Tag: amputee lifestyle

Picking Apart Phantom Pain

Picking Apart Phantom Pain

The Real Mental Side of Phantom Pain

 

Ok, let’s talk about Pain. Not just any pain, but the “real” phantom pain.

It comes on without warning.

It can destroy our mood, our productivity, and our confidence.

When it does happen, and for amputees we will all have the pleasure of experiencing it at some point on our journey, it’s enough to cause us to doubt we will ever be able to function again because we can’t see an end to it in sight. It’s the most disabling thing about being an amputee because we cannot control it.

Just two weekends ago I experienced one of my many episodes of phantom pain. I was fine when I woke on Sunday morning, enjoyed a few hours of “normalcy” then out of the blue, like lightning strikes, I was seized with a multitude of sharp, knife driving pains, in the bottom of my non-existent foot!

At first it was just startling and I was wracking my brain as to why it might be acting up. You see, for me, I know what things might cause me to have a flair up of pains from the activities of the day or night before, but not this day. Nothing I could have done would prepare me for this nor could I comprehend what had made these phantom pains come on.

As the day wore on these flashes of pain came more sudden and more often. They are so real feeling that my “foot” was getting sore from all the stabbing.

The prickles on the cactus and thorns on the tree remind me of the sharpness of my phantom pains

 

If that isn’t a mental attack on the brain I don’t know what is!

If you are an amputee you need to make sure you have a toolbox of info and memories to use as you navigate throu9gh each episode of phantom pains.

Join me today as I discuss what a toolbox is and how you create one.

Remember to be kind to yourself when these pains hit. They will try to crush you and break your spirit but you can and will get stronger with each experience. Just know that it’s ok to shut down for a while as your head tries to understand what’s happening to your body.

You are strong enough and you will make it through.

These episodes don’t last forever, and you will soar once again.

 

Be the warrior you were meant to be and rise up!

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

much love,

 

Dress For Success

Dress For Success

An Equine Analogy For Your Motivation

 

 

You must look the part.

You need to rise up, clean up, and organize yourself if you want to achieve and succeed.

Trust me I know!

Today I found myself entranced on how much time I spend with my horses grooming them.

Why do we do that? Why do we spend so much time brushing them, wiping their faces down, conditioning their mane and tidying them up? It’s not like my horses are heading out on the town nor are they saddled and transported where others will see them… then why?

 

Getting in the Christmas Spirit last year

 

I’ll tell you why, because that keeps them looking kept and neat. It keeps them healthy and clean. I brush them, I wash them, I wipe out their nostrils and eye ducts, I clean out their hooves, all in the name of health. We need to do the same, especially when we aren’t feeling great. When we are down and out, our health depends on it, our outlook on life depends on it, and ultimately our success depends on it. It’s so easy to take the road less traveled when we are hurting and not at our best. When life throws us curveballs and tries to take us down that’s when we need to fight harder, rise quicker, and move forward. When we get wrapped up in negativity and cave to the easy path, or path of least resistance, we tend to let oursleves go, let our homes go and stop really living. That’s when we allow life to pass us by, while we wait for something better to happen to us or for us, for our situation to resolve itself. However, that’s not living life, that’s giving up and hoping things work out.

We need to rise up each day and prepare for life. We need to clean ourselves up, we need to make our bad, we need to get out and MAKE life happen! We all have issues. We will all have problems that arise, but the ones who succeed adjust and fight for what they want. The ones who succeed are the ones who dress for success, each and every day, despite what’s happening, despite the pain and frustrations they are going through. How about you? Are you “dressing” for success each day? Are you preparing for good to happen? That is the key.

I clean my horses up every single day so they are clean, healthy, and happy. When they get the grooming they need they can then attack the day with confidence and pride. Shouldn’t you be the same, if not more motivated to do so?

You are a warrior. Warriors plan for success and it starts with your physical appearance, at the very least. Start there and see where it takes you in life. You might be surprised.

So warriors, rise up and take on the day! You deserve that!

 

 

This week, take care of yourself, starting with your appearance-your physical self. Get up, get ready for the day, make your bed, and go do something.

Be active in your life.

Make life happen FOR you, not TO you.

Stop waiting for right time, the next day, or when you’ll feel better.  Sometimes we need to just start something positive and good with the simple act of looking “put together”, ready to tackle the day. That is your challenge this week.

Go get after life! You’ll be so glad you did!

 

Be an active

As always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

 

Connect

Connect

How Connecting Helps Everyone

 

It can be so easy to get lost in our own world. We can be so focused on our problems and issues that we can feel isolated and alone in a crowded room.

The problem is, even when we aren’t really alone, we get lost in the darkness and can’t find our way out.

We forget that as humans we need connections to survive in the world. We need to be heard, seen, and touched throughout the day, even if we are introverted.

It is part of our DNA and makes us feel whole, loved, appreciated, and a part of something bigger.

 

 

We often get into a victim mentality or sink so low that we can’t find our way out of the problems and issues that we are facing that we can bring those around us down as well, and often see people leave us and don’t know why.

So what can be done to remedy this mindset?

