Tag: atrophy

Changes and Challenges

Changes and Challenges

By |

Podcast: Play in new window | Download (Duration: 27:25 — 29.2MB)

Subscribe: Apple Podcasts | RSS | More

New Socket and What To Expect

 

 

Here we go again!

Last week I told you all about a huge blister that formed in my socket on the end of my residual limb, well, after talking to my prosthetist about that and a few other things that I was ignoring, he decided that it was time to make a new socket!

 

UGH!!

 

Where great sockets are made!!

 

Randy West and I getting ready to make a mess!

 

Cast is made!

 

 

I know what you’re thinking. “That’s great! You’ll have a better fit than what you have now”, and that is true, however, the idea of going through the casting and fitting process, then a week of walking around in a hard plastic shell test socket isn’t fun and then after it’s all created there is a “breaking in”period that can last up to another week. All the while you are hoping that the changes move you in the right direction.

 

My current socket being used to remake the original mold

 

 

All in all, it will be better (or at least that is the hope). My guys do an amazing job of getting me the best fit, they are incredible at what they do, and I am blessed to have them in my corner. It’s just that it is such a long and, at times, painful process that brings discomfort before it brings joy.

So I am going this week to be recast and will create a video of the process for you to see.

I bring this up for a couple of reasons.

  1. This is my life, and my podcast is about my personal journey,  that I can speak to.
  2. It’s important to note that even though I’m through the harder years of fitting my prosthesis, there will still be changes that happen down the road, and being an amputee has ever-changing challenges and struggles.

I’m excited, for sure, to get a new fitting socket and the idea of recreating my external design has me giddy. I love remaking my look.

But I am a realist as well, and I know what I am about to embark on is a process that takes time, perseverance, and grit to get through. I know what’s coming and I know it can be unpleasant at times, but I also know it will help me get the most intimate fit ever and it’s important to my livelihood.

 

I will keep you posted on social media on how it’s going. Make sure you check out my IG and/or my Facebook page @BAWarrior360 for updates.

 

 

I would tell you to continue to communicate with your prosthetist as your limb matures and when you notice things “happening” with the fit, even minor changes, that you should let them know before you get a blister like mine, or worse!

I am fortunate that I don’t develop infections like some people do, but this one could’ve been bad for a person with a high infection rate.

Be vigilant with your life, your fit, and your comfort. If things don’t feel right, please make sure you reach out to your team.

It’s better to be safe than sorry and laid up for weeks because you “pushed” through something you shouldn’t have.

Also, remember that your limb and your body are constantly changing, no matter how long you’ve been an amputee. Don’t think that you are ___ years out and you won’t see any more changes. I’m almost 6 years out and I’m heading in for a new socket because of fit, not damage to my socket.

Our bodies are always changing and fluctuating, take note, and be vigilant when you notice something look or feel different.

 

I hope you have an amazing week and until next time,

And as always,

B e Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

Choose to Shine!

 

In The Beginning

In The Beginning

By |

Podcast: Play in new window | Download (Duration: 32:17 — 33.5MB)

Subscribe: Apple Podcasts | RSS | More

What to Expect as a New Amputee

 

As with anything new there is a learning curve. Becoming an amputee is no different. However, since few people know of anyone that’s an amputee before they, themselves, become one, there are so many questions without answers.

It seems overwhelming, confusing and quite scary.

Have no fear, even though each one of us is very different as we deal with our own amputation, we also have many similar benchmarks or stages we go through.

First thing you need to know is that you will get through this and you are going to do great. If you can embrace that mindset, a mindset of positivity, then you are already on your way to bringing that to fruition.

I believe in manifesting my own destiny and I have deep faith in my purpose and that the journey I am on was set before me by a higher power.

Speak positive and empowering words to yourself, and you will manifest positive and empowering outcomes.

After your surgery you will have time to adjust to your new body image and center of gravity, time to rest and heal, and time to prepare for what’s to come. At this point it’s a great idea to focus on getting some core strength back and balance. These things you can work on as you wait for the fitting process.

Me trying on my very first socket (L) and me a couple sockets later (R). See the weight change?

 

Adjustments are always being made, even when the socket feels right the leg direction can be off (too far forward leaning, not adducted enough). These things depend on your type of amputation and your hip alignment.

 

I’ve been fortunate enough to take my “test socket” home and work out in it to make sure it is made to withstand the riggers of my activity levels.

 

Here’s how my guy, Randy, creates my sockets. He casts my residual limb.

 

Once you’ve been given the green light by your surgeon that you are ready to be fitted for your prosthesis then you will head to your prosthetist’s office, discuss your goals, dreams, activity levels and where you want to be and where you see yourself in the future. This will help them fit you correctly and get you the best prosthesis for you and your goals.

Your prosthetist will create a “test socket” for you-this could take a couple of weeks- and then you will go in, try it on, walk around in it and they will adjust it for a more comfortable fit, then off you go with your brand new leg.

PT should begin at this point, if you haven’t already been working with one to gain core strength and balance.

I know this can be scary and you might feel apprehensive at first but remember, they want to help you succeed at walking and using your prosthesis correctly so you don’t hurt yourself.

