Tag: never give up

Stressed Out!!

Stressed Out!!

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Dealing With Stress to Alleviate Phantom Pain

 

Ahhh, stress!

It wouldn’t be a day or a week without something triggering stress. A bid decision, a deadline, a fight with a friend, or even traffic!

As amputees we also face the uphill battles of healing, socket fittings, sores and painful steps, and phantom pains. Sometimes it feels like we never get a break. It feels like the weight of the world is placed on our shoulders and we can’t come up for air.

What we all need to learn is that every time we feel stressed out we have, in our own power, the ability to change the outcome. We control the narrative and we control how we come out on the other side.

“Mind over Matter” isn’t just a cliche it is truth.

 

 

When we hold in stressors we destroy our immune system, disrupt our nervous system, and create more problems than we need to.

We need to find ways to release negativity and stressors in our life. They will always be there, so instead of letting them take control and reeking havoc on your health you need to find ways to work through them and find a peace in your life.

When we learn to breathe, slow down, relax, and let go of the things we cannot control, then start feeding our mind with positive and affirming words we can begin to heal ourselves and give our bodies a chance to heal.

This week I challenge you.

 

 

Find time to slow down and breathe slowly and deeply through troubles and stressors you are feeling. Realize what you can control and what you cannot. If you can’t control something it’s time to let it go.

Use animals to help you find quiet time and centering. Horses especially are extremely intuitive and can read you from a mile away. If you bring in negative energy or a lot of “baggage” they won’t want to be close to you, and I don’t know about you, but I go see my horses for the kisses and love they pour into me. If I come preoccupied and upset, holding onto something negative, they sense it and walk away from me. I must clear my mind and center/ground myself if I want meaningful interaction with them.

 

Our closeness happens when I let my fears, anxiety, and stressors melt away and I focus on being present with my girl.

Words of affirmation and positivity. Speak them and repeat them as often as you need to about yourself until you have created a positive mindset. If you consistently beat yourself up over little things or become negative about your healing then this is where you need the most work. Our brain is a very powerful tool that believes what we speak into it. Speak only good and positive and watch your circumstances change for the better!

 

 

Finally, have grace upon grace for yourself. You won’t be perfect and you will stumble as you go through life, we all do, the challenge is to pick yourself back up, dust yourself off, and try again.

You’ve got this and I know you can do it. As you begin to make the changes needed to reduce stressors in your life you will start to notice phantom pains not being your focal point which then makes their grip on you much less.

Don’t give your pain power! Deny them and don’t continue to talk about them. The less time you pay attention to the pains you feel the less likely you are to be consumed and debilitated by them. You deserve better!

You can do this!

Be positive, breathe and focus on the positives! Watch your stress melt away and your phantom pains calm down.

Wishing you a week filled with health and happy thoughts.

And as always,

Be Healthy,

Be Happy,

Be YOU!!

Much love,

 

 

The Future is Now: Part 4 of 5

The Future is Now: Part 4 of 5

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University of Michigan

Mira Mutnik, Jake Kanetis, and Marty Kilbane

 

 

Amazing conversation with not 1, not 2, but 3 PhD students at the University of Michigan this week!

A true, authentic conversation about the innovation and design of future prosthesis and the growth and research of creating a surgical procedures to aid in using these newly designed prosthesis all with the purpose of replicating the natural human movement.

We packed so much conversation into this episode with so much more we could have talked about.

Once again, we discussed what we could, but some details must be left out due to the highly competitive field these young adults are working in.

What I love about these three students is that even though they are all in a different sector, so to speak, of research: Mira-above limb amputees, Jake-below limb amputees, and Marty-prosthetics, they are all working towards the same goal; creating the best way to unify the surgical procedure and prosthesis to give the amputee the best, most natural movement possible.

 

Jake all hooked up to monitor human movement to collect data for his research

 

Marty working with a study participant on their design of a prosthesis they are working on in the lab.

 

Mira collecting data on her upper limb project and how to get the best hand movement and dexterity of a prosthesis.

 

We had a great discussion of what it could look like for the future of amputees and the length of time these studies take. There are a lot of hoops to jump through, safety regulations, data collecting, and trials. The FDA must approve procedures and products that they hope to take to market some day, but these students have become three of the many students going through the program at University of Michigan, working tirelessly to bring this technology closer to us being able to access it.

I find it so unique to see the shift from making the newest, coolest, most advanced products for us to wear, as amputees, to surgical procedures to make our bodies work in harmony with a prosthesis. The one thing we did dive deep into was the procedure of getting candidates who fit the bill to doing the trial procedures, and finding willing participants as well. This can be so tricky as we struggle with the idea of going back in and revision the original amputation in hopes that the outcome will be the same if not better, but the concern that it could be worse.

I hope you will join us today, listen to the entire podcast and see what dedication these students have for helping our amputee community, what motivates them to continue into this higher level of study, and what their plans are for their future after graduation.

Thank you Jake, Mira, and Marty for sharing your passion. Your dedication to helping our community find a better way to live is inspiring and deserves our gratitude!

Continue doing what you’re doing, and know we all thank you for the time, ideas, and ingenuity to take amputees to the next level!

Please make sure you all Like, Share, and Subscribe so you don’t miss an episode as we continue with our 5th Student interview next week as we visit MIT again from a different angle.

Wishing you all the best, and a blessed week ahead.

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

One Step At A Time

One Step At A Time

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Goal Setting and Climbing Your “Mountain”

 

Nothing in life that’s worth achieving is going to come easy. Working toward a goal, putting your best foot forward and sweating through it makes achieving it all the more sweet.

Why would becoming an amputee be anything different?

If you were active before your amputation, then you know what can be done with a lot of work, grit, and determination.

It won’t be easy. It’ll test your resolve MANY times, but, when you get to the goal you set for yourself, you will feel such a sense of excitement and joy like you’ve never felt!

Don’t worry about what others are doing or achieving. Remember that comparison is the thief of joy.

You focus on you! Do what you can do now, and each day try to be better than the last. The next thing you’ll realize is how far you’ve come since you started.

One step at a time has been my mantra since my amputation. I can’t look at the big picture or I’ll get nervous or doubt what I’m capable of. Instead I focus on putting one foot down at a time, at my pace, and what I can do in this moment. And each ,moment is different. Today I might be whipping around the neighborhood, feeling confident and without pain, and then tomorrow I could be struggling with just walking slowly around my home.

All you can do, is work hard with what you have been given each day, but if you can honestly say that you gave it your all then I promise that you will see strides at reaching your goals.

One step at a time is meant to be metaphorical, and also very literal, for us amputees. Don’t think about walking all day in your prosthesis when you get up, and don’t just tell yourself that you’ll put it on for a little bit or later today. Put it on with the mindset that you’ll wear it for all you can, however long that will be today, knowing that each day brings its own struggles and accomplishments, but you don’t know what kind of day it will be until you are in the midst of it.

 

Skiing on one leg is definitely a mind over matter exercise!

 

Mindset matters!

What you tell yourself first thing in the morning is how your day will go. When I wake up, I know I will put my leg on first then go through my day. Somedays I cannot get to the gym because it hurts too much so I do what I can at home, keeping it on, and building my tolerance up for wearing it. Other days, I put it on and get a burst of energy and hike 4 to 5 miles without even thinking about it.

Mindset matters and what you tell yourself will be the direction your mind takes, and what your body believes.

Always get moving with your best intentions and your heart and mind in the most positive place you can be and then see how your day unfolds. One step at a time.

 

This week, it is pretty straight forward.

This week I want you to remember to keep speaking positivity to yourself.

Write down “ONE STEP AT A TIME” on post it notes and place them in places you spend a lot of time in and around your house to remind yourself to take your goals and your actual steps at YOUR pace and ONE AT A TIME.

