Tag: experience

Picking Apart Phantom Pain

Picking Apart Phantom Pain

The Real Mental Side of Phantom Pain

 

Ok, let’s talk about Pain. Not just any pain, but the “real” phantom pain.

It comes on without warning.

It can destroy our mood, our productivity, and our confidence.

When it does happen, and for amputees we will all have the pleasure of experiencing it at some point on our journey, it’s enough to cause us to doubt we will ever be able to function again because we can’t see an end to it in sight. It’s the most disabling thing about being an amputee because we cannot control it.

Just two weekends ago I experienced one of my many episodes of phantom pain. I was fine when I woke on Sunday morning, enjoyed a few hours of “normalcy” then out of the blue, like lightning strikes, I was seized with a multitude of sharp, knife driving pains, in the bottom of my non-existent foot!

At first it was just startling and I was wracking my brain as to why it might be acting up. You see, for me, I know what things might cause me to have a flair up of pains from the activities of the day or night before, but not this day. Nothing I could have done would prepare me for this nor could I comprehend what had made these phantom pains come on.

As the day wore on these flashes of pain came more sudden and more often. They are so real feeling that my “foot” was getting sore from all the stabbing.

The prickles on the cactus and thorns on the tree remind me of the sharpness of my phantom pains

 

If that isn’t a mental attack on the brain I don’t know what is!

If you are an amputee you need to make sure you have a toolbox of info and memories to use as you navigate throu9gh each episode of phantom pains.

Join me today as I discuss what a toolbox is and how you create one.

Remember to be kind to yourself when these pains hit. They will try to crush you and break your spirit but you can and will get stronger with each experience. Just know that it’s ok to shut down for a while as your head tries to understand what’s happening to your body.

You are strong enough and you will make it through.

These episodes don’t last forever, and you will soar once again.

 

Be the warrior you were meant to be and rise up!

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

much love,

 

“Normal”

“Normal”

Don’t Be Normal, Just Be YOU!

 

A word I try very hard to stay away from using in dialogue is “Normal”, as in, “Is it normal that I haven’t healed yet?” or “Is it normal to feel this way?”, or even “Does my limb look normal to you?”

 

The reason I stay away from it is because we are all so very different that there cannot be a NORMAL, or Norm.

We all heal differently, we feel pain differently, we became amputees because of different reasons.

We are different sexes, ages, fitness levels, etc, etc, etc.

I say just be YOU!

Learn what your new “normal” is, and how that changes day to day or even hour to hour as an amputee. Only you can decide what doesn’t look or feel right for you and your circumstance. And when in doubt, don’t ask Social media, call your doctor or medical professional.

 

 

 

 

This week practice keeping “normal” out of your conversations and just listen and tune into your own body.

Accept that you are uniquely and wonderfully made and there is only one you and YOU are normal, for you!

Have a blessed couple of weeks as I will be off next week doing family time.

And as always,

Be Healthy,

Be Happy,

Be YOU!!

Much love,

 

 

 

Peace in the Waiting

Peace in the Waiting

Finding Patience Amidst Trials

 

Today, I want to share with you an important lesson I’ve been learning lately: the power of patience in the face of trials. Life has a funny way of throwing obstacles our way, testing our resilience and pushing us outside our comfort zones. But through it all, I’m discovering that cultivating patience can be a game-changer.
As an amputee, trials and challenges can be overwhelming, leaving us feeling frustrated, anxious, and stressed. But remember, every difficulty we go through is an opportunity for growth. Patience allows us to stay calm, focused, and determined, enabling us to find creative solutions and move forward with resilience. Embracing the challenges in our lives can be used as steppingstones towards personal growth, and better health.
In our fast-paced world, where we look for everything to be given to us instantly, having patience has become more of a lost art. We are constantly seeking instant gratification and quick results. However, true growth and transformation takes time and experience. Patience teaches us to appreciate the journey and find joy in the present moment. By shifting our focus from the destination to the process, we can savor the small victories along the way and celebrate our progress.
Today, I was reminded, yet again, that I need to learn patience, enjoy the moment, and be present. Sakari, my mare, was my teacher and today she gave me the gift of living in the moment. Normally, she would come right over to me to get our morning going, but today she took her time and slowly ate her hay. As she ate, I spent a few minutes wandering around, baking in the summer sun, feeling a bit impatient. But after I took stock in the moment, I saw the gift of just being there, watching her every move, and observing the world I was now a part of. This is where I find healing and reconnect with myself. I almost missed it!
Perhaps the most incredible aspect of patience is its ability to teach us valuable life lessons. It teaches us perseverance, empathy, and self-control. It encourages us to practice gratitude, mindfulness, and acceptance. By embracing patience, we become better equipped to handle future challenges and build stronger relationships with ourselves and others.
This week you need to address a problem you are facing.
Write it down and then write 3 things you CAN change about the circumstance, then write down 3 things you CANNOT change.
Now, using those lists, get to work on doing what you CAN do and letting go of what is out of your control.
Breathe, relax, and have faith.
I hope you found something that can help you through your trials and assist you in gaining patience.
Have a beautiful week,
And as always,
Be Healthy,
Be Happy,

Be YOU!!!

