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Head, Shoulders,…..Knees? and….Toes?

Head, Shoulders,…..Knees? and….Toes?

Physical Therapy After Amputation is Vitally Important to Your Success as an Amputee

My Tribe

 

Everyone needs a tribe. A group of people who are there for you, care about you, make you laugh when you want to cry and support all of your crazy ideas.  These are my people and I am so fortunate to have each and everyone of them in my life.  Some of them have been in my life since I was a teenager (my husband), others for the last few years, and others have been my medical team that have helped me through my journey into amputation. They have become friends, confidents, and the people I care about in my life. They’ve seen me at my worst, and they have watched me rise and been there watching and helping me achieve my goals. These people are priceless!

How many people can say that about their physical therapists? Some people curse those who put us through pain so we can heal, not me, they have only wanted to see me succeed…whatever it took. They never said it would be easy, but they never left my side. They worked with me, helping me get to where I wanted to go and, only then, began to let go, so I could soar.

I am excited for you to hear my interview with Dan and Kelly, the two PTs that got me up and walking in a prosthetic and running in my blade. They continued to work with me even when I got that crazed look in my eye and said, “Could we try….?” You name it, they did it. They stopped being surprised when I’d walk in saying I have something I’d like to do and just started asking what the new goal was. They continued to build my confidence and never backed down to my challenges I’d present to them.  They were my support system, and if they thought I could do it, then I could do it.

 

Relationships. It’s truly all about relationships. You see, I’m a relationship kinda girl. I love being around people, talking with people, and getting to know someone new.  My medical team is no different. The way they listen to me, hear my goals, dreams, and fears brings us closer, and we begin to work together and create a bond like no other. They have all seen me through some seriously hard times, but also the best of times. They have watched me shed tears of frustration and doubt, and laughter after accomplishing something big.

In this interview I talk with Dan and Kelly, from Touchstone Rehabilitation, about the importance of physical therapy, pre and post, amputation and how to find the right therapist for you. Not all therapist are the same, just like I said about prosthetists. Your therapist should have a ton of experience with amputees and listen to you and what’s important to you, never making you feel like what you want to accomplish is impossible- You want the therapist who wants to help you reach your goals, no matter the size.

Take a listen and take notes. Know that you have control over who you see and that you should feel confident and comfortable in their presence. Go with your gut and don’t settle. You deserve to find your tribe, too!

My “Surf Crew”- Mark, Mariah and Jovanni

 

Stopping by to say hi to the people who got you on track-it’s all about relationships!

 

This week I want you to get out and get active everyday! It doesn’t matter how long, just that you set a goal, and do it!

If you struggle walking in your prosthetic for more than a block then set a goal of walking a block. Once you do that then add another block, and continue to get out and move EVERYDAY! Don’t quit! Give yourself one week, to push yourself just a little bit more each day. At the end of the week you’ll be surprised how far you’ve come.  It takes time to build a positive habit, give yourself time to do just that.  Even after the week is up, continue, just use this week as your starting point. The sky’s the limit and you can do anything you put your mind to.

Reach out to me. Tell me how it’s going. Share your accomplishments, tell me your setback. We can do this together!!

I’m here for you!

 

Until next time:

Be Healthy,

Be Happy,

Be YOU!!

 

One foot in front of the other- that’s your starting point.
One Size Doesn’t Fit All

One Size Doesn’t Fit All

Not All Sockets (or Prosthetists) Are Made the Same

Randy West, myself, and David Banks

 

I consider myself so fortunate to have been directed to The Limb Center by my doctor, Dr. Judd Cummings, as I was planning for my amputation. And I think I am a good judge of character, so when I went in to meet Randy West and David Banks for the first time, pre-amputation, I knew I was getting the best care out there!

Fitting my running blade and trying it out for the first time

 

When I told Randy I wanted to surf and I brought him some surf leg plans he graciously went to work and built it for me,
just because he knew it was my dream!

 

Cheesy, but priceless, photo op with Randy, the Blue guy and my new surf leg!😎

 

They listened to me. They actually HEARD what I was telling them about my dreams, goals and aspirations….as well as my fears and doubts about going through with this surgery.

Not often, but in my situation, I was able to take my test socket out for a “test drive”

 

…and test drive it I did!! A 5K hike! It ended up being a great fit.

 

I had visited another prosthetist’s office before I knew of The Limb Center, and I had a pretty good experience there, too. I also met an amazing young lady who was an above knee amputee and a fighter, while I was there. However, three major factors first swayed me to Randy and David, before I really knew them. 1) They took my insurance- this is VERY important and the other office did not! 2) My doctor was very familiar with them and worked with them directly and, quite frankly, I trusted my surgeon and his opinion in this matter, and 3) David was an above knee amputee with 20+ years of experience being one. He could see things and understand an amputee better just by living it.

Amazing attention to detail, and always teaching me how to be independent,
by showing me how my prosthetic works and fits.

 

Then once I got to meet them and talk through my decision to amputate, I knew that we had a connection far greater than me being an office visit here and there. I had their cell phone numbers, could call or text whenever there was a problem, and time and again, they showed me that I mattered to them.

This is the type of relationship you should have and that you deserve with your prosthetist.

Randy and David join me in this podcast as we discuss the right “fit” in your relationship with your prosthetist, insurance and getting the right coverage, steps to getting your first socket, and when to turn around and walk out of that office and find the right relationship you need to be a healthy, happy amputee.  It can happen, but you need to push that for yourself and know when to do it.

Knowledge is power, and I want to arm you with as much knowledge as I can so you can feel confident and ready to advocate for yourself in the medical field, in your doctor appointments and when finding and working with your prosthetist. When we have knowledge, confidence, and opportunity we can access limitless possibilities in our lives.

 

 

People don’t realize that who you see for your prosthetics is so very important-it can make or break your desire and ability to really live your life after amputation, and it’s a relationship, like family.  You’ll be working with them for years to come so you’ll want to make sure you trust and enjoy working with them.

As always, if you have comments or questions, for me or our guests, please feel free to reach out to me. I’d be happy to help.

Time to do the research and leg work- no pun intended. Talk to people, find social media groups that work with amputees, reach out to the Amputee Coalition and your doctor to see who they recommend as a prosthetist for you.

Once you have found a couple, make an appointment to go talk with them. Read their body language and how they talk with you. Do they want to hear your history, problems, dreams and aspirations? If not, move on to the next appointment. You deserve better, and it’s out there!

Make sure you address insurance issues and coverage with the prosthetist’s office. This is expensive equipment and will need to be upgraded over time- remember, it isn’t growing back so we need to make sure we have some help in coverage of costs.

If you have a prosthetist that you are unhappy with, and they don’t seem to listen or invest any more than your short office visit then you really need to find the courage and tell them it’s not working. If you are seeing someone who,  when you tell them you’re hurting or something doesn’t feel right, and they tell you that it doesn’t get any better and you need to deal with it…that’s a red flag! Time to research other places and prosthetists and find someone who can help.

This is YOUR life and YOUR body. You need to push for the best care so you can live it to the fullest. Don’t be afraid to stand up for your rights. I’m telling you, there are really good practitioners out there, you just need to look and ask the right questions to find them.

I wish you all well, and please don’t hesitate to reach out to me for help.

 

Until next time:

Be Healthy,

Be Happy,

Be YOU

“We cannot change the cards we are dealt, just how we play the game.”

-Randy Pausch

 

Facing Fears, Overcoming Obstacles

Facing Fears, Overcoming Obstacles

What’s Holding You Back?What if I told you that you can overcome your fears. What if I told you that you could rise above your circumstances and that they do NOT define you?

You need to hear Mike’s story, but not just what happened to him, listen to how he speaks about it. Listen to his message of the hope, and how he looked toward his future and NOT his past. Hear his heart and about the faith he had that this was all part of a bigger plan. We could all learn a thing or two from his approach to living a full and rewarding life and how his positivity and mindset might be just what you need to be inspired to make the most of your circumstances.

I met Mike while we were in Kauai on vacation a couple of years ago. I didn’t know his story before meeting him but was intrigued to hear that he lost his leg in a shark attack and went right back to surfing.  Talk about facing fears! Wow! I find his story inspiring, not just because he went back to surfing but because he took a life changing event and made the most of it. To become a shark advocate and to be face to face with them so he could photograph them and show the world what beauty lies within these ancient creatures is, to me, the ultimate sign of courage and strength.

What I realized after talking with Mike, in depth, is that we ALL have that capability inside of us. We can all make the choice to see the positive in any situation. We can get knocked down a hundred times but rise 101 times. We control the power within ourselves to be great and live a full and meaningful life, no matter what hand we are dealt.

