Tag: pain

Facing Setbacks

Facing Setbacks

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Setbacks to Comebacks

 

Life is full of ups and downs and as an amputee we must realize that we will face many more challenges, past the amputation itself, years later.

For one, our sound side becomes extremely important to us. Taking care of our good joints while still trying to live a full and healthy life yet protecting what we have left becomes a balancing act and can be very scaring when things go wrong.

We also struggle with pain in our residual limb when our socket doesn’t fit correctly or a neuroma decides to show up.

My current situation is a strained lower back because I work so hard with balance and bending over to pick things off the floor, all on my sound leg which puts undo pressure and tension on my lower back on the opposite side. That is my current setback, and it is not only painful, it’s frustrating!

I have 2 weeks until I take off for Boston to go through extensive reconstructive surgery on my residual limb, plus a unique procedure created by MIT and my doctor. My goal 2 weeks ago was to eat well, cut our alcohol and get back to the gym daily to get in the best shape for this surgery. Literally the first week into that plan I tweaked my back! Now I am trying to be patient and waiting for the slow healing process my back is going through.

 

1 year after my amputation I found a neuroma in my hamstring and had to go thru another surgery!
Stayed positive but at times it was hard, starting over with healing is hard!

 

Not being able to wear the prosthesis while healing can break you but setting goals and looking to the future helps. Stay positive!

 

What I have learned through all the setbacks since becoming an amputee:

-This too shall pass

-Stay positive

-Set goals

-Use this time to do what you CAN do at this moment.

-Setbacks tend to be moments that are setting you up for a comeback. Be ready!

 

Look to the future. Dream! Stay focused on your goals and objectives!

 

If you are going through a setback now, don’t get discouraged just keep focused on the positive and the future.

It is not the end, it’s just a moment for your mind and body to be prepared for something more.

 

 

This week I challenge you to be still and focus your attention to what you CAN do and positive thoughts during a setback or a rough patch.

Try these steps out:

-Realize that this moment won’t last forever.

-Use this time to stop and listen to your body and realize what it needs to heal, usually it is telling you to give it a break and let it heal.

-Set goals for yourself to do once your setback fades away.

-Visualize yourself being successful and accomplishing your goals. Visualize positivity!

-Remember your “Why”. What are you doing this all for? Yourself? Your mental health? Your family? Your job? What is it that drives you forward? Your “Why’s” should be clear because they are what will help you in hard times and when you feel like you are all alone. The Why’s are your motivation to keep moving forward.

Of all the setbacks I have endured since becoming an amputee, one thing has been certain, the hard times end and the comebacks win!

You are a warrior! Believe it! See yourself as the strong individual I know you are.

Have an amazing week ahead.

Get after this Call to Action and reach out to me if you have questions or want to give me an update on how you’re doing.

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

Stressed Out!!

Stressed Out!!

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Dealing With Stress to Alleviate Phantom Pain

 

Ahhh, stress!

It wouldn’t be a day or a week without something triggering stress. A bid decision, a deadline, a fight with a friend, or even traffic!

As amputees we also face the uphill battles of healing, socket fittings, sores and painful steps, and phantom pains. Sometimes it feels like we never get a break. It feels like the weight of the world is placed on our shoulders and we can’t come up for air.

What we all need to learn is that every time we feel stressed out we have, in our own power, the ability to change the outcome. We control the narrative and we control how we come out on the other side.

“Mind over Matter” isn’t just a cliche it is truth.

 

 

When we hold in stressors we destroy our immune system, disrupt our nervous system, and create more problems than we need to.

We need to find ways to release negativity and stressors in our life. They will always be there, so instead of letting them take control and reeking havoc on your health you need to find ways to work through them and find a peace in your life.

When we learn to breathe, slow down, relax, and let go of the things we cannot control, then start feeding our mind with positive and affirming words we can begin to heal ourselves and give our bodies a chance to heal.

This week I challenge you.

 

 

Find time to slow down and breathe slowly and deeply through troubles and stressors you are feeling. Realize what you can control and what you cannot. If you can’t control something it’s time to let it go.

