Tag: medical

Inventors & Innovators: Hugh Herr and Biomechatronics

Inventors & Innovators: Hugh Herr and Biomechatronics

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The New Age of Bionics

 

 

What happens to you when you find yourself in a do or die situation?

Hugh Herr was in that position as a teenager, barely making it out alive while doing something he loved and excelled at, a savant at his young age. But he didn’t make it out unscathed, he lost both of his legs below the knee.

What would you do? At that young age would you have given up, abandoned your dreams, or hid from life?

Would you believe that this situation inspired Hugh to become a creator, inventor and innovator in the prosthetic world?

He went from a kid set on rising to the top as a professional climber, to figuring out how to navigate life AND climbing again as a bilateral below knee amputee with prosthesis he created!

He changed his path to one of college and higher education. Getting his masters and doctorate degrees from Harvard and MIT, and is currently a professor at the MIT Media Lab and co-leads the Yang Center for Bionics at MIT.

He is known for creating bionic limbs that emulate the movement of natural limbs and has been called the “Leader of the Bionic Age” by Time Magazine.

He has TED talks, authored/co-authored over 200 peer-reviewed manuscripts and patents, and most recently Hugh and his research group invented the Agonist-Antagonist Myoneural Interface, which is a surgical procedure for limb amputation that allows the person with limb loss to control their synthetic limb with thought.

His research and studies are beyond amazing! The ideas and possibilities to come for those of us with limb loss from what he is inventing are going to be incredible and will make losing a limb less traumatic and more doable with the hope of what we will be capable of accomplishing with such high-tech and realistic bionics.

The age of bionics is growing by leaps and bounds and this past December 2023, I was blessed with the opportunity to work in the MIT Media Lab, meet Hugh, and participate in the current studies with several PhD students. I was blown away, to say the least, by what they are working on and what will be out on the market in the not too distant future. We are going to be seeing more stable, more controllable, and more comfortable fitting prosthesis which will give us our lives back and with more meaning.

 

So, yea, the first time I get to meet Hugh I look like this! Strapped in and ready to do research for the greater good!

 

This week, as we close Limb Loss/Limb Difference Awareness Month with my 4th and final interview with such an important innovator, as Hugh Herr, the pioneer of our bionic age, you do NOT want to miss what he shares about what is up and coming in the world of prosthesis and bionics.

Join me and Hugh Herr for this incredible interview!

Please share today’s podcast to bring hope and excitement for what’s to come to those in our amputee community.

Again, thank you, Hugh, for giving me the time to talk with you, pick your brain, and for your genius and creativity in helping us gain back our independence and ability to move smoothly despite our limb loss. I am truly inspired and excited for the future.

 

I hope you all enjoy today’s podcast and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

John, Me and Tony-PhD students from MIT that were in charge of the study.

 

You can watch the NOVA production of Hugh Herr’s life: NOVA “Augmented” HERE

 

Inventors & Innovators: TheraV for Phantom Pains

Inventors & Innovators: TheraV for Phantom Pains

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TheraV Founder and CEO Amira Radovic

We are kicking off Limb Loss/Limb Difference Awareness Month (LLLD) with the founder and CEO of TheraV.

Amira found her passion to help people by creating a non-invasive, non-pharmaceutical device that helps soften phantom pains through the use of vibration therapy.

Phantom pains are a very real, very painful, and often times disabling reaction after losing a limb. Most amputees will experience some level of phantom pain throughout the course of their lives. I would also say that all amputees feel some sort of phantom sensation (a feeling that the missing limb is still there and feels like pins and needles or a numbing sensation), I know I feel that everyday, all day, but I have become accustom to them.

Phantom pains, on the other hand, are intense. They come without warning, last days, sometimes weeks, and can feel like you are being shocked, set on fire, or like a knife stabbing your limb and cutting you open. I have had the distinct privilege (sarcastic voice) of experiencing those crazy, uncontrollable, and sleep depriving pains four times in my five years of being an amputee! I wouldn’t wish that on my worst enemy!

Amira’s father was a civil engineer and she had dreams of becoming an engineer, herself. She said she was always fascinated with the idea of using technology to enhance the human ability so she studied biomedical engineering at the University of Delaware. As a junior she had an opportunity to work at a prosthetic office. There she was introduced to the mental and physical pain that came with limb loss and the reality of phantom pain. She worked for years and talked to many amputees to come up with her TheraV for phantom pains, despite the lack of data and the stigma that surrounded phantom pains.