Communicate with them, let them know what feels good and doesn’t feel good, what scares you, what you don’t understand, and what you want to be able to do. Discuss your dreams and goals with them.

Now as you start using your new leg you will start noticing changes in your volume of your leg. The more you start doing life again the more your volume of your residual limb will change and then you run into the frustrating aspect of being an amputee, the socket fit.

You can literally get a brand new socket made to fit your leg perfectly and the very next day it won’t feel as snug. You’ll start to add socks on top of your liner, one after the next, just to accommodate your leg shrinking in size. The more socks you use the less connected you will feel and then you won’t trust your prosthesis to stay in place and behave the way it should.

But don’t worry, your prosthetist will be taking measurements and once those measurements align with your insurance company’s guidelines you can be fitted for a new socket.

The problem?

It is the whole process all over again!

You get a new casting of your limb (some cast, some use digital renderings, just depends on what they like to use), they create a new “test socket” and adjust it to fit nice and snug. Next they create a new final socket and you go back in, try it on, walk around, make adjustments and then you’re on your way…..until this one begins to fit poorly.

The reality: the first 2-3 years are a series of nicely fitting socket, loosening, refitting, recreating, and then all over again.

I, myself, went through 16 sockets in the first 3 years!

The sooner you know and understand this sequence of events, the better it is for you to mentally grasp the journey so these moments don’t gut punch you and make you feel like a failure, or that you’re doing something wrong, or that this is heading down an irreversible path.

Embrace this journey.  It is unique and challenging, but you will learn so much about yourself and build so much character, and experience, so quickly.

No one has the same experiences as they become an amputee but this is a basic outline of some pretty typical moments you will see to some degree.

Just remember you are stronger than you think and you will make it through this.

 

 

Plain and simple, this week I want you to face those fears.

I know you and see you. You are getting ready to head into your first physical therapy and have no idea how you will manage. You are worried you won’t be able to tolerate the leg, that you aren’t strong enough or even brave enough for this life….but you are!

As I tell myself when I encounter something that puts fear into my heart and doubt into my brain, “One step at a time, Ang”.

I can do anything, one step at a time.

One Step At A Time. Yes, that can be a metaphor, but I mean it literally.

You will NOT be asked to do stairs on your first day of PT, nor will they ask you to try running.

Baby steps is how you start. Just as a small child learns to crawl before they stand, stand before they walk, and walk before they run, you too, will go through these sort of “baby steps”. You are doing something for the first time. It takes, strength, balance, mobility, and practice to get it right, and even then you still won’t have it down. I still catch myself not walking with a good gait and making corrections. That’s ok, it takes time.

Enjoy the journey.

Embrace what scares you and make the most of these moments.

You can do this, look how far you’ve already come!

 

Have a blessed week and get after it!

Rise up, Warrior, rise up!

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

The First 3 Years

The First 3 Years

By |

Podcast: Play in new window | Download (Duration: 39:13 — 35.3MB)

Subscribe: Apple Podcasts | RSS | More

Finding Hope after Amputation

 

No one really tells you what to expect after amputation, and quite frankly, even if they did, each journey is different.

The reality is that the first couple of years are filled with bumps, bruises, ups and downs. You will have highs and some of your lowest lows. There will be enormous changes, in your life, and in your body. And even when you finally get through the healing process, post-amputation, the challenges are just beginning. But with all that said, you can and will survive.

You spend A LOT of time in your prosthetist’s office the first 2 years

 

My very 1st prosthetic, one of many. Had no idea what was to come. All I knew was that I would be walking again!

 

Yet another socket!

 

Randy at The Limb Center in Phoenix, making my mold, for ( you guessed it) ANOTHER socket!

 

You will learn how your body adjusts, how it heals, what kind of strength (both physically and emotionally) you have, and you will build character…. oh boy, will you build character.

 

These are all the sockets (minus 3) that I have gone through, because of changes to my limb, in just 3 years!!!

 

The process is long and can be stressful if you don’t have patience. You will find yourself doing well one moment, only to feel like you’ve taken a step back in the blink of the eye. But don’t you give up! And don’t you worry. This is all part of the learning process and the changes you are going through, physically. Becoming an amputee and traversing the first 1-3 years is all about adaptability and change. If you can go into it knowing it is a process that could take that long, and that you will have positive moments of moving forward, riddled with backward steps, then you will be ready and able to handle what gets thrown at you.

You are a warrior, built for adversity.

Be strong.

Stay positive and active.

This is the to fight for what you want out of life.

We are in this journey together!

 

 

This week I want you to decide what it is that you really want out of your new life.

You will want to start building your own toolbox for those moments that become hard and emotionally draining.

I have so many hobbies, and things I do to pass the time, and to distract myself on the harder days, the days where phantom pains want to destroy me and my resolve.

What do you do when you get upset? Tired and frustrated? Or when you are hurting?

Most of us have a coping mechanism to help through those moments in life. This time is no different.

Be prepared to redirect your thoughts so you can get through and come out stronger on the other side.

Prepare yourself for battle; the internal battles that seek to bring chaos into y9ur life, making you doubt yourself and trying to destroy every dream you have. You are a WARRIOR! Believe it! You will succeed and be stronger for it.

Be prepared.

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

Meta

Archives

Categories