was getting sore from all the stabbing.

The prickles on the cactus and thorns on the tree remind me of the sharpness of my phantom pains

 

If that isn’t a mental attack on the brain I don’t know what is!

If you are an amputee you need to make sure you have a toolbox of info and memories to use as you navigate throu9gh each episode of phantom pains.

Join me today as I discuss what a toolbox is and how you create one.

Remember to be kind to yourself when these pains hit. They will try to crush you and break your spirit but you can and will get stronger with each experience. Just know that it’s ok to shut down for a while as your head tries to understand what’s happening to your body.

You are strong enough and you will make it through.

These episodes don’t last forever, and you will soar once again.

 

Be the warrior you were meant to be and rise up!

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

much love,

 

Inventors & Innovators: TheraV for Phantom Pains

Inventors & Innovators: TheraV for Phantom Pains

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TheraV Founder and CEO Amira Radovic

We are kicking off Limb Loss/Limb Difference Awareness Month (LLLD) with the founder and CEO of TheraV.

Amira found her passion to help people by creating a non-invasive, non-pharmaceutical device that helps soften phantom pains through the use of vibration therapy.

Phantom pains are a very real, very painful, and often times disabling reaction after losing a limb. Most amputees will experience some level of phantom pain throughout the course of their lives. I would also say that all amputees feel some sort of phantom sensation (a feeling that the missing limb is still there and feels like pins and needles or a numbing sensation), I know I feel that everyday, all day, but I have become accustom to them.

Phantom pains, on the other hand, are intense. They come without warning, last days, sometimes weeks, and can feel like you are being shocked, set on fire, or like a knife stabbing your limb and cutting you open. I have had the distinct privilege (sarcastic voice) of experiencing those crazy, uncontrollable, and sleep depriving pains four times in my five years of being an amputee! I wouldn’t wish that on my worst enemy!

Amira’s father was a civil engineer and she had dreams of becoming an engineer, herself. She said she was always fascinated with the idea of using technology to enhance the human ability so she studied biomedical engineering at the University of Delaware. As a junior she had an opportunity to work at a prosthetic office. There she was introduced to the mental and physical pain that came with limb loss and the reality of phantom pain. She worked for years and talked to many amputees to come up with her TheraV for phantom pains, despite the lack of data and the stigma that surrounded phantom pains.

This week I had the honor of having her on my podcast to share where her idea came from, how it works, and where she’s taking it next. Like all great inventors, she is continuing to dive deeper into the mysterious world of phantom pains, what produces them, what helps, and how she can improve her already amazing product.

I am grateful for the time I got to speak with her and to hear her story, her passion, and what got her into the world of amputees and phantom pain.

An amazing thing about TheraV is that it can also be used by able-bodied individuals for things like restless leg syndrome or CRPS! Amazing, right?

If you are struggling with any of these issues, and would like to be rid of medications you might consider giving TheraV a shot.

Check out her website HERE.

 

With a world of big Pharma and large corporations it’s hard for the individual to break into the market. Please visit TheraV website, check them out on social media and give them a follow. By purchasing your own therapy for your home you not only have a safe way to manage pain you are helping Amira reach more people and giving them a chance to live without pain.

Thank you, Amira, for joining my podcast this week and for all you are doing for our amputee community.

Phantom pains are real pains.

Your research and devotion to reducing and eliminating them is so commendable! Thank you!

 

 

 

Remember to subscribe to my podcast so you don’t miss out on a month packed with inventors and innovators who are making a huge impact in our amputee community! also. p

lease share this link and podcast with someone who could benefit. My goal is always to help empower and educate those in need. Help me make an impact this month!

 

Thank you and have a blessed week.

As always,

Be Healthy,

Be Happy,

Be YOU!!!!

 

 

Much love,

 

 

 

 

The Elephant in the Room

The Elephant in the Room

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The Reality of Phantom Pain

 

 

It’s real!

It does exist, and it can come out of nowhere and attack you when you least expect it. Phantom pain is an equal opportunity offender with no regard for who it targets.

Phantom sensation is similar but constant. It’s not about the excruciating pain it inflicts, like phantom PAIN, as much as it’s the never ending, always present tingling, buzzing, and throbbing of the missing body part, (in my case, my lower left leg and foot).

No matter what’s going on, how active I am or am not, or even the weather, phantom sensations are always burning in my foot. At first I didn’t think I was going to be able to take it but I can tell you two certainities:

  1. After suffering phantom PAIN, I will gladly take the sensations!
  2. I find that these sensations are a gift in that they help me to find my footing as I walk because my foot feels like it’s there at all times.

 

Just a reminder, all journeys are NOT the same. my pain tolerance might be higher than yours or your phantom pain might last longer and be more intense than mine, we are all different and how we handle them is also going to be different.

Some people choose to medicate to help with the pain, others use mirror therapy or a neurotransmitter.

Others may choose to use tap therapy, or heat/cold therapy to lessen the intensity.

 

I have a neurotransmitter implanted in my back, but it created more pain than it stopped so I have turned mine off, for now.

I also have chosen to stay far away from medication so I know the true feelings of my pain and learn to deal with them naturally as they come. I spent too many years on drugs to help with all the surgeries and couldn’t wait to get off of them, permanently!

 

Like I said, everyone is different. what works for me may or may not work for you. Only you can decide how to attack these phantom issues. It’s always good to talk with other amputees to see how they are dealing with their pain and what works for them but remember what works for them may not work for you.

I say this so you don’t get discouraged if it doesn’t work. You will need to keep searching and trying out new ways to handle your pain based on you. And sometimes something will work one time but not the next time it occurs. Talk about frustrating!!

Phantom pain is for real! It’s vicious, distracting, and debilitating! It can and will try to consume you, and break you, just remember you are strong! You are a warrior!

 

 

This is a tough one.

You will need to get creative and dig down deep!

This is where TRUE warriors are made.

Don’t sit and dwell on the pain, it will consume you and make it harder to bounce back from it.

Find somethings that work for you (I use distraction when I am in a bad pain place-walking, driving in my car, playing music, watching a movie, reading, moving some more, getting to the gym, etc) This keeps my mind active, and distracted. Don’t sit around thinking about it, it’ll only amplify the pain, trust me, I know!

Once you find things you are capable of doing, use these techniques to help you on the rough days. You will find that you will handle the phantom pains better if you have resources ready to be utilized.

And don’t forget to communicate with your family, friends, your support system. Even best laid plans get wrecked, and if you are screaming on the inside, more than likely you’ll start screaming on the outside and the people who you love the most will be casualties to it. Let them know that you are struggling. Phantom pain is invisible to everyone outside of us, they can’t know what we are going through so we must be open and honest, for the sake of relationships.

You’ve got this and you are NOT alone.

Rise up, Precious Warrior, Rise up! Fight your battles with confidence and with the assurance that this too shall pass.

 

As always and until next week,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

Angie

 

 

 

 

 

 

Breathing Through the Pain

Breathing Through the Pain

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Night time visit with my girl
Do you struggle with pain?
Is stress always knocking at your door and trying take over?
Maybe now is the time to try something that can help you through the pain…. How about some breathing?🤔
I spend a lot of time around my horse.
Every morning to be exact.
She brings me to a peaceful place, a place I can forget my problems, schedules, to-do lists, and phantom pains.
I find quiet and calm around her and work on, believe it or not, my breathing!
Did you know that deep breathing can:
*decrease stress and increase calm
*relieve pain
*improve immunity
*increase energy
*lower blood pressure
*improves digestion
Wow!!! That’s a lot of benefits!
We should all be working on our breathing and relaxing, and less time worrying and being stressed out!
Challenge yourself today to build in a breathing routine to your daily schedule and reap the benefits….
This week challenge yourself to spend some quality time…. with yourself.
Choose a quiet place, free of distractions (and your phone).
Find a comfortable position and begin to relax your body and take slow, deep breathes in, filling up your lungs. Then slowly release your breathe out through your nose.
Continue to feel your breathe fill your lungs and find peace and calm in this moment.
Try to do at least 5 minutes today, gradually increasing your breathing time, each day going forward.
Take note of how you feel the rest of the day and as the week goes on.
Don’t stop there! Find the benefits of deep breathing each night before bed and the quality of your sleep…
I dare you!!
I hope you find calm that overcomes your pain, and a peace that allows you to live your best life!
As always,
Be Healthy,
Be Happy,
Be YOU!!!
Much love,
Angie and Sakari🐴

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