This week I had the honor of having her on my podcast to share where her idea came from, how it works, and where she’s taking it next. Like all great inventors, she is continuing to dive deeper into the mysterious world of phantom pains, what produces them, what helps, and how she can improve her already amazing product.

I am grateful for the time I got to speak with her and to hear her story, her passion, and what got her into the world of amputees and phantom pain.

An amazing thing about TheraV is that it can also be used by able-bodied individuals for things like restless leg syndrome or CRPS! Amazing, right?

If you are struggling with any of these issues, and would like to be rid of medications you might consider giving TheraV a shot.

Check out her website HERE.

 

With a world of big Pharma and large corporations it’s hard for the individual to break into the market. Please visit TheraV website, check them out on social media and give them a follow. By purchasing your own therapy for your home you not only have a safe way to manage pain you are helping Amira reach more people and giving them a chance to live without pain.

Thank you, Amira, for joining my podcast this week and for all you are doing for our amputee community.

Phantom pains are real pains.

Your research and devotion to reducing and eliminating them is so commendable! Thank you!

 

 

 

Remember to subscribe to my podcast so you don’t miss out on a month packed with inventors and innovators who are making a huge impact in our amputee community! also. p

lease share this link and podcast with someone who could benefit. My goal is always to help empower and educate those in need. Help me make an impact this month!

 

Thank you and have a blessed week.

As always,

Be Healthy,

Be Happy,

Be YOU!!!!

 

 

Much love,

 

 

 

 

Insurance Games

Insurance Games

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Playing To Win; Playing For Your Future

 

Dealing with insurance can be tricky and often frustrating. I speak from experience.

It’s unfortunate that insurance companies make it so hard to understand the ins and outs of their policies as well as getting approvals especially since those who are trying to get covered are often going through really tough emotional times.

As I got myself prepared for my amputation I was doing everything to prepare myself, mentally, emotionally, physically, and financially seeing as this would be a forever life changing surgery.

My experience was not smooth, nor was it kind, but I figured out how to handle my situation, found my voice, and fought for what was right and what I needed.

Join me this week as I take you on my journey with the games that insurance companies play, and how you can play and beat them at their own game.

 

This is what I fought to get……

 

So I can do this….

 

…And this

 

….And this

 

…And this.

 

 

 

 

 

 

What are you fighting for? And if you’re not fighting for what you want, then who will???

 

Randy and David at The Limb Center and also Limbs For Humanity

 

 

This week, if you are in the middle of a big decision that takes medical insurance, make sure you do your homework and get confirmation about what is covered.

If you have been told “No” by your insurance company then it’s time to fight for what you want and need.

We must fight for ourselves, because only we know exactly what we need and want to make our lives worth living.

Help yourself by fighting for your future. Don’t give up, and don’t take “No” for an answer!

You are a warrior and you are WORTH IT!!

 

Have a blessed week and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

The First 3 Years

The First 3 Years

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Finding Hope after Amputation

 

No one really tells you what to expect after amputation, and quite frankly, even if they did, each journey is different.

The reality is that the first couple of years are filled with bumps, bruises, ups and downs. You will have highs and some of your lowest lows. There will be enormous changes, in your life, and in your body. And even when you finally get through the healing process, post-amputation, the challenges are just beginning. But with all that said, you can and will survive.

You spend A LOT of time in your prosthetist’s office the first 2 years

 

My very 1st prosthetic, one of many. Had no idea what was to come. All I knew was that I would be walking again!

 

Yet another socket!

 

Randy at The Limb Center in Phoenix, making my mold, for ( you guessed it) ANOTHER socket!

 

You will learn how your body adjusts, how it heals, what kind of strength (both physically and emotionally) you have, and you will build character…. oh boy, will you build character.

 

These are all the sockets (minus 3) that I have gone through, because of changes to my limb, in just 3 years!!!

 

The process is long and can be stressful if you don’t have patience. You will find yourself doing well one moment, only to feel like you’ve taken a step back in the blink of the eye. But don’t you give up! And don’t you worry. This is all part of the learning process and the changes you are going through, physically. Becoming an amputee and traversing the first 1-3 years is all about adaptability and change. If you can go into it knowing it is a process that could take that long, and that you will have positive moments of moving forward, riddled with backward steps, then you will be ready and able to handle what gets thrown at you.

You are a warrior, built for adversity.

Be strong.

Stay positive and active.

This is the to fight for what you want out of life.

We are in this journey together!

 

 

This week I want you to decide what it is that you really want out of your new life.

You will want to start building your own toolbox for those moments that become hard and emotionally draining.

I have so many hobbies, and things I do to pass the time, and to distract myself on the harder days, the days where phantom pains want to destroy me and my resolve.

What do you do when you get upset? Tired and frustrated? Or when you are hurting?

Most of us have a coping mechanism to help through those moments in life. This time is no different.

Be prepared to redirect your thoughts so you can get through and come out stronger on the other side.

Prepare yourself for battle; the internal battles that seek to bring chaos into y9ur life, making you doubt yourself and trying to destroy every dream you have. You are a WARRIOR! Believe it! You will succeed and be stronger for it.

Be prepared.

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

The Age of Prosthetics

The Age of Prosthetics

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Change Is in the Air

 

 

I had the distinct honor of being a part of a gait study at MIT in their Media Lab in Boston. It was the final project of a PhD student’s program and it was amazing!

To see what the future of prosthetics is heading toward and being able to test something that is still a ways out from being on the commercial market was such a blast and a lot of work. Testing the product through different scenarios and also using my own leg to show my baseline capabilities for comparison was so interesting and enlightening.

I would never have picture myself, in a million years, being able to be a part of this, nor did I ever picture myself without a leg.. oh the places I have been, the people I have met and the experiences I have enjoyed, all because of my decision to amputate almost 5 years ago.

 

MIT Media Lab lobby

 

Getting geared up for my baseline study with my own leg

 

Gathering data

 

Making adjustments

 

Such an honor to meet the man who created his own prosthetics after losing his own legs, Dr Hugh Herr.

 

Would I do it all again? Yes!

 

First off, I am not a person that looks back and says, “if only I had…” or ” I would have done this differently”. Instead I focus at what’s happening now and what’s in front of me. This makes me a happier person.

Second, I wouldn’t trade all the problems I have had (phantom pains/sensations, fitting issues, rashes and burns from sockets) because everything I have been blessed to experience has also been met with amazing people, experiences and seeing and doing new things.

I am a better person, a more well-rounded person, for having this life altering surgery.  I am happy that my life changed direction.

I have been able to test my will power, my integrity, my character much more by going through something so big. I have been tested and been able to rise up and become a stronger individual, both physically and emotionally.

I wished I could share with you so much more about my time at MIT, but until this student’s study is published it needs to be hush hush. Someday next year I will talk about it in more detail, but until then, I suggest that if you ever get a chance to take part in a study, one that helps make progress in our prosthetics, take it. Not only are you helping the future, you will also get to learn more about yourself.

 

 

As the past couple of weeks I have pushed you all to get active during this busy time of year. Taking care of yourself is so important for your mental and physical well-being but we tend to put it off for other things. Don’t wait! Join me on my Fierce and On Fire challenge.

It’s a virtual challenge by RunMotivators and if you’d like to join you can register and receive a medal for accomplishing this virtual challenge.

The goal? 100 miles, your way.

What does that mean?

You decide how you accomplish 100 miles. I set the goal timeline for December 31st but you can always set your own timeline since this started 3 weeks ago for me.

How can you reach 100 miles?

Whatever is comfortable and easiest for you and your circumstances. If you are wheelchair bound them maybe do some upper body workouts.

15 minutes=1 mile

You can swim, walk, hike, ski, surf, run, bike…the sky is the limit and you decide what challenges you, where you are at.

The idea is to get moving for YOU!

Making yourself a priority during this time of year, when we tend to ditch the things we do for ourselves to doing things for others.

Are you in??

Join me TODAY and get a jumpstart on your own health and fitness goals.

 

I hope you have a blessed week ahead and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

 

Dealing With Grief

Dealing With Grief

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How Grief Plays a Role In Your Health

 

Today’s podcast I will let speak for itself.

I am dealing with grief and last several weeks the stressors in my life were so high that my phantom pains were intense.

 

Taking care of yourself in the midst of pain, sorrow, grief, and anxiety ridden situations is very important for your overall health.

Listen in as I tell you about my past week and a half, how I’ve been feeling, and what I have done, successfully and unsuccessfully, to deal with my emotions and the pain that I was feeling in my heart.

I pray you all are doing well, and I apologize for the delay in posting this week.

Stay positive.

Be the warriors you were meant to be and know that I am here and will get through this and heal on my time.

