Tag: opinions

Are You Listening?

Are You Listening?

By |

Podcast: Play in new window | Download (Duration: 25:03 — 26.7MB)

Subscribe: Apple Podcasts | RSS | More

Learning To Listen To Your Gut

When you are going through something have you noticed how many people have advice?

The questions of: Have you tried this? Did you see Dr. So and So? This is the only prosthetic that works…. etc, etc.

I have had the opportunity to see many doctors throughout my injury, been to an amazing plastic surgeon, and have great prosthetists. I tell new amputees all about them but I try to stay conscious of pushy. My personal experience is MY personal experience, and I am always hopeful that it can be somebody else’s experience too, but it may not be. This just recently happened and it was heartbreaking to see. Without going into detail, because that’s what this podcast talks about, I had a couple of friends, amputees, use one of my doctors to help with revisions and their experiences were not like my positive experience.

I also watch social media posts and peruse the comments and am taken aback by the many people who believe their way is the only way, their doctor is the best doctor, their prosthetic brand is the best out there. Do you see where I’m going with this?

“Always”, “Never”, “The Best”, and “The Worst”, are red flags in my book, and should be avoided at all costs.

So why do we fall victim to adhering to these types of comments and following this type of advice? When we are in pain, scared, anxious, and in doubt we want ANYTHING that will get us out of that situation, and the faster the better. When we ask a large group of people (social media groups) how they handle this situation, or ask for help when we are experiencing phantom pain so extreme we are beside ourselves, we will take any advice if the person comes across unwavering and confident in their advice.

The problem? We are all DIFFERENT!

The love I have for my prosthetic. I am empowered to live my best life, with my new lease on life.

 

We have different reasons for our injury, different backgrounds, different personalities, different pain threshold levels, and completely different reasons for what we are feeling.

Just last week I experienced phantom pain, like my foot had been set on fire. It was non-stop, day and night. I haven’t had that in a long time. This time it was caused by my situation, not my fit. I was very upset and stressed about something (listen to last week’s podcast), and this was how my body dealt with it. However, if I had told any Facebook groups that I was dealing with this major burning, without giving the situational background, like so many people do, I would’ve been told that pain meds work, or gummies were the way to go, or try sleeping it off, etc. But what I needed to do was get outdoors for fresh air and allow myself to grieve. The fresh air and exercise helped me cope with my issue, which allowed my phantom pains to subside.

Fresh air and exercise! Just what I needed.

 

I knew what I needed. I trusted my gut on why I was experiencing what was happening to me.

We sometimes forget, in the midst of hard times, that if we just listen to our bodies, that we know what’s best and what is right for us.

When we schedule an appointment with a doctor but feel unsettled when in the office, we need to listen.

When we struggle with pain, we must quiet ourselves enough to listen to what our body is telling us.

Yes, it’s good to get some opinions, but take all advice with a grain of salt. We know ourselves better than a doctor with a PhD. We understand what we’ve been going through more than a random keyboard warrior who loves to put their two cents into everyone’s problems.

Aren’t we worth that?

Don’t we deserve the best care possible?

 

It’s time to advocate for yourself.

When you have an appointment, make sure you take questions you want answered so you don’t forget them if your train of thought gets derailed (mine did as soon as one doctor brought up amputation for the first time-I was stunned and my mind went blank. Luckily my husband was with me).

Bring someone you trust with you to the appointment (see comment above).

Listen to what your body is telling you. You know YOU best! DOn’t doubt yourself.

Remember, advice is great for optionality, but there is no “One size fits all” answer to your situation.

You are a warrior! Don’t you forget that! Fight for yourself! Fight for the life you’ve envisioned for yourself. You deserve the BEST!!!

I’m praying for you. Rise up and be heard, Warrior!

 

Until next week, as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

 

 

Dare to Dream

Dare to Dream

By |

Podcast: Play in new window | Download (Duration: 37:25 — 40.5MB)

Subscribe: Apple Podcasts | RSS | More

You are Special and Deserve It!

 

What do you do when you’re struggling? Maybe you are like me and lost a limb. Maybe you have a plethora of other medical issues and have been wheelchair bound. Or maybe you just can’t get out of your own way and headspace.
Is this you?
I know you want more from life.
You may have even questioned, “Is this all there is for me?”
Don’t give up!
Dream!
Chase answers!
Seek help!
I struggled for 5 years and went through 10 surgeries, only to be left with a leg that only had 20° range of motion and wouldn’t straighten. I could barely move around my home, let alone ski with my family, hike, take the dogs for a walk, or ride a bike.  All dreams that I knew were fading away! Talk about depressing and defeating.
A blood clot was my wake up call and the metaphorical nail. I talked, researched, visited doctors, asked opinions, even spoke with other amputees to make up my mind.
Dare to dream!
Don’t give up!
Join me today to hear how this journey is going and at the end of my podcast listen for my Call to Action for YOU! Let’s do this together!!
Make a list of the dreams you have. List everything that you would love to do, see, experience, try.
Dream big! Don’t be afraid. Spend some quiet time thinking and dreaming. Write them all down.
Now place them in an order that builds upon each other. Maybe some are more accomplishable now and work to build upon the next and so on.
Finally, ask yourself what you need to do to accomplish goal 1, goal 2, etc. Pursue those goals by working through what’s stopping you.  I understand that some may seem really far off based on medical situations. If your goal is to run a 10K and you’re in a new socket then plan to start small. Maybe it’s getting it on and wearing it around your house for a few hours, then for the day around your house. Work toward walking all day in it, out and about. Then work toward walking to the mailbox every day. The next thing you know you’ll be out walking a mile, then 2.
Take your big dreams and break them into small goals to achieve them. Only you know what it will take to get yourself there. For me it was scheduling my amputation, then dealing with that loss, then healing and getting a prosthetic. Finally I registered to run a 10K a year out and worked on strengthening and learning to walk again. Baby steps. I may not have run the whole race but I DID finish!! Then I moved on to my next goal. I had them all mapped out in my head and on my vision board in my bedroom (see the podcast on making a vision board back in season 1) I highly suggest a vision board to help you visualize your dreams and goals!!
Spend the next 7 days dreaming and writing them down.
If you need to talk through your plan please feel free to reach out to me on IG; @BAWarrior360 or Facebook: BAWarrior360
I’d be happy to help in any way I can.
Until next week and as always:
Be Healthy,
Be Happy,
Be YOU!!
You are a Warrior!
Much love,
Angie
The Nerve of Some People

The Nerve of Some People

By |

Podcast: Play in new window | Download (Duration: 1:04:57 — 43.7MB)

Subscribe: Apple Podcasts | RSS | More

Plastic Surgeons and TMR Surgery:
Tackling Phantom Limb Pain

 

Everyone deals with pain at some point in their life, but when you have an amputation you know that there is a possibility of living with a pain you can’t even touch! When the missing limb is burning, itching, throbbing, or sending sharp pains with every movement it can be unnerving -pun intended- and hard to get past.

I, like so many other amputees, have dealt with phantom limb pain since day one. Most of the time I can handle it, sometimes in the quiet of night it can be hard to fall asleep, but I have been able to deal with it.  The point when I could no longer take the pain was when I couldn’t even walk into my kitchen without the pain being so sharp and unpredictable that I stopped moving!  It takes A LOT to stop me! I have a high tolerance for pain, and this was just too much for me. I have to say, this freaked me out and made me worry that maybe this was going to be like this for the rest of my life…. and then I stepped back and gave myself a pep talk. I cannot allow myself to participate in defeatist talk. Negativity cannot reside in me, I won’t allow it. So, what did I do? I had an appointment with my prosthetist and my surgeon who performed my amputation.

I was scheduled for an MRI to see if there was a neuroma, sure enough, there was one, exactly where I felt the pain. Symptomatic, great!

Next step? My orthopedic surgeon, Dr. Judd Cummings, told me that I needed to see a plastic surgeon, and the one he suggested, who knows how to perform a surgery called TMR (Targeted Muscle Reinnervation), Dr. Roni Prucz.  He put his confidence, and my future, into this doctor’s hands… and I believed in him, so I went.

Dr. Roni Prucz
Phoenix Plastic Surgery

 

Now, I didn’t have ANY desire for yet another surgery, but I promised I’d go talk to him.  What harm could that do?

….And before I knew it, I was scheduled for surgery! Dang it!

Dr. Prucz seemed confident that he could successfully help me with the pain on the back of my residual limb, where the neuroma was, but the sharp pain that I felt ripping down my non-existent shin, he couldn’t promise that. I couldn’t pinpoint where the pain was originating from and so he would just have to do exploratory surgery in that area, and hope for the best.

Without the neuroma, my gait has become so much better, there was no more pain there. However, the sharp pain, in the other area of my limb, returned about 6 weeks after surgery, not as often and not as intense, but it reared its ugly head and my fears of life-long pain returned.

No matter what, I will rise!

 

This is where I needed to advocate for myself and not just say, “Oh well, we tried.” That wasn’t good enough for me. I needed answers and I needed this to be fixed, or at least feel better. I saw my prosthetist, then Dr. Prucz, and then over to Dr. Cummings, just trying to figure this out, gain perspective, and to see if anyone had any ideas. I would NOT rest until I had direction.

Yesterday I took my next step in helping myself, I tried a sympathetic nerve block in my L3 and….. so far, so good!!!

I needed something that didn’t require another surgery and this was a good next step, and quick. If it works then I may be looking at having that nerve bundle ablated. I’ve been moving around for 24 hours now and not feeling that pain. This is a good sign, but I hesitate to get too excited, too soon. I will do my thing, I will beat on my leg through my high level of activities, like hiking, and really push the limits of my leg and socket. For me that’s the best way to really test out what I’ve had done.

I really test my leg and socket whenever something new has been done to either of them

 

I hope this podcast gives you some insight to TMR surgery, if you’re a candidate, and how to go about finding the right person to perform this on you. As always, I’m here for you! Send me an email or leave a comment. I’d love to chat and answer any questions you might have about what I went through. Talking to people who’ve been through something will help give you perspective and  maybe even curb fears you might have.

 

 

This week I want you to let go of the past, start looking to future. We cannot move forward if all we are doing is wishing we had back what we use to have. If you’ve lost a limb, it’s gone, there’s nothing you can do about it. The choice is up to you how you’ll view this difference. The choice is yours on how you will pursue your future. You can have a pity party, or you can decide to set new goals, change direction from the course you use to be on BEFORE losing your limb, and rise up!

The time is now! Dream big! Set new goals.  Adapt and move on with your life. I know there will be setbacks, I know there will be moments of pain, but they do not define you. Your attitude and what you do with your circumstance DOES!  What are you going to do? I want to see you thrive! I want to see you challenge yourself! I want you to rise up and conquer, because YOU are a warrior!  Now go out and crush it!

 

Until next time:

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

Angie

 

Meta

Archives

Categories