Mike and I meeting for the first time in Kilauea, Kauai

 

I really hope you hear the message Mike presents in our interview, and understand that it’s possible to find happiness in tragedy, hope when you feel hopeless, and success in overcoming fear. You can do this! You are strong enough and you have a story to share with others. Through your fight and your journey, you, too, can and will inspire.

 

Call to Action:

Decide if you are playing the victim and throwing a pity party because life didn’t deal you the hand you think you deserve or are you looking at that circumstances as a way to rise to the challenge and going to make the best of it.

Then decide if you want to make a change and start living your life.

If you are choosing to take back control of your life, what do you need to make this happen?

Do you need to change your thinking? Then start by seeing the positive- I try to remember that I am lucky to be alive and healthy and can now do the things I couldn’t do just 2 years ago. I also realize that there are people in worse situations than I am and that I should have a a heart of gratitude.

Do you need help? Reach out to a family member, a friend, a close co-worker or find a support group. Sometimes it’s just plain tough to go it alone and a healthy, open relationship is just what you need. Be honest with yourself and your family about how you’re feeling. Sometimes just talking through your feelings will release your anxiety and allow you to grow.

Once you figure out what’s holding you back you can begin to move forward and make the necessary changes to improve your outlook on your life, and begin to have a positive, healthy mindset that will translate to a more profitable lifestyle for you and those around you.

This week I want you to work on your thinking and how you perceive your life. Be positive, upbeat, lose the negativity and smile. The simple act of smiling increases the release of endorphins and serotonin- a pain reliever and antidepressant, respectively. Try it!

I want to see you soar! I want to see you live a healthy, full and wonderful life. It’s there for the making.

 

Next week join me as I speak with Dr. Judd Cummings, the Orthopedic surgeon who performed my amputation and helped me get my life back.

Until next time:

Be Healthy,

Be Happy,

Be YOU!

 

 

 

Being Comfortable With Being Uncomfortable

Being Comfortable With Being Uncomfortable

Using Fear to Grow and Overcome Obstacles

What holds you back from accomplishing your goals, your dreams?

What stops you from moving forward, creating anxiety within you?

If you are crippled by fear and can’t seem to move forward in pursuing your goals just know you are not alone.  Everyone has some sort of fear: fear of failure, fear of acceptance, fear of being alone or in pain. The issue is never about whether you have a fear or not, it’s about how much it controls your life.

I use to tell my sons, when they were little, that it was ok to have fears, as long as it doesn’t control you or stop you from being healthy, happy and living your life.  Fear is defined by Merriam-Webster as an unpleasant often strong emotion caused by anticipation or awareness of danger; anxious concern. Fear is the most general term and implies anxiety and usually a loss of courage.  Sometimes fear is defined as a distressing emotion aroused by impending danger or pain, whether the threat is real or imagined.

For most of us, we experience fear based on past, unpleasant experiences. It makes sense. If I went rock climbing a year ago and my foot slipped and I went sliding down the face of the rock, scrapping up my body, I might instantly feel anxiety well up inside of me when a friend suggests we go rock climbing today. As adults, we tend to hold onto past experiences, good and bad, and file those moments away, only to have them resurface when we perceive that we are walking into a similar situation.

However, this only becomes a problem when it creates a roadblock in our living. If we allow that fear, that anxiety, to stop us from experiencing life, then we’ve allowed it to define us.

Once we realize that fear is just a part of human nature then we can learn from it, and dare I say, use it as a tool to help us grow and actually enjoy new experiences. We don’t grow in our comfort zones, we grow when we get pushed  into uncomfortable situations. It forces us to improvise, it heightens our alertness and makes us aware of our limits, helping us to push our minds and bodies into new, unchartered territories.

This is how I have felt since becoming an amputee. Each day I feel that there is something that makes me become more alert, anxious, or even fearful. When I first learned to walk in my prosthetic I worried about falling and hurting myself, or making myself look foolish in public. Then as I got better at walking I tried to run. I’d put on my running blade, but would only go out at night so no one could see me stumble, look awkward, or stare at me. Fear of not being good enough stopped me from getting out in daylight, when it was safer and easier to see the road. I eventually got past that enough to go out earlier, but I still felt uncomfortable. Each day would bring it’s own set of issues, anxiety and discomfort. I tried a lot of new things like sled hockey and surfing, for the first time as an amputee. And each one of these was a test of my fortitude on pushing past my own insecurities. I am a perfectionist and very competitive with myself and others.

If you can do it, so can I.

If you tell me I can’t because I’m missing a leg, I’ll show you that I can. (That might actually be the stubbornness in me).

Skiing in Colorado March 2021

 

In today’s podcast I share with you my journey at getting back to skiing and how fear of falling takes away from the experience. I want to enjoy skiing again. To be outside, breathing in the fresh air, getting exercise and making a connection with my family.

So what do you do when fear takes hold? How do you push past discomfort and really start living your life?  It’s a mindset. It’s positive self-talk, your own personal pep-talks.  It’s about goal setting.

This goes back to the vision boards I talked about in the last episode. If you didn’t hear that podcast you can take a listen here

My vision board

A vision board is a place to put your dreams, goals, positive messages. Once you’ve created it you will have a place to go to keep yourself motivated. When you start to worry or doubt yourself or your capabilities, look to your vision board. You also need to remember that goals take time, and the bigger the goal the more grace you need to have with yourself and the setbacks that may occur. I remind myself, daily, that baby steps are still steps.

When we went skiing this past week, my first day on the slopes wasn’t my best. I just wasn’t feeling it, my movements were tense and unsure. We didn’t ski again until the end of the week, and quite frankly I couldn’t help but worry that I was going to feel the same way as before. Part of me would have been content with not skiing again….but I decided to push myself into uncomfortableness and try again, and you know what? I had a great day of skiing! I relaxed, worked on breathing, remembered some techniques I had been taught by my adaptive ski instructors from the previous year and enjoyed my day (and yes, I even talked to myself, affirming my skills and capabilities as a skier). When all was said and done, I was grateful I pushed myself out of my comfort zone that day. I wiped away the negative memories of the first day of skiing and replaced them with healthy, positive ones. The funny thing about that, I am the only one who saw my progress, because it was internal. It was the way I felt out there and how I moved from being uncomfortable to comfortable. This was MY victory. I conquered my fears and came out on top.

You need to remember that you CAN do anything. You set your goals, you speak and write affirming words to motivate and push yourself forward, you surround yourself with a tribe of people who can support you-mentally, emotionally, physically.

It may not be easy, but you can accomplish your goals, and when you do, when you learn to be comfortable with being uncomfortable, it’ll be then that you will truly be living your best life. And nothing will be able to stop you.

Call to Action:

This week, write down a fear you have. Something you want to conquer. Decide on the goal and the steps you’ll need to take to get to that goal. Add the desired outcome to your vision board or tape it on the mirror in your bathroom, somewhere you can see it everyday, someplace that will be a constant reminder of what you want to accomplish. Now go for it!! Reminder: some days will be better than others (remember my first day of skiing was the pits) but don’t give up. I challenge you to enjoy the journey, with its ups and downs. Get after it, have grace with yourself. If you take a step backward, don’t GIVE up- GET up, and attack it again. You can do this!!

Finally, lean on someone. Ask for accountability and support from someone you trust. If you struggle with that, reach out to me, let me help you.

Make sure you let me know how you’re doing.

Tell me what your goals and dreams are in the comments below, or email me. I’d love to hear about your journey. I’m here.

Best wishes on conquering your fear(s).

Speaking of conquering fears, next week I have a special guest. My friend, Mike Coots, joins me from Kauai, HI. He is an amazing photographer, shark advocate, surfer, and an amputee who lost his leg in a shark attack! Be sure to subscribe so you don’t miss it!

Until next time:

Be Healthy,

Be Happy,

Be YOU!

A Vision of Hope

A Vision of Hope

Creating a vision board when times get toughLife is a journey. Embrace it.

It has ups and downs. Be prepared for it.

“Fall Down Seven Times, Stand Up Eight”-Chinese Proverb

You are not alone in these two certain facts but we need to be able to cope and heal and thrive when times get hard. That’s when your mental and emotional game need to prove their worth. Like strength training, or the runner training for a marathon, learning to cope with adversity is something you need to prepare for and train for. Training comes when you are in the midst of it and what mindset and attitude you take into your storm. If you prepare for it and acknowledge what could come your way then you are helping yourself by preparing your mindset to thrive through the hard times and even come out on top. I’m not saying you won’t get beat up, battered and bruised through some of these valleys, even trained runners can get cramps and blisters, right? The difference is when you understand that life works with highs and lows then you won’t feel like you’ve been punched in the gut when it happens and you’ll also have a healthier train of thought that assists you when you get knocked down.

And when you get knocked down you will be able to fight to stand again, and again, and again!