Until next week,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

In loving memory of Bella Rose October 27, 2023

So You’re An Amputee…Now What?

So You’re An Amputee…Now What?

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You have made it through a HUGE surgery. Maybe because of an accident or a sickness. Maybe you made the decision to amputate so you could live a better, healthier life. Whatever the reason, you have made it through that emotional decision, and come to terms with your new reality.

Unfortunately, your journey has just begun, but have no fear, you can shine and move forward with your new lifestyle and live an amazing and full life!

You might think that the act of being amputated is the hardest thing you will have to go through, or that you won’t ever live a full life with all the “restrictions”. And while it’s true that it takes time to adjust to your altered body, you can overcome the perceived restrictions.

A life as an amputee can be as good as you envision it, goal set for it, and how you approach it. It is mind over matter. It is about positivity, attitude, and courage.

Your journey, like life itself, will be filled with ups and downs, There will be storms and there will be rainbows. That’s life!

What can you start doing, now that you are an amputee, is adjusting your mindset, from being a victim to being the warrior in your story.

It’s time to goal set, dream of your future, build strength and grit. You will need all of that to find success, and if you prep correctly and envision the possibilities then you will succeed!

You define success.

You will get knocked down but if you realize this you will be better prepared for those moments and be ready to fight.

Remember, you are a warrior, not just because you have gone through something extreme, but because you fought to rise up after being knocked down. You have got into battle and continue to fight for what you want in life.

This week, listen in as I discuss what it took for me to find success after amputation.

 

 

This week is about coming to terms about your body.

Setting goals.

Understanding that this is a marathon and not a sprint, becoming prepared to fight for a better life and finding strength and resilience through adversity, and learning how to get back up after getting knocked down.

Be prepared for battle and fighting for what you want (and you should go into this knowing exactly what you want out of it).

 

You can achieve great and amazing things for your life. You are not a victim, you are a warrior!!!

 

Have a blessed week and as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

Reality Check

Reality Check

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Are you seeing amputees doing all the things you could only dream of doing? Thinking you are so far behind that you could never get there? Or see them doing amazing things, “pain-free”?
Well, in the spirit of complete transparency, and shedding light of the realities of being an amputee, I have had a hard couple of days.
Yep! Even 4 1/2 years out. Do they happen often, no, but phantom pains, poor fitting socket days and just plain “off” days can come out of nowhere and hit me like a freight train!
This weekend was no exception.
I has been out hiking, doing what I love, and even though it was a tough hike I got through unscathed…. However, the next day, I’m sure my muscles were so taxed that my phantom pain came back in sharp stabbing droves, meant to take me out in mere moments!
The reality check is, we all have our journey, whether you’re an amputee or not. You cannot compare yourself to anyone else, because there is no one like, who went through what you went through, and can handle it like you. Our pain tolerances are different, our illness that led to our condition are difference, our age, activity level and our gender are all different.
Most people think that going through amputation is the hard part, but in reality, it’s the first 1-2 years after, in which you have to get fitted for a socket, place something heavy and cumbersome on your body, and relearn to walk all over again. The fit takes patience and time to adjust, you fall, you get rashes, you break down and get frustrated.  And when you finally get everything to feel “good” you have atrophy and drop weight and your limb changes and you start the whole process ALL OVER AGAIN!!! Sometimes even just 1-2 months after you finally get a good fit!
So whether you are struggling on the path you are on in life, or finding it debilitating to keep moving forward as an amputee, know that this is all part of the journey. You have to experience the ups and downs to learn and become stronger, physically, mentally and emotionally. I can tell you all that I’ve gone through but to truly learn from it and appreciate it, you must go through it yourself. And your journey won’t look like mine or anyone else’s, your journey is YOUR journey. Embrace it and enjoy it for all its worth. You’ll be amazed at the person you’ll become as you wrestle with the challenges you’ll go through.
This week, listen to yourself. Know when you need a break and take it. Spend time reflecting on what’s got you blocked or bound up and know that this isn’t the end, just a hiccup.
Take a deep breathe, and rise up again and give another crack at it.
Baby steps, little by little, keep you moving forward.
Don’t give up and believe in yourself!!
And as always,
Be Healthy,
Be Happy,
Be YOU!!!
Much love,
Angie
Cast Your Worries, Reel In Patience

Cast Your Worries, Reel In Patience

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A Fishing Analogy for New Amputees

 

From experience, I KNOW, without a doubt, that there are fish in our lake.