 

Hiking is my favorite activity. Every hike is different and challenges me to be focused and push myself.

 

Set a goal. Wherever you are right now physically, mentally, and based on your weather and location and decide what it will take each day to break it down and work towards it at your pace.

You can achieve anything you put your mind to if you set mini goals for yourself, or stepping stones to that goal. Make the steps small enough to find success, and big enough to challenge yourself.

 

First time hiking on snow!

 

And then watch yourself break the barriers that you thought were there because of your circumstance.

I believe in you! I believe we are all born to fight for what we want and desire. THAT is a Warrior mentality.

So, rise up warriors, and sieze this moment. You are not broken, or weak, or disabled. You are a warrior of epic proportions.

Get after your goals and dreams today, ONE STEP AT A TIME!!

 

Have a beautifully blessed week and as always, until next time,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

 

 

Reflect and Reset

Reflect and Reset

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Time to Challenge Yourself

 

 

As 2024 fades away and 2025 takes control let’s take time to look back and reflect on the ups and downs of the past year.

We all have had those moments we achieved some sort of milestone, we have also had those moments we never want to relive.

I’m hopeful that you had some time at the end of last year and the first week of this year to relax, reflect, and refresh yourself. I hope you have gotten into a place where you are ready to rise up again, and accomplish your goals.

As much as I am NOT a fan of New Year’s resolutions, for the fact that the name in of itself let’s people know that it’ll be a bust by February, I AM a fan of creating a new plan, schedule, and goals to work on THROUGHOUT the year ahead. I like the feel of starting over, having a second chance, learning about myself and reaching goals. I love the promise of a new tomorrow, where anything is possible, but without a goal or plan of attack days can roll by into weeks and month, only to leave you feeling like you let yourself down once again.

 

This year, I want to challenge you to several new things.

First you need to stay positive. Easier said than done, I know, but if you know that hard times will come-that there will be some struggles in your journey, then you can plan for that. While you’re in a good place prepare for the “suck”. How will you handle phantom pains when they hit? How will you decide when you need to talk with your prosthetist about your fit? When do you change your doctor after everything else has failed and you feel in your gut that you need someone else’s help or opinion?

These are all things that can knock the wind out of you and set you back. For some of us it can derail us so badly that we loose our momentum and never get it back, we can get lost in a dark place.

Prepare!

Make a Plan!

Execute that plan TODAY!!!

I am not immuned to this “delay game”. I play it with myself when I’m too tired, too happy, too busy….”I’ll start tomorrow”. You know that game, right?

I’m preaching to myself when I say we need to stop that if we want to achieve, overcome, rise up and become the warriors we were born to be.

This is our year! We will do this together. Accountability is key when you are struggling.

 

 

This week I have 2 Call to Actions for you. Don’t ignore these, let’s get after it together. I can hold you accountable, and you can hold me accountable.

 

First, come up with your word or phase of the year. Something that will keep you focused on your ultimate goal. Keep it short and simple 1-2 words if you can. This becomes your war cry, your mantra, something you will write and speak to yourself everyday for this whole year.

What is your word or phrase?

It could be:

Control

Be Present

Rise Up

Be Epic

Breathe

Walk

Mine is: Charge Forward

 

Second, join me in a virtual race. The one I have just registered for is called “Reset” by Virtual Pace Series and you can register here

 

This is a choose your distance challenge. You can do a 5K, 10K, Half or Full Marathon. The beauty of this race is that you can do it on your time and in your location. You can choose your distance and how you complete it. Walk, Run, Hike, Bike, Swim, it doesn’t matter. What matters is that you are challenging yourself WHER YOU ARE AT. If you can’t do 5K in one event, then break it down into 2 or 3 days/events. If you have already completed a walking. 10K then maybe you need to try running a 5K or even a 10K.

The point is to have something holding you accountable and a goal set before you. You do you, where You Are At in your journey.

Earn that medal and when you open it, AFTER COMPLETION, you are going to fall in love with challenging yourself.

Join me in 2025, a year in which you achieve your goals and realize the warrior within you is Stronger than you could ever have imagined!

Yes you can!

You will!

You are Stronger enough, brave enough and more than capable.

You are a WARRIOR!!!

 

 

I hope you find 2025 to be everything you want and more.

Please join me next week right here as we support one another and build each other up!

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

“Sleigh” Your Goals

“Sleigh” Your Goals

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Start Today!

 

Start Now!

Today!

What are you waiting for?

 

I know, I know, it’s the holidays. You are busy and can’t find the time.

Me too! But, if you are serious about your goals, and know your ‘WHY’ then get to it.

I am not, nor have I ever been, a fan of “New Years Resolutions”. For a majority of people it is a procrastination technique to get thru the holidays, feel horrible about how you celebrated all holiday season, to join a gym or set goals that are extreme, only to drop them by February or March.  Instead of being excited and uplifted by the challenges, you are left feeling defeated and miserable for failing. Who needs that?

 

Instead, start small now.

No matter what your goals are in life, starting when you are busy just requires taking baby steps to begin a new routine and make it a habit.

If you want to stand and make dinner while wearing your prosthesis then start by wearing it longer each day, or refusing to take it off. Then stand to wash a few dishes. Eventually you’ll be able to maneuver around your kitchen and create a meal and feel proud of your accomplishment….which will inevitably lead to another goal to achieve.

If you want to get or stay physically active and you are struggling to find time then carve out some smaller portions that you CAN commit to and do it. For example, take a short walk around the block after dinner every night, or do some sit ups, push ups and/or planks before bed.

You don’t have to have a gym membership and commit 2-3 hours 4-5 days a week to be active and stay fit, you just need a plan and stick to it (again, to build a positive habit that will carry on thru the holidays and all next year).

 

 

 

Starting today and carrying you through the new year here’s what you need to do to form good habits that will keep you moving forward.

 

Write down your dreams and goals on paper, don’t keep them secret up in your head.

Decide the most important ons and which ones need to come before others. There probably is a progression of them for example, learning to wear your prosthesis comes before walking a mile in it.

Set deadlines to help keep you on track.

Make smaller steps that you will need to do to hit your goal by your deadline.

Speak positively: I want to go to the gym. I want to go for a walk. Etc, etc.

Find someone you can share your goals with who will push you and hold you accountable (when times get hard and they will, it’s good to have an outside person keeping you on track), and maybe they can join you in setting goals and you can hold each other accountable.

Have fun and know your ‘Why”. Why are you setting this goal? Who are you doing this for?

 

 

Setting these things into place will give you a better chance of succeeding at what you want.

As always, you don’t need to go it alone. We all have weak moments and need some help.

I hope you have a blessed holiday season and a happy healthy new year!

This is my last episode of Season 4. I’ll see you next year!

Until then,

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

 

From Fear to “Thanks Giving”

From Fear to “Thanks Giving”

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Moving Into the Right Mindset This Holiday

 

As an amputee I have so much to be grateful for in my life.

I am blessed to be alive.

 

My horses make me be present

 

I am thankful for my husband, two healthy sons, and a family who loves me.

 

 

 

 

 

 

I am grateful to be able to walk again, just to name a few.

 

 

Do I ever look back on the day that I injured myself, which led me to amputation, and wish it never happened?

NO! Never, not even once!

I am so fortunate to have been chosen for this journey. Looking back, wishing for something different sets  me up to fall into the trap, and vicious cycle, of never being satisfied or happy of where I am now.

I wouldn’t have met the people I’ve met.

I wouldn’t have overcome fears that I have had to face.

I wouldn’t have learned to trust in myself, the process, and my support system.

I wouldn’t have experienced the life I’m leading now with such gratitude because of what I have had to overcome and endure.

I am a stronger person, more passionate about my Faith, and better able to withstand immense pain and challenges than ever before.

 

This holiday season I challenge you to look past your fears, your disappointments,  your pain, your obstacles, your past, and your anger at your situation and see the small but relevant miracles happening in your life EVERY SINGLE DAY!

 

CHANGE YOUR MINDSET! Live for your happiness and to a brighter future.

When you change how you see your life and your circumstances you change the outcome. You see the good more easily in everyday encounters and silent moments. You will find yourself smiling more and grumbling less, and you will start to attract the type of people who want to be around you because you empower them with your outlook. It’s contagious!

What are you grateful for today?

 

 

Today, choose to be grateful!

Don’t wait any longer to see the joy in your life.

Start jotting down your blessings or what you are grateful for tonight.

Keep a list where you write 1-5 things that you are grateful for each night before bed. Fall asleep to gratitude in your heart and watch how refreshed and joyful you will start to be in the morning, just looking for the next moment.

I wish you and your families a very special, magical, and blessed Thanksgiving.

Until next week, and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

Anticipation

Anticipation

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Let’s discuss Anticipation and Expectations as an amputee.

Every journey is different, every path navigated in life is unique, so why would anyone think that becoming an amputee that we would share the exact same journey?

We will have a similar structure as to what steps come first, second, third, etc, but wWHEN they come, HOW quickly you move from one step to the next, AND when setbacks will happen are all unique to each individual.

Understanding this, and excepting it will help with your success and also your stress.

When we drop the idea that “I want to be doing what Sue is doing.”, or “I want to run like John.” we can embrace our own journey for all its worth, and except the path we are on, which will reduce stressors and help us achieve.

Goal setting and POSITIVE expectations are found to be key to reducing stress and helping us reach success.

Join me for how to go about doing this, and at the end of the podcast check out your Call to Action on what you can be doing right now whether you are awaiting amputation, had an unexpected amputation, or just want to get out of your own way in life so you can find success.

 

Enjoy this episode, share with those you know who need some motivation and as always,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

Keep looking up! Reach for the stars, dear Warri0rs!!

 

A Leg Up On Life

A Leg Up On Life

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Dealing With Negative Emotions Post-Amputation

 

Anger, Guilt, Shame, and Fear are all such destructive emotions. They hold us back from realizing our full potential and no one is immune to feeling them at one time or another.

As amputees, we face unique challenges, including fears about our new life, future uncertainty, failures, prosthetics, and adapting to physical limitations.

As a wife and homeschooling mom amputee I often struggled with guilt. I was always worried about making mistakes and inadequacy.

Now, as an amputee, (and I ELECTED this), I was even more fearful of what might be my shortcomings.

This is a lot of pressure to put on myself. How about you? Are you adding this stress into your life?

All in all, any of those above mentioned emotions, are taking away your happiness and also adding a negative aspect to your life, one that is stress-inducing and impeding success.

Stress can harm our health, impeding healing and progress. We must recognize and tame these self-destructive emotions if we are to truly love ourselves, love our life and live it fully.

 

Enjoy the good days. Remember those feelings. Harness them and utilize them when you are struggling.

 

We must realize what we are doing to ourselves and how to tame that monster that is self-destructive in nature.

So what can you do when these emotions begin to rear their ugly heads in your mind and life?

 

First thing;

Stop beating yourself up over situations you cannot control. You cannot control infections, poor fitting sockets, blister and rashes, or phantom pains.

Next, you need to communicate with your family and support system about how you are feeling. and when you’re feeling like you are getting everyone down. They need to know where you are at during the harder times as you navigate being an amputee because they probably don’t have any other experience with amputees than YOU.  Help them understand how you see yourself, where you want to be and what’s currently holding you back from realizing your potential. More than likely they wouldn’t want you to be worrying about that, just about getting better and stronger.

Finally, use positive self-talk. Your brain is a powerful muscle and it will bend and move to what thoughts you are allowing it to feed off of. If you tell yourself you aren’t good enough, that you aren’t contributing, or you are letting down those around you, then that is what you will feel is true. BIG TIME STRESSOR!