Use animals to help you find quiet time and centering. Horses especially are extremely intuitive and can read you from a mile away. If you bring in negative energy or a lot of “baggage” they won’t want to be close to you, and I don’t know about you, but I go see my horses for the kisses and love they pour into me. If I come preoccupied and upset, holding onto something negative, they sense it and walk away from me. I must clear my mind and center/ground myself if I want meaningful interaction with them.

 

Our closeness happens when I let my fears, anxiety, and stressors melt away and I focus on being present with my girl.

Words of affirmation and positivity. Speak them and repeat them as often as you need to about yourself until you have created a positive mindset. If you consistently beat yourself up over little things or become negative about your healing then this is where you need the most work. Our brain is a very powerful tool that believes what we speak into it. Speak only good and positive and watch your circumstances change for the better!

 

 

Finally, have grace upon grace for yourself. You won’t be perfect and you will stumble as you go through life, we all do, the challenge is to pick yourself back up, dust yourself off, and try again.

You’ve got this and I know you can do it. As you begin to make the changes needed to reduce stressors in your life you will start to notice phantom pains not being your focal point which then makes their grip on you much less.

Don’t give your pain power! Deny them and don’t continue to talk about them. The less time you pay attention to the pains you feel the less likely you are to be consumed and debilitated by them. You deserve better!

You can do this!

Be positive, breathe and focus on the positives! Watch your stress melt away and your phantom pains calm down.

Wishing you a week filled with health and happy thoughts.

And as always,

Be Healthy,

Be Happy,

Be YOU!!

Much love,

 

 

The Neuroscience of Phantom Pain

The Neuroscience of Phantom Pain

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The Latest Research Behind Phantom Pain

 

You may have heard the saying, “Mind over Matter” a few times in your life. I know I have, but did you know that it is more than just a saying? Did you know that our brains are capable of helping us cope when we struggle, especially when we deal with pain?

Today I learned how the brain can actually help us changing the way we think and perceive the pain we feel.

We have the ability to redirect and reconnect our brain waves to cope with phantom pain, or any pain, that we experience.

Today, I was honored to have on Dr Felipe Fregni, professor of Physical Medicine and Rehabilitation at Harvard Medical School and Professor of Epidemiology at Harvard TH Chan School of Public Health, as well as the Director of the laboratory of Neuromodulation at Spaulding Rehabilitation Hospital. He has been researching how the brain perceives pain and what is happening during bouts of pain to our brain.

Dr Felipe Fregni, Harvard Professor

 

The hope is that if we learn how our brain works and how it changes during moments of pain or discomfort then we can start to use that information to better equip the individual to work through pain and eliminate it without medication!

Wouldn’t that be something!

Studying the brain to find connections

 

Dr Fregni splits his time teaching at Harvard and working the lab at Spaulding Rehabilitation Hospital

 

Dr Fregni and his staff and students have been researching this topic for a while now and getting the data they need from participants, like myself, and they could use you too!

Their goal is to create a device that you can wear to assist in pain elimination through brain waves. They started this study with bringing people into their lab to trial what they had created. Now they are onto phase 2 and getting new participants to work from home with their device.

As an amputee I am excited to see research into phantom pain and how we deal with it and finding ways to cope without medication. Dr Fregni also mentioned that their research also branches into helping stroke victims and paralysis as well!

When we figure out how pain is communicated within our body we can then begin to find ways to lessen or even eliminate it.

One interesting thing we did touch on, which I stated at the very beginning was the mind over matter mentality. You may have heard me say that when I start hurting I tend to become active, I get moving and I find something to distract myself from thinking about the phantom pain. What Dr Fregni told me was that when we become active we start using our brain, we get neurons to fire and this makes for a healthy brain. So every time I’m struggling, my coping mechanism was to not think about the pain but to dive into something else. This is exactly what we should all be doing because we are creating connections in our brain, fire it up, and building it stronger. So mindset matters. Speaking to ourselves in positive ways matters. Even thinking about an activity we love to do creates connections in our brain for healing. What a powerful organ it is, indeed!