Just yesterday I caught a huge northern pike and released him….. he is in there, waiting for the next lure to tempt him.

How does this relate to amputees and our journey? Great question.

Patience, for one. And knowing how to keep moving forward, even when you feel like giving up, for another.

I must have casted 1000 times in 5 hours last weekend, and not a nibble!!!! 5 hours!!! I’m either totally dedicated to my craft or absolutely crazy! But, I love the POSSIBILTY. The possibility that I could catch a fish, maybe even the biggest fish in the lake (I may be a little competitive 😏) keeps me going.

Not my biggest catch, but I’ll take it as a win!

 

This is the same for amputees. No matter what I tell newbies, until they go through it themselves, it just doesn’t click. Some people think they’ll get through it without a hiccup and be off and running right after they get their prosthesis. What you have to remember is that 1) Everyone’s experience is unique and individualistic. 2) We all atrophy and thus makes our fitting process a challenge, and 3) You don’t know what you don’t know, and it won’t make sense until YOU go through it.

That being said, going through the early moments of becoming an amputee are like fishing. You know that you will be able to walk again, run, hike, bike, swim, etc. You’ve seen tons of other amputees make it, and the prosthesis they are making now are so amazing and helpful to our success. but you also need to remember that you can’t catch the big fish if you aren’t patient, and ready to put in the time.

 

 

Go at it with a positive attitude. Take a step back when things get hard, and you.ve forgotten what WILL be possible. You have to earn it, so to speak, and you’ll be better prepared and ready for future hiccups after going through the first year or two.  But it won’t be easy. You will be pushed to the edge a few times, whether with the way it feels, the fitting, pain, sensations, or a plethora of other things that could happen.  But don’t lose hope. I went through the changes and the exhaustion of never-ending appointments to get the right fit. I went through excruciating pains of a neuroma and the surgery to remove it, along with the setback of healing from that surgery before I could wear my leg again. I understand the heartache when you just want to be and feel “normal” and you just don’t see how that will ever happen for you. It will! I promise. Keep the faith. Don’t take yourself too seriously and learn to laugh at those moments. Cry when you need to then pull up your big boy/big girl pants and trudge forward. You will get to where you want to be, but you will work for it, I promise that too.

 

 

 

What I use to tell my students all the time was that if it was easy then you wouldn’t feel as proud of yourself for accomplishing the task at hand. Same goes for us amputees. You will have to overcome some seriously huge mountains at times, but when you are at the top looking back at where you came from, you can be so proud to know that you truly ARE a warrior!!!!

 

I believe in you!

Don’t you dare give up.

Put in the time, practice patience, and know that with time, things will get easier.

 

You are amazing and will accomplish great feats. You only need to be steadfast and patient. Be realistic in knowing that it takes time, but in the end you will succeed!

 

As always, and until next week,

Be Healthy,

Be Happy,

(Be PATIENT….)

Be YOU!!!

 

Much love,

Angie

 

Patience is a virtue.

 

A few of my favorite things as I sit at the lake fishing

The view is so peaceful

 

Wildflowers everywhere!

 

Love Yourself….

Love Yourself….

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Where You’re At

 

Ever felt alone, even though you are surrounded by your support, your family, your friends?
As an amputee, it can be hard for anyone to really grasp what we are feeling when it comes to nerve or “phantom” pains. To explain it, doesn’t do justice, yet we can deal with it 24 hours a day, 7 days a week. I know I do.
There are many times that, even though we are surrounded by people who love us, we feel alone and having to handle pain and problems that accompany bring an amputee by ourselves. It is in those moments that we must rise up, become stronger than we ever thought we could be, and fight through the pain.
This can only be done when we treat ourselves like our own best friend. We must love who we are enough to support ourselves with positive words and thoughts, words we would lend a friend in need. Sometimes that is harder than it should be as we struggle in silence.
When we feed ourselves words of affirmation, love, positivity, and forgiveness, we give ourselves the greatest gift, a fighting chance to rise up stronger. We must learn to love ourselves, where we are, now, so we can gain a healthy mindset and live a full and healthy life.
Start today. Begin by affirming that you are worth love, happiness, and good health.
Speak positive words into your heart and mind.
Practice this daily, even hourly, if you need to, until it becomes second nature to be a positive person.
Your future self will thank you for it!!
Until next week, and as always,
Be Healthy,
Be Happy,
Be YOU!!!
Much love,
Angie

 

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