Much love,
Angie
Never Ending Challenges

Never Ending Challenges

When You Least Expect It

Just when you think you are in the clear. Or when you feel like you got it all together….Wham!!!

Yep, life sends you into a new challenge.

I am 4 1/2 years out from my amputation and into my 15th socket I go. However, even though it should have been a simple change as it was just a remake of the socket I was in (the plastic was giving away but still fit) we encountered complications.

Nothing major, but my valve wasn’t working properly for a couple of weeks, which meant I couldn’t wear it, and then once that got fixed the end of my residual limb seemed to be moving too much down inside of the socket, which was creating swelling, which in turn made it worse.

It was a snowball effect. One issue, led to another issue, which led to another issue.

Simple fix. Hmmm.

Ever have that happen to you?

How did you handle it?

What I can tell you is that after 4 years of wearing a prosthetic, I have become more attuned to my body and what feels right, and what I can and cannot handle. These are minor issues, indeed, but if you don’t have the experience (which only comes with time and observations as an amputee) then you may be prone to freaking out about the fit and worried that these issues could get worse and create bigger issues.

I remember the first time my residual limb swelled. I didn’t know what was happening, why it felt weird and hard, and freaked out that I was getting an infection. After all, I had heard of amputees getting infections years after their surgery! YIKES!!

Now that I understand what is happening with my limb, I know how to combat it and when to call my prosthetist for help and adjustments.

 

 

Experience is key, but I share this with you so you understand what can happen, even years later. That you need to build up your patience and knowledge so you can handle these odd moments, because they don’t just stop after the first year.

 

Don’t give up hope.

Try not to get frustrated, and make sure you make time to stop and breathe deeply.

Smile. It helps with your emotional state in the midst of problems, and don’t let fear strike you down. I understand that each new issue is delving into the unknown, but you will survive, and you will rise up again, and again, and again.

 

Remember, you are a Warrior!

Now go out and seize the day!

You are special, unique, and there is only one YOU in this whole, wide world!

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

Angie

 

 

 

 

Somebody’s Watching Me

Somebody’s Watching Me

….. And They’re Watching You, Too.

I know, that sounds creepy but it’s not what you think.  Did you know that you influence and impact more people daily than you realize?

As a parent I knew right away that my boys were watching me, my every move, even when it appeared that they were enthralled in a movie, game, or activity! They’d say something, or repeat me, or act the way I did. Wow! What an eye opener that was for me as a mom. Now as an amputee I am realizing that people are watching, every move feels like it’s being monitored.

At first you might think they are just being rude and it makes you feel uncomfortable, almost paralyzing, afraid of stumbling or looking weak and incapable; at least that’s how I felt.  Then I decided to make eye contact and smile….and you know what?  People started opening up!  They’d ask if it was rude to ask what happened, if I was a vet, if I’m comfortable in a prosthetic.  Some people would tell me about their journey and rough patches they were going through. Some even asked my thoughts on amputation because they were at that juncture in their own life.  I mean, wow!

Connection. Comradery. Compassion.

People are curious, they have questions and want to understand what it’s like to be an amputee and what makes us tick.

After my journey from injury to amputation, and now beyond, I feel it is my purpose, and obligation, to help others. If I have experiences that can help someone else through their trials then I need to share my experiences, good and bad. I have found that talking with others, sharing my story, my journey, not only gives them insight and a foundation to help them along their path, it also fills my bucket up, motivates me, and puts a spring in my step that day.

I love sharing my story with anyone who asks. I love showing curious children my leg and helping their parents understand that it’s ok for their children to be curious and ask questions.  I wished more amputees were so open, but the reality is that some are hurting inside, struggling to make sense of what they are going through, wondering if they can carry on.  If that’s you, I’m sorry you are going through that, but know you are not alone and you don’t have to be stuck in that mental space.

Break free from those mental and physical confines by sharing your experience, you’ll be surprised how healing that can be.  When you share your story, you let go of some of those hard emotions by allowing others to absorb them, listening to you, and validating your feelings and struggles.  And when they share their own struggles in reply you’ll realize you AREN’T alone after all, which is such a load off your heart.

I’m telling you, it is an AMAZING feeling to share your journey, your struggles, your successes with people who are strangers that become invested and lift you up with their words.

Embrace that you are different. Share your story, you may help someone along the way. I know you’ll be helping yourself when you do.

 

 

This week I challenge you to make eye contact, smile and see what relationships you create, and who’s lives you’ll touch with your story. It’s time to face the fears you have about your circumstance. It won’t be easy for some of you but I can tell you that I haven’t met a person who hasn’t made a difference in my life when I’ve made those connections.  I love telling people what I went through. I’m proud of the courage it took me to get here. I’m proud of how hard I’ve worked to get over being self-conscience, and how hard I’ve worked to achieve things some people never thought I could do as an amputee.  Be proud of your story and the scars you have, and share it with who ever is curious. You will feel liberated and find healing in opening up.

Get out there and be brave. Share your journey.  You have so much to offer this world.

As always:

Be Healthy,

Be Happy,

Be YOU!!

Much love,

Angie