Will there be harder days? Days where you struggle to get back up? Of course, everyone has those moments, so we rely on the people in our circle to help, and we learn about ourselves, and make adjustments for the next moment.

I don’t live on those harder days, I don’t dwell on them, but I don’t ignore them and pretend they won’t happen or, even worse, pretend that I’ve never had any hard days. That would be fake, ingenuine and that is unhealthy for me.

I own every circumstance I’ve been through. I tell people about them so they don’t feel alone. My goal isn’t to be perfect, just to be transparent, in the hopes it will help someone overcome their own struggles.

Listen to today’s episode to see where my journey has gone the past week to see a struggle I’m in the midst of right now and what I’m doing to cope and come out on top again.

Call to Action

Make your own Vision Board. I have pictures of mine above and below. I discuss how to create one in this episode as well. Please feel free to reach out to me with questions or to share the vision board you created. I’d love to see them and hear how they have helped you.

Enjoy the journey-the highs and lows, because without the lows we cannot appreciate the highs.

Until next time;

Be Healthy

Be Happy

Be YOU!

Empowered, Active Lifestyle with Levitate

Empowered, Active Lifestyle with Levitate

About 2 weeks ago I reached out to Levitate on Instagram searching for someone who appeared to have mastered using a running blade. I had been out of my blade for over a year between socket adjustments, nerve pain and surgery. I was ready to try again now that the stars had all aligned but I knew that I need some tips and tricks to start moving again.

Enter Levitate.

I reached out to them in a DM on Instagram and they wrote back with 30 minutes! I just asked if they had some wisdom on getting me to trust my blade once again and how I could strengthen my residual limb. They sent me a video of a few exercises to start with and we got into a discussion about their company. Their mission was simple yet profound. They strive to create quality sports blades that the average person could afford, while empowering them to become active and healthy in a community that supports one another!!

WOW!!! I knew, right then and there, that they had to be a guest on my podcast and soon! I have heard from so many amputees about how they would love to get a running blade (or sports blade) but just couldn’t afford one. I felt that this company would be the answer to so many prayers and wanted to help them grow. They are located in Copenhagen, Denmark and wanted to get more following in the United States so getting their name out there was important, but making sure their mission was heard, by as many people as possible, was vital. I think they have something great and I want everyone to have a chance to be a part of this, empowering the amputee community to have the lifestyle they would like to have, to have a choice NOT dictated by price.

I hope you feel as excited and inspired as I am by what they are doing and what they are about.

Now is the time to live your best life.

The choice is yours, thanks to Levitate!!

Check them out on Instagram: @Levitate.sport or at www.letslevitate.com

Embracing Vulnerability

Embracing Vulnerability

Wow! What an experience I had! To think that I felt totally at peace and right with my amputation, yet coming to terms with it, through a horse, and finding that I had some deeper fears that I wasn’t allowing myself to show-like it was a sign of weakness instead of courage! It was such a profound moment for me, one that I won’t be forgetting any time soon.

I am in awe of the grace and yet strength and connectiveness of horses to the people around them. It’s like they have a 6th sense to detect what we would otherwise ignore or try to hide.  They live in the moment and expect the people they come in contact with to do the same. I will be forever changed because of this experience and I am grateful that Cherokee taught me a hard, but valuable lesson, about myself.

Listen in the hear my story of the time a horse taught me to let go.

Me with Cherokee- The horse that forced me to open up and be honest with myself
Never Quit, Never Surrender!

Never Quit, Never Surrender!

No matter what I went through those 3+ years prior to amputation, Dr. Shaun Palmer never gave up on me or my hope…nor did I! I was going to walk again! I was going to get better, whatever it took! In this episode I chat with my PT that I saw from my knee revision surgery through amputation. You’ll get to hear his side of my journey and how he adapted my therapy to fit where I was physically and mentally. I want to show you what is possible when you advocate for yourself in the medical world, and what kind of relationships you can build with the right mindset. Unleash the warrior inside of you! Fight for your health! Bring your hopes, dreams and positivity to your provider so they can best serve you.

Dr. Palmer is also a co-host on the Doc Doc Goose Podcast (DDG Podcast) that you should check out for great information and entertainment.

Be sure to subscribe to Be-YOU-tiful Adaptive Warrior Podcast so you don’t miss an episode. I have big things in the works and some very special guests lined up. Check my Instagram account for updates as well: @BAWarrior360 and @angie_heuser and some upcoming Live Interviews with some amazing people.

Until next time, Be healthy, Be happy, Be YOU!