Time to start forgiving yourself, forgiving those around you that have hurt you, breaking free from fears, and letting go of guilt. When you are sick and laid up, your first priority must be to get stronger and healthier so you CAN get back to your life and family.

You can do this, you are strong enough. This is a long journey, a marathon, not a sprint. You will find that when things are going well something will come along and take you back a step or two. Likewise, when you are struggling, I can promise you, it won’t last and soon everything will start working out for the positive.

Don’t distress, dear Warriors, this too shall pass.

Lift up your chin, put a smile on your face, and laugh despite your struggles.

The time is now to sharpen your mental sword and fight for what you want and how you want to live your life.

Don’t give up and don’t lose hope.

Make today a great day,

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

 

Help!

Help!

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How Can You Know What You Don’t Know?

 

Yep, like clockwork!

Like life itself, being an amputee throws you curveball after curveball, no matter how seasoned you are.

My time is now, I guess.

I am almost six years out from my amputation, life has been great! I have been traveling, active, enjoying mobility and no (knock on wood) phantom pains worthy of discussion. This is the good stuff! I’m living my best life!

 

Monday’s walk…pre-pain

Enjoying island life

 

Monday, however, with our weather being nice and cool in the mornings, I took my pups for a walk. About one mile in I noticed an aching in my femur. Never had that before. Very curious.

At  1 1/4 miles, however, I as limping and trying to keep pressure of my limb and socket. Once I got home and sat for a minute the pain was gone, but I could recreate it by moving my socket around.

Now, I know my limits and I know how to push myself so, of course, I went for a walk the next morning.

And you guessed it, I was in pain again, in the same place on my leg. This time I cut my walk a little shorter.

I have never had this before. So I did what I needed to do. I began going through a process of elimination for what I was feeling.

First off, I was checking my residual limb that night for bruising or soreness when I touched the area in question. It feels bruised.

I had no redness or swelling.

I had no rash or blisters.

I checked my weight, only down a few pounds, but that’s not uncommon.

I am noticing some tripping off my toes lately which could indicate that my prothesis might be dropping some when I pick up my leg when walking.

My best guess is that for some odd reason, six years in, I am having some volume change, or shape change, to my residual limb (which is weird since I haven’t changed anything in my routines nor have I been traveling the past couple of weeks). This would explain bruising as I may be banging around in my socket because of excess room.

My worst case scenario is a possible bone spur, which would cause pain on the bone and can happen at anytime after amputation. This would suck because I’d have to have surgery to remove them.

So, for now, I will NOT take to social media to find answers because my medical team and I know my situation best.

I will NOT worry, because that doesn’t help and is a waste of time.

 

The Limb Center: I have these guys in my corner.

 

I have called my prosthetist and let him know what I’m feeling, when I’m feeling it, and where the pain is coming from. I will be seeing him soon to check out my fit of my socket and making some educated guesses with the person who has seen me through to this point.

From there we will formulate a plan to reduce/eliminate  the problem.

 

 

If you are  like me, and are dealing with an unusual circumstance with your residual limb.

If you are feeling scared or worried about what might be causing your trouble, here is your Call to Action:

 

Please don’t ask the keyboard warriors on your social media feed!

Please process what you are seeing, feeling, and noticing that is different than before with your residual limb and/or socket.

Make notes.

Call your medical team: orthopedic surgeon, prosthetist, and/or physical therapist and get their help.

And please, whatever you do, don’t waste time worrying about what it could be. Just remember that you were strong enough to get to where you are now, and you will be stronger still as you navigate this (what may be your first of MANY issues as an amputee) hurdle.

Remember to breathe, step back from your situation, make logical observations and talk to your medical team.

You and I will get through this.

We are warriors, of course.

Attitude is Everything

Have a beautiful week and as always,

Be Healthy,

Be Happy,

Be YOU!!

Much love,

 

 

 

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