I want to thank Dr Fregni for coming on and guiding us through how our brain is capable of helping us heal and for building this community of researchers to help those of us who are struggling with pain and need a better way to handle it. I look forward to seeing how your research builds a stronger and healthier tomorrow for us! Thank you!

If you would like to take part in the clinical research happening right now, from the comfort of your own home you can reach out to Dr Fregni’s department with the link below.

I hope you all have a very blessed week.

And as always until next time,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

 

To see if you qualify to participate in their study please click HERE

That’s A Wrap!

That’s A Wrap!

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Loss/Limb Difference Awareness Month 2025

 


Garrison Hayes and Eric Gutierrez-Camacho
Colorado State University

John McCollough: MIT
Ophelie Herve: UCLA
Mira Mutnick, Jake Kanetis, and Marty Kilbane
Colorado State University

Dan Levine: MIT

As April comes to a close we say a huge thank you to all of the university students ts who came on to share what they have been working on, in the fields of mechanical and biomedical engineering, robotics, and media arts and sciences. All of these amazing students have a passion for assisting and improving the lives of people in the amputee community with their genius and creative enhancements to prosthetics, sockets, surgical procedures and research.

I cannot thank them all enough for caring so deeply for our community and for working so hard to improve it.

As this month closes out I want to entice you all to subscribe to my channel as next week we begin to explore phantom pain.

I have a professor from Harvard coming on to talk about his study into how the mind works, and how it can be used as a tool to combat phantom pain. Very intriguing conversation and maybe a few cues for us amputees to use to begin taking charge of our bodies without the use of drugs.

Please make sure you stay tuned for future episodes!

hHave a very blessed and wonderful week,

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

much love,

How Did I Get Here?

How Did I Get Here?

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Faith and Connections

 

Just the other day I met a lovely woman in a wheelchair. My first instinct was to smile  but then I looked down, only to see that this kindly older lady was missing part of her limb. She was a below knee amputee.

She was being pushed around the store by a younger man, a caretaker, in her wheelchair when she noticed me and my prosthesis.  She asked him to back up and push her towards me to talk about being an amputee.

Her smile showed she was a fighter. She also informed me it has been 2 years since her amputation,  and now she was dealing with cancer. But still she smiled!

I knew that she was someone I wanted to know.

We talked for a bit, I told her we’d love to have her on our women’s chat groups and I made sure she had my name written down before we parted ways. She was struggling with the phantom pains, something I know all too much about. We had that in common and our connection was amazing and immediate.

Before I chose amputation I had been fighting through ten surgeries in 5 years, plus a blood clot, before deciding on amputation.

I had 4 months to wait from the time I scheduled my amputation til the surgery, and in those 4 months I went thru every emotion know to humans. I was a wreck trying to navigate something so surreal and on my own.

That is, until I leaned into my Christian faith. I had met a nice pastor during my time in PT, as he was getting his shoulder injury worked on by my PT on many of the days I was there. We talked, I reflected, then on my birthday (which feel during my wait time) I decided to re-baptize myself at this pastor’s church, which I started going to on Saturday evenings, just a month before. I needed to find connections, I need to find God in all of this mess I called my life.

 

The love of a puppy

 

The love from my horse

 

The love of my family

 

 

What I found, while attending the Saturday evening services, was amazing people who understood and stood with me during this time.

I sat down, on campus, with this pastor and we talked about life in general. Afterwards, when I got back to my car I had a life-altering epiphany, this whole thing, this journey I was on, was God’s plan for me. I now, looking back, could see his fingerprints on it all!

I felt such a burden lifted from me at that point, and I can honestly say, I have never looked back.

I am embracing every high and low for what it’s worth, and I know it is for my own good and all these moments were meant to build me up for something else. My mindset got positive. My view of my future became positive and my fears were muted.

When I connected with this lady the other day, I saw God working again, reminding me why He chose me for this journey. I connected in a way that helped and brought joy to this new friend of mine, and I walked away feeling joyful and fulfilled once again.

Connections; we, as humans, were created for connecting with one another and with the world around us. This gives us hope and joy, it fills us with purpose and passion for our life we are living, despite the circumstances.

 

 

 

This week I want you to give it a try.

If you have been staying at home, or are stuck at home find a way to get out.

If you can’t get out then find another way to connect with people. Find a virtual chat room, like the one I have each Wednesday, or call a friend or family member. Reach outside of your own life and find out about someone else’s.

When we connect either physically or verbally with someone else we gain perspective and can step back from what is disabling us.

It’s never going to be a good outcome if you are at home only thinking about your own problems and issues. That is isolating and can destroy you, mentally and physically.  You need to branch out and see that you are not alone in suffering or struggles, we all have them, day to day and even from hour to hour.

Staying secluded isn’t helpful and is hard to lift yourself out of, we aren’t meant to go it alone. Humans were built for connection.

This week make some real connections with others and watch your perspective change and watch your struggles lessen, even if only for those moments you are with someone.

Listen to someone and what they are going through. No need to give advice, sometimes we just need to feel heard.

And remember, everyone is going through something, and each moment is meant to build you up and strengthen you for what’s to come.

Are you preparing for your future successes?

Are you strengthening your resolve and character?

You were built with a warrior inside of you, we each were. It’s time to let that warrior out and fight for the life you want, the life you crave. Don’t allow yourself to be fooled that it won’t get better, your mindset matters, and you WILL find the strength needed to achieve your goals.

You are a Warrior! Believe it!

Have a blessed week ahead, and until next time,

Be Healthy,

Be Happy,

Be YOU!!

Much love,

 

 

One Step At A Time

One Step At A Time

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Goal Setting and Climbing Your “Mountain”

 

Nothing in life that’s worth achieving is going to come easy. Working toward a goal, putting your best foot forward and sweating through it makes achieving it all the more sweet.

Why would becoming an amputee be anything different?

If you were active before your amputation, then you know what can be done with a lot of work, grit, and determination.

It won’t be easy. It’ll test your resolve MANY times, but, when you get to the goal you set for yourself, you will feel such a sense of excitement and joy like you’ve never felt!

Don’t worry about what others are doing or achieving. Remember that comparison is the thief of joy.

You focus on you! Do what you can do now, and each day try to be better than the last. The next thing you’ll realize is how far you’ve come since you started.

One step at a time has been my mantra since my amputation. I can’t look at the big picture or I’ll get nervous or doubt what I’m capable of. Instead I focus on putting one foot down at a time, at my pace, and what I can do in this moment. And each ,moment is different. Today I might be whipping around the neighborhood, feeling confident and without pain, and then tomorrow I could be struggling with just walking slowly around my home.

All you can do, is work hard with what you have been given each day, but if you can honestly say that you gave it your all then I promise that you will see strides at reaching your goals.

One step at a time is meant to be metaphorical, and also very literal, for us amputees. Don’t think about walking all day in your prosthesis when you get up, and don’t just tell yourself that you’ll put it on for a little bit or later today. Put it on with the mindset that you’ll wear it for all you can, however long that will be today, knowing that each day brings its own struggles and accomplishments, but you don’t know what kind of day it will be until you are in the midst of it.

 

Skiing on one leg is definitely a mind over matter exercise!

 

Mindset matters!

What you tell yourself first thing in the morning is how your day will go. When I wake up, I know I will put my leg on first then go through my day. Somedays I cannot get to the gym because it hurts too much so I do what I can at home, keeping it on, and building my tolerance up for wearing it. Other days, I put it on and get a burst of energy and hike 4 to 5 miles without even thinking about it.

Mindset matters and what you tell yourself will be the direction your mind takes, and what your body believes.

Always get moving with your best intentions and your heart and mind in the most positive place you can be and then see how your day unfolds. One step at a time.

 

This week, it is pretty straight forward.

This week I want you to remember to keep speaking positivity to yourself.

Write down “ONE STEP AT A TIME” on post it notes and place them in places you spend a lot of time in and around your house to remind yourself to take your goals and your actual steps at YOUR pace and ONE AT A TIME.

 

Hiking is my favorite activity. Every hike is different and challenges me to be focused and push myself.

 

Set a goal. Wherever you are right now physically, mentally, and based on your weather and location and decide what it will take each day to break it down and work towards it at your pace.

You can achieve anything you put your mind to if you set mini goals for yourself, or stepping stones to that goal. Make the steps small enough to find success, and big enough to challenge yourself.

 

First time hiking on snow!

 

And then watch yourself break the barriers that you thought were there because of your circumstance.

I believe in you! I believe we are all born to fight for what we want and desire. THAT is a Warrior mentality.

So, rise up warriors, and sieze this moment. You are not broken, or weak, or disabled. You are a warrior of epic proportions.

Get after your goals and dreams today, ONE STEP AT A TIME!!

 

Have a beautifully blessed week and as always, until next time,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

 

 

The Ocean is Calling

The Ocean is Calling

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Healing and Finding Purpose

 

This Illinois, born and raised, girl never knew she had a connection to the ocean.

It’s a beautiful thing to find in yourself so late in life. It was surprising, and breathtaking when it happened.

Many years ago my family moved to Florida for a job. I never thought I would leave Illinois, EVER! All of my family and my husband’s family live there. That was our support system.

We enjoyed Florida a lot while only there for 4 years but I was a mom of two young boys and going to the beach was more of a chore than anything. Keeping an eye on them, making sure they didn’t go in too deep, and then getting sand off of them (which, of course was on every square inch of their bodies when we were done!) before getting into the car.

But, fast forward 11 years and I decided to try my hand at surfing, for the first time ever, and as an amputee. My prosthetist, Randy West, helped me make my dream come true and made me a surf leg the week before our trip to Kauai. I arranged surf lessons and have to say I was a bit nervous at first… I don’t like to fail and I had no idea how this would go seeing as my surf instructor had never given lessons to an amputee before.

Needless to say, I found my joy in surfing from the moment I got on the water.

 

 

The ocean was soothing and yet so powerful. The Hawaiians call this power, Mana, and I understood why. While a wave looks so peaceful and ignorer as it moves its way across the ocean to the beach what was going on under the wave was strong, chaotic, and so powerful.

It seemed to me a metaphor for how my life felt now as an amputee.

 

 

To me, though, even being on the beach and close to the waves, I can still feel her power and her beauty as I watch and listen.

I find myself breathing to the waves as they come in and crash on the beach. I watch the sun shine through the water and watch the ultimate chaos of sand being churned up and plant life whipping around as the wave pushes forward.

This is my happy place. I find my peace here and long for that feeling often, always excited to go back to the ocean whenever a chance arises.

You may not live near a beach or have the means to get there right now but you can recreate this feeling by finding video footage of the ocean and/or the sounds of crashing waves that you can listen to, right now, in your own home. No, it’s not exactly the same but it can do the trick, if you are in need of finding some calm and center in your life.

The ocean has given me a place to finding healing because it calms me, declutters my head, and asks me to breathe with it.

These actions place me in a better place, mood, and mental space.

 

You guessed it! This week I want you to find your peace at the ocean.

This may be a literal ocean, if you live near one, or find video and audio of the ocean that you can immerse yourself into in your own home.

Don’t cheat yourself. don’t find a video and then work on laundry or do the dishes. You must find the time and space to stop everything you are doing to center yourself and focus on the present.

Find rhythm in your breath with the ocean. Close your eyes and listen to ALL of the sounds. Relax your body and your mind and just breathe.

 

 

If you can just find time everyday this week to give yourself this gift of quieting your life, stopping the momentum, even for just 5 minutes, you will find yourself in a better mood, and in a happy space. You might even find healing of what you are struggling with right now.

Surrender to the ocean, Warriors. You and your body deserve that much.

Have a beautifully blessed week,

And until next time,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

 

Keys to Success

Keys to Success

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Do You Have These Two Ingredients?

 

My people, My “Why”

Chicago Family: My roots and the people who believe in me

 

You need People and you need a positive mindset!