CONNECT!!!

 

I find that when I take the microscope off of me; my life, my setbacks, and my issues and turn them into reaching out and helping others, I forget my problems and find peace, joy and happiness.

I find that making connections with others through texting, calling, video chatting or hanging out places my focus and attention on them which, in turn, gets reciprocated back to me and it becomes a win-win situation. We weren’t meant to go through life alone.

 

 

We all need to feel loved and heard, but sometimes we need to be the one who reaches out first.

When we value someone else’s life, we find our value.

As humans we are meant to live in community, not alone and isolated.

So if you are struggling now and feel alone, make a connection with someone. When you do, you will be able to step out of your darkness, become the light for someone else, and find you’re not alone after all.

Mind over matter, because mindset DOES matter.

 

This week I want you to connect with someone.

Find someone you know is having a rough time, like you. Or someone you haven’t talked with in a while.

Check in on them, and let them know you were thinking of them.

Maybe a neighbor could use a visit.

Or a relative needs to hear your voice over the phone.

Maybe a friend, who appears to have it all together, is struggling but won’t reach out (because they, too, feel alone).

Who ever you choose to connect with, be as close as you can, meaning if you can physically visit them and give them a hug, DO IT!

But if not be engaged in a conversation with them. Be an active listener, drop everything you are doing and be present. Give them all of you for that time you have together.

Everyone wants to feel valued, heard, and loved. That starts with YOU!

When you connect with someone, you will notice a shift in your own mindset and heart. You’ll get out of your own way and begin to see your life through a positive lense.

Life isn’t easy, that’s for sure, but remember, you are not the only one who is struggling right now.

Rise up and be that connection for someone and feel it reverberate back to you.

 

Get out and connect and have a blessed week!

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

 

 

 

Love Is In the Air

Love Is In the Air

Self-Love for the Win

“Love yourself first and everything else falls into line.”

                                                                                                          -Lucille Ball

 

 

This Valentine’s Day start with YOU!!

To love oneself isn’t selfish, it’s necessary.

It’s necessary for your mental health.

It’s necessary for your productivity.

It’s necessary for you to be able to love others, fully.

Have you ever truly listened to your inner voice? Pay attention, because what you say to yourself is crucial to your love and success in life.

We can be so critical of ourselves and fall into the trap of negativity that we can’t even realize our true potential. We compare ourselves to others, and we begin to doubt our abilities, our size, our beauty, our intentions, our very existence.

We are constantly bombarded with everyone’s successes and filtered pictures, great vacations and good deeds in the snapshots of social media that we lose sight of our own beauty (inside and out) and our worth in this world.

You are unique!

There is only one ‘you’ and you should be celebrated.

You are worthy, beautiful, a warrior, and special.

You must first find, within yourself, the joy of self-love before you can truly find joy in life. However, this does not come easy and can change and challenge you daily.

Are you listening? What are you saying to yourself? Is your self-talk positive or are you speaking negatively?

As an amputee, and being a part of this unique community, I can see first-hand how I could be negative and self-loathing. The world tells me that my body image is suppose to look a certain way, and I no longer conform to what is “acceptable”. Talk about a hard, internal battle. I stand in a grocery line only to see a size 2 woman on the cover of every magazine, looking gorgeous and happy. I don’t look like them, and I never will again.

I must fight the urge to compare myself, and fight to be positive about who I am, inside and out. This takes practice, perseverance, and fearlessness.

This Valentine’s Day I challenge you to love yourself FIRST! Find joy in who you are, how you were made, and believe that you are enough, JUST the way you are.

Valentine’s Day, this year, start with you….for the win!

 

Wake up and feel the breathe in your lungs.

You have a purpose!

Today, and this week, figure out what your purpose is and start by loving yourself. Love the good you can do and the good you can put out into this world.

When you love yourself you will find that you can be a light, bringing happiness and hope to those who are lost.

Listen to your inner voice and decide if you hear positivity being spoken. If not, it’s time to switch that up.

Begin with telling yourself:

“I am beautiful/handsome”

“I am strong”

“I am worthy”

“I have value”

“I am smart”

“I am compassionate”

“I am funny”

“I am kind”

“I am fearless”

“I am a Warrior”

“I am ENOUGH!”

Write these words down. Speak these words out loud when you need to hear them.

Find your strength and self-worth from within and not from the world around you.

You ARE enough! Believe it, and begin this Valentine’s Day by loving yourself first and watch how your life changes for the better.

Rise up, Warrior, and know you are loved!

 

Until next week, and as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

 

 

 

Insurance Games

Insurance Games

Playing To Win; Playing For Your Future

 

Dealing with insurance can be tricky and often frustrating. I speak from experience.

It’s unfortunate that insurance companies make it so hard to understand the ins and outs of their policies as well as getting approvals especially since those who are trying to get covered are often going through really tough emotional times.

As I got myself prepared for my amputation I was doing everything to prepare myself, mentally, emotionally, physically, and financially seeing as this would be a forever life changing surgery.

My experience was not smooth, nor was it kind, but I figured out how to handle my situation, found my voice, and fought for what was right and what I needