Tag: phantom pain

Traveling Amputee

Traveling Amputee

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Risks and Rewards, Tips and Tricks

Traveled to the “Happiest Place on Earth” as an amputee

 

Traveling is exhausting for anyone. Spending a day in an amusement park can take the most energetic person and turn them into a melt down of epic proportions. Add in the heat and humidity of a Florida summer AND thousands of people and it becomes an challenge that the ordinary person struggles to finish.

Now add in someone missing a leg, dealing with sweating in a prosthesis that wants to shift on you and chafe your leg, sprinkle in the dodging of people who only seem to be concerned with their own schedule, and lines that you stand in, totaling hours, throughout the day and you have one of the biggest opportunities to rise to the occasion and show what you’re made of.

 

The amount of people is amazing!

 

Traveling is fun.

The Jungle Cruise during the final show at Disney World

 

Tron ride was EPIC , and probably to the only ride that me fitting into was questionable, but absolutely doable for even me, an above knee amputee.

 

Traveling is challenging.

Overall, I decided to amputate so I could GET BACK to the life I was living before my knee injury, and that is exactly why I go thru all of those obstacles and challenges.

I WANT TO LIVE!!! Fully and completely.

Golfing is fun but challenging….I love a challenge!

 

Enjoying the rides, like Pirates, with my family!

 

That was an amazing day! Almost 11 miles and one exhausted momma! But look at that view (and ALL THOSE PEOPLE)!

 

What kind of life do you want?

What can you handle?

I have experienced moving around on trips and amusement parks as an able-bodied person, and injured momma in a wheelchair, and as an amputee. This week I give you some ideas of what to expect, what to pack, and how to deal with the ins and outs of highly populated places such as Disney World and Universal.

 

Get ready to pack your bags and begin your journey!

Enjoy the journey. Be present. Live your life!

You can travel, too, just be prepared (oh, and make sure you stretch!).

You may be an amputee but you can still enjoy taking trips.

 

 

This may seem irrelevant to the topic of travel but I assure you it is very relevant: STRETCH!

Make stretching a part of your day, everyday!

I didn’t and my back was screaming at me the day after our 1st park. The way I had to walk, in the heat, around all those people, looking out for myself, and my safety, made my body move in non-natural ways that over the miles and hours of being on my feet really exhausted my back and hips. I had 2 days and nights of phantom pains and back pains and all I could do was push through it and continue with our plans, trying to ignore the pain. On one of the final nights back in our resort I decided to sit on the ground and give my good leg a nice stretch only to realize how very tight I was.

Don’t wait til you have issues like I did. I am now starting to stretch every morning and evening to help my flexibility and my mobility.

Your Call to Action this week is to do the same.

Implement a stretching routine for yourself so you keep flexible. Even 5 minutes a day is better than nothing, so get started, TODAY!!

 

Also, listen into my IG Live chat Un(Limb)ited Conversation this week as Jackie, DPT and I discuss stretches for post-amputation mobility. You can find it on Instagram @BAWarrior360. Every other Wednesday at 4:00 pm MST I hope you join us!

 

OK, Warriors, rise up, and get traveling!

Life is a journey, not a destination.

Have a beautiful week

and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

Not all who wander are lost.

 

 

It’s Not Just You

It’s Not Just You

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Normalizing Phantom Pain

 

No matter what you think, every amputee has issues at some point or another.

No one is exempt from phantom pain or phantom sensations even though it appears as they do.

Most successful people, meaning those who appear to be living their best life after amputation, do not sit around thinking about phantom pain or wallowing in it, they keep moving, they keep pushing through it, until they make it through…for at least that episode.

I was once told that talking about it and harping about the phantom pain only gave it power over me, so I try very hard not to talk about it.

Moving through an episode, that is what I call them because they come on quick, last for a brief moment in time and then disappear as quickly as they came on…only to be repeated again in the future. But moving through an episode can be a lonely place and often times hard. Making a decision to keep doing life despite it and not letting it get the best of you takes mental fortitude. Some days I feel like I have it…other days, not so much.

This week is one of those weeks. Monday I struggled all day. Tuesday I forced myself to the gym and grocery shopping, only to feel exhausted by the end of it all and only to find it tough to get sleep Tuesday night… BUT, I made life happen for me, not to me!

I chose to get active and I felt better that I had, mentally, even though physically I was still struggling.

You have to choose your battles. Know when to push through  and know when your body and mind need a break.

Just don’t give up and never, for a second, think you are the only one that is struggling. You are NOT.

Be strong, dear Warrior! You will get through it!

 

I hope you have a blessed week and one filled with positive momentum forward!

U

ntil next week and as always,

Be Healthy,

Be Happy,

Be YOU!!

much love,


Picking Apart Phantom Pain

Picking Apart Phantom Pain

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The Real Mental Side of Phantom Pain

 

Ok, let’s talk about Pain. Not just any pain, but the “real” phantom pain.

It comes on without warning.

It can destroy our mood, our productivity, and our confidence.

When it does happen, and for amputees we will all have the pleasure of experiencing it at some point on our journey, it’s enough to cause us to doubt we will ever be able to function again because we can’t see an end to it in sight. It’s the most disabling thing about being an amputee because we cannot control it.

Just two weekends ago I experienced one of my many episodes of phantom pain. I was fine when I woke on Sunday morning, enjoyed a few hours of “normalcy” then out of the blue, like lightning strikes, I was seized with a multitude of sharp, knife driving pains, in the bottom of my non-existent foot!

At first it was just startling and I was wracking my brain as to why it might be acting up. You see, for me, I know what things might cause me to have a flair up of pains from the activities of the day or night before, but not this day. Nothing I could have done would prepare me for this nor could I comprehend what had made these phantom pains come on.

As the day wore on these flashes of pain came more sudden and more often. They are so real feeling that my “foot” was getting sore from all the stabbing.

The prickles on the cactus and thorns on the tree remind me of the sharpness of my phantom pains

 

If that isn’t a mental attack on the brain I don’t know what is!

If you are an amputee you need to make sure you have a toolbox of info and memories to use as you navigate throu9gh each episode of phantom pains.

Join me today as I discuss what a toolbox is and how you create one.

Remember to be kind to yourself when these pains hit. They will try to crush you and break your spirit but you can and will get stronger with each experience. Just know that it’s ok to shut down for a while as your head tries to understand what’s happening to your body.

You are strong enough and you will make it through.

These episodes don’t last forever, and you will soar once again.

 

Be the warrior you were meant to be and rise up!

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

much love,

 

Inventors & Innovators: TheraV for Phantom Pains

Inventors & Innovators: TheraV for Phantom Pains

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TheraV Founder and CEO Amira Radovic

We are kicking off Limb Loss/Limb Difference Awareness Month (LLLD) with the founder and CEO of TheraV.

Amira found her passion to help people by creating a non-invasive, non-pharmaceutical device that helps soften phantom pains through the use of vibration therapy.

Phantom pains are a very real, very painful, and often times disabling reaction after losing a limb. Most amputees will experience some level of phantom pain throughout the course of their lives. I would also say that all amputees feel some sort of phantom sensation (a feeling that the missing limb is still there and feels like pins and needles or a numbing sensation), I know I feel that everyday, all day, but I have become accustom to them.

Phantom pains, on the other hand, are intense. They come without warning, last days, sometimes weeks, and can feel like you are being shocked, set on fire, or like a knife stabbing your limb and cutting you open. I have had the distinct privilege (sarcastic voice) of experiencing those crazy, uncontrollable, and sleep depriving pains four times in my five years of being an amputee! I wouldn’t wish that on my worst enemy!

Amira’s father was a civil engineer and she had dreams of becoming an engineer, herself. She said she was always fascinated with the idea of using technology to enhance the human ability so she studied biomedical engineering at the University of Delaware. As a junior she had an opportunity to work at a prosthetic office. There she was introduced to the mental and physical pain that came with limb loss and the reality of phantom pain. She worked for years and talked to many amputees to come up with her TheraV for phantom pains, despite the lack of data and the stigma that surrounded phantom pains.

This week I had the honor of having her on my podcast to share where her idea came from, how it works, and where she’s taking it next. Like all great inventors, she is continuing to dive deeper into the mysterious world of phantom pains, what produces them, what helps, and how she can improve her already amazing product.

I am grateful for the time I got to speak with her and to hear her story, her passion, and what got her into the world of amputees and phantom pain.

An amazing thing about TheraV is that it can also be used by able-bodied individuals for things like restless leg syndrome or CRPS! Amazing, right?

If you are struggling with any of these issues, and would like to be rid of medications you might consider giving TheraV a shot.

Check out her website HERE.

 

With a world of big Pharma and large corporations it’s hard for the individual to break into the market. Please visit TheraV website, check them out on social media and give them a follow. By purchasing your own therapy for your home you not only have a safe way to manage pain you are helping Amira reach more people and giving them a chance to live without pain.

Thank you, Amira, for joining my podcast this week and for all you are doing for our amputee community.

Phantom pains are real pains.

Your research and devotion to reducing and eliminating them is so commendable! Thank you!

 

 

 

Remember to subscribe to my podcast so you don’t miss out on a month packed with inventors and innovators who are making a huge impact in our amputee community! also. p

lease share this link and podcast with someone who could benefit. My goal is always to help empower and educate those in need. Help me make an impact this month!

 

Thank you and have a blessed week.

As always,

Be Healthy,

Be Happy,

Be YOU!!!!

 

 

Much love,

 

 

 

 

The Elephant in the Room

The Elephant in the Room

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The Reality of Phantom Pain

 

 

It’s real!

It does exist, and it can come out of nowhere and attack you when you least expect it. Phantom pain is an equal opportunity offender with no regard for who it targets.

Phantom sensation is similar but constant. It’s not about the excruciating pain it inflicts, like phantom PAIN, as much as it’s the never ending, always present tingling, buzzing, and throbbing of the missing body part, (in my case, my lower left leg and foot).

No matter what’s going on, how active I am or am not, or even the weather, phantom sensations are always burning in my foot. At first I didn’t think I was going to be able to take it but I can tell you two certainities:

  1. After suffering phantom PAIN, I will gladly take the sensations!
  2. I find that these sensations are a gift in that they help me to find my footing as I walk because my foot feels like it’s there at all times.

 

Just a reminder, all journeys are NOT the same. my pain tolerance might be higher than yours or your phantom pain might last longer and be more intense than mine, we are all different and how we handle them is also going to be different.

Some people choose to medicate to help with the pain, others use mirror therapy or a neurotransmitter.

Others may choose to use tap therapy, or heat/cold therapy to lessen the intensity.

 

I have a neurotransmitter implanted in my back, but it created more pain than it stopped so I have turned mine off, for now.

I also have chosen to stay far away from medication so I know the true feelings of my pain and learn to deal with them naturally as they come. I spent too many years on drugs to help with all the surgeries and couldn’t wait to get off of them, permanently!

 

Like I said, everyone is different. what works for me may or may not work for you. Only you can decide how to attack these phantom issues. It’s always good to talk with other amputees to see how they are dealing with their pain and what works for them but remember what works for them may not work for you.

I say this so you don’t get discouraged if it doesn’t work. You will need to keep searching and trying out new ways to handle your pain based on you. And sometimes something will work one time but not the next time it occurs. Talk about frustrating!!

Phantom pain is for real! It’s vicious, distracting, and debilitating! It can and will try to consume you, and break you, just remember you are strong! You are a warrior!

 

 

This is a tough one.

You will need to get creative and dig down deep!

This is where TRUE warriors are made.

Don’t sit and dwell on the pain, it will consume you and make it harder to bounce back from it.

Find somethings that work for you (I use distraction when I am in a bad pain place-walking, driving in my car, playing music, watching a movie, reading, moving some more, getting to the gym, etc) This keeps my mind active, and distracted. Don’t sit around thinking about it, it’ll only amplify the pain, trust me, I know!

Once you find things you are capable of doing, use these techniques to help you on the rough days. You will find that you will handle the phantom pains better if you have resources ready to be utilized.

And don’t forget to communicate with your family, friends, your support system. Even best laid plans get wrecked, and if you are screaming on the inside, more than likely you’ll start screaming on the outside and the people who you love the most will be casualties to it. Let them know that you are struggling. Phantom pain is invisible to everyone outside of us, they can’t know what we are going through so we must be open and honest, for the sake of relationships.

You’ve got this and you are NOT alone.

Rise up, Precious Warrior, Rise up! Fight your battles with confidence and with the assurance that this too shall pass.

 

As always and until next week,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

Angie

 

 

 

 

 

 

Breathing Through the Pain

Breathing Through the Pain

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Night time visit with my girl
Do you struggle with pain?
Is stress always knocking at your door and trying take over?
Maybe now is the time to try something that can help you through the pain…. How about some breathing?🤔
I spend a lot of time around my horse.
Every morning to be exact.
She brings me to a peaceful place, a place I can forget my problems, schedules, to-do lists, and phantom pains.
I find quiet and calm around her and work on, believe it or not, my breathing!
Did you know that deep breathing can:
*decrease stress and increase calm
*relieve pain
*improve immunity
*increase energy
*lower blood pressure
*improves digestion
Wow!!! That’s a lot of benefits!
We should all be working on our breathing and relaxing, and less time worrying and being stressed out!
Challenge yourself today to build in a breathing routine to your daily schedule and reap the benefits….
This week challenge yourself to spend some quality time…. with yourself.
Choose a quiet place, free of distractions (and your phone).
Find a comfortable position and begin to relax your body and take slow, deep breathes in, filling up your lungs. Then slowly release your breathe out through your nose.
Continue to feel your breathe fill your lungs and find peace and calm in this moment.
Try to do at least 5 minutes today, gradually increasing your breathing time, each day going forward.
Take note of how you feel the rest of the day and as the week goes on.
Don’t stop there! Find the benefits of deep breathing each night before bed and the quality of your sleep…
I dare you!!
I hope you find calm that overcomes your pain, and a peace that allows you to live your best life!
As always,
Be Healthy,
Be Happy,
Be YOU!!!
Much love,
Angie and Sakari🐴
The Nerve of Some People!

The Nerve of Some People!

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Extreme Nerve Pain aka Phantom Pain

 

Oh, it’s real alright!! I experienced 3 days and nights of non-stop STABBING pain.

 

It’s MASSIVE pain, no way to control it, mentally exhausting and disabling pain like no other!  It attacks when you least expect it and can make itself at home for days, or weeks on end. I am not talking about what I feel everyday-yes, I said “everyday”. Everyday, I feel my missing foot. I feel pins and needles all day long and into the night, until my body shuts down and I fall asleep. The pain I felt THIS week, for several days, was 100x worse, relentless, and brought my to my knees and into tears- which doesn’t happen often.

I wouldn’t wish this on my worst enemy. And the unknown of how long it will last is just as bad as the pain itself. Listen in as I talk about my recent journey through ANOTHER “episode” of shooting phantom pain; what it feels like, why I think it happened, and how to push through it!

 

Three things you can do to make sure you get through the struggle:

  1. Choose to keep moving, even when it’s hard, MOVE! Do what you can and stay active as much as possible.
  2. Distract! Distract! Distract!! Everything we go through flows like a river. Whenever things get hard do you look back a realize you made it through to better times? Likewise, when things are going great, then all of a sudden you are dealing with something tough, it just happens. That’s life. The quicker you realize that, the easier it is to know that there will be a light at the end of the tunnel.
  3. Positive self-talk. It’s ok to feel defeated and frustrated when you’re going through something, but it will be easier to swallow if you create a positive environment, with positive words, and an attitude that creates good feelings. It’s hard, and at times I find myself beating me up inside. Don’t go there, and if you do, get out of that mindset quickly.

You will have these moments, how you handle them is up to you. Strive to build a positive aura around you, stretch and flex those mental muscles and soon you’ll find that you can handle it, and maybe, just maybe, come out a better, stronger, happier YOU!

As always,

Be Healthy,

Be Happy,

Be YOU!!

 

much love,

Angie

 

 

Get a Grip

Get a Grip

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Dealing with Phantom Pains, Part 2

As a continuation to last week’s podcast on Phantom Pain, and how my faith has helped me through, I thought I would add in other ways you can try to deal with these inevitable pains we go through, as amputees.

If you experience phantom pains you know how unpleasant and downright horrible they can be. They can mess with your head, bring you down, and keep you from sleep.  They don’t discriminate, and if you’ve never had them, be forewarned, you could still have them rear up even years down the road.  My prosthetist, who is also an above knee amputee, has been an amputee for 20+ years, and just last week experienced them for the first time, and the full blown kind.  It amazes me that no one is safe from experiencing them, in one form or another, and at any given time in their amputee life.

Which brings me to the point I tried to make in the last podcast, and will, again, reiterate it here:

You need to learn to deal with these pains, realizing that they come and go, no one is safe from them, and your mindset about them will ultimately determine how you push through (or not), to rise up and continue on with your life.  They may knock you down, but they don’t have to destroy you.

In this podcast I discuss many different ways you can help yourself deal with them, but ultimately, I believe you need to become really strong, mentally and emotionally, to win each battle, when they come.

 

Listen in to this week’s podcast and see what might be able help you the next time phantom pains strike.  And they will….. will you be ready to take on the battle?

 

 

Do some research. Understand your options. Research neurotransmitters.  Understand that what works for one person may not work for you so be open to that possibility and don’t be afraid to keep trying different options.  And remember, the more you understand that phantom pains are a part of your journey, the more capable you will be with overcoming them, and not being defeated by them, when they do arise.

Put on your big girl boots and push through!
I’m a “Mind over Matter” kinda girl.

 

I believe being outside and staying active helps me push through bouts of phantom pain. How about you?

 

Remember, you are not alone. and you CAN and WILL make it through it.

 

As always:

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

Angie

 

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