It’s that simple…

OK, maybe it’s not simple but the solution to getting the most out of life usually comes from these two things and you can make the changes for yourself, not having to rely on anyone or anything outside of yourself. Start NOW!

I have always stated that every journey is uniques in this life.

I also tell you that what works for one person doesn’t mean. it’ll work for you.

I also have stated MANY times that there is no “normal” in the amputee journey, just like life, we all experience it differently.

However, if you surround yourself with the right people AND you change your mindset then you have a much better chance of finding success as an amputee.

We sometimes get stuck hanging with the same people because we are inherently creatures of habit and loyal, but what if that person in your life is taking you down with their words, or lack of positivity? What if the person you call friend finds it hard to watch you succeed, therefore they tell you “You can’t do it.”, or “You’ll never walk again, don’t do it.”? Why is it that we stay in those relationships?

Don’t you deserve more? I think you do.

And your mindset and these types of people might actually go hand ion hand, meaning, if you are someone who sees there negative in situations, more often than not, you attract those kind of people. There are people who love to be the positive one in a relationship, doing great things and being better than you, looking better than you, having more success than you. They sense your weakness and to lift themselves up they befriend you.

YOU DON’T NEED THAT!

You deserve more.

You are an amazing person who deserve to be surrounded by genuine people who truly want to see you succeed, and know that when you’re hurting how to get you back up on the saddle. Sometimes with tough love, if you need that, and other times a shoulder to cry one.

Know your people and know you deserve the best.

When you support those around you like you’d like to be supported then you’ll find “your” people.

Mindset plays a HUGE part in this.

Your success, or failure, is determined by your thoughts.

You’ve heard the saying: “Whether you think you can, or can’t, you are right.” Henry Ford is said to have coined that phrase, which highlights the power of mindset and self-belief, that your attitude towards your task at hand determines your success at that task.

No truer words have been spoken!

Take heart if you re struggling right now because your support system and your mindset, your can change today, no need to wait, this is all about you.

 

 

This week you have 2 simple tasks:

One, take stock in who you are surrounding yourself with, and if you feel like your ideas and their ideas aren’t matching up to what you see yourself doing then you need to talk with them and get on the same page. State your goals, your dreams, your aspirations. If they care about you then they will help you get there. If you find your friends aren’t behind you, cheering you on, wanting to see you succeed, then it’s time to rethink who your true friends are.

Make note of who has been there for you through the good and the bad, draw them closer and make sure you reciprocate that support. They need it too.

Next, time to do some spring cleaning on your mind. Who do you talk to yourself and others about your circumstance, you life, your decision to amputate, your health, your abilities? If they aren’t positive and aspiring… GET RID OF THEM!

Start feeding your mind with good thoughts, goals, dreaming, positive imagery, etc.

And do this multiple times a day until it becomes who you are without even thinking about it.

You can do this and you WILL find success!

I believe in you, so you should believe in yourself.

You were made to be a warrior, now get out there and do warrior sh*t!

 

Have a blessed week,

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

From Fear to “Thanks Giving”

From Fear to “Thanks Giving”

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Moving Into the Right Mindset This Holiday

 

As an amputee I have so much to be grateful for in my life.

I am blessed to be alive.

 

My horses make me be present

 

I am thankful for my husband, two healthy sons, and a family who loves me.

 

 

 

 

 

 

I am grateful to be able to walk again, just to name a few.

 

 

Do I ever look back on the day that I injured myself, which led me to amputation, and wish it never happened?

NO! Never, not even once!

I am so fortunate to have been chosen for this journey. Looking back, wishing for something different sets  me up to fall into the trap, and vicious cycle, of never being satisfied or happy of where I am now.

I wouldn’t have met the people I’ve met.

I wouldn’t have overcome fears that I have had to face.

I wouldn’t have learned to trust in myself, the process, and my support system.

I wouldn’t have experienced the life I’m leading now with such gratitude because of what I have had to overcome and endure.

I am a stronger person, more passionate about my Faith, and better able to withstand immense pain and challenges than ever before.

 

This holiday season I challenge you to look past your fears, your disappointments,  your pain, your obstacles, your past, and your anger at your situation and see the small but relevant miracles happening in your life EVERY SINGLE DAY!

 

CHANGE YOUR MINDSET! Live for your happiness and to a brighter future.

When you change how you see your life and your circumstances you change the outcome. You see the good more easily in everyday encounters and silent moments. You will find yourself smiling more and grumbling less, and you will start to attract the type of people who want to be around you because you empower them with your outlook. It’s contagious!

What are you grateful for today?

 

 

Today, choose to be grateful!

Don’t wait any longer to see the joy in your life.

Start jotting down your blessings or what you are grateful for tonight.

Keep a list where you write 1-5 things that you are grateful for each night before bed. Fall asleep to gratitude in your heart and watch how refreshed and joyful you will start to be in the morning, just looking for the next moment.

I wish you and your families a very special, magical, and blessed Thanksgiving.

Until next week, and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

Help!

Help!

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How Can You Know What You Don’t Know?

 

Yep, like clockwork!

Like life itself, being an amputee throws you curveball after curveball, no matter how seasoned you are.

My time is now, I guess.

I am almost six years out from my amputation, life has been great! I have been traveling, active, enjoying mobility and no (knock on wood) phantom pains worthy of discussion. This is the good stuff! I’m living my best life!

 

Monday’s walk…pre-pain

Enjoying island life

 

Monday, however, with our weather being nice and cool in the mornings, I took my pups for a walk. About one mile in I noticed an aching in my femur. Never had that before. Very curious.

At  1 1/4 miles, however, I as limping and trying to keep pressure of my limb and socket. Once I got home and sat for a minute the pain was gone, but I could recreate it by moving my socket around.

Now, I know my limits and I know how to push myself so, of course, I went for a walk the next morning.

And you guessed it, I was in pain again, in the same place on my leg. This time I cut my walk a little shorter.

I have never had this before. So I did what I needed to do. I began going through a process of elimination for what I was feeling.

First off, I was checking my residual limb that night for bruising or soreness when I touched the area in question. It feels bruised.

I had no redness or swelling.

I had no rash or blisters.

I checked my weight, only down a few pounds, but that’s not uncommon.

I am noticing some tripping off my toes lately which could indicate that my prothesis might be dropping some when I pick up my leg when walking.

My best guess is that for some odd reason, six years in, I am having some volume change, or shape change, to my residual limb (which is weird since I haven’t changed anything in my routines nor have I been traveling the past couple of weeks). This would explain bruising as I may be banging around in my socket because of excess room.

My worst case scenario is a possible bone spur, which would cause pain on the bone and can happen at anytime after amputation. This would suck because I’d have to have surgery to remove them.

So, for now, I will NOT take to social media to find answers because my medical team and I know my situation best.

I will NOT worry, because that doesn’t help and is a waste of time.

 

The Limb Center: I have these guys in my corner.

 

I have called my prosthetist and let him know what I’m feeling, when I’m feeling it, and where the pain is coming from. I will be seeing him soon to check out my fit of my socket and making some educated guesses with the person who has seen me through to this point.

From there we will formulate a plan to reduce/eliminate  the problem.

 

 

If you are  like me, and are dealing with an unusual circumstance with your residual limb.

If you are feeling scared or worried about what might be causing your trouble, here is your Call to Action:

 

Please don’t ask the keyboard warriors on your social media feed!

Please process what you are seeing, feeling, and noticing that is different than before with your residual limb and/or socket.

Make notes.

Call your medical team: orthopedic surgeon, prosthetist, and/or physical therapist and get their help.

And please, whatever you do, don’t waste time worrying about what it could be. Just remember that you were strong enough to get to where you are now, and you will be stronger still as you navigate this (what may be your first of MANY issues as an amputee) hurdle.

Remember to breathe, step back from your situation, make logical observations and talk to your medical team.

You and I will get through this.

We are warriors, of course.

Attitude is Everything

Have a beautiful week and as always,

Be Healthy,

Be Happy,

Be YOU!!

Much love,

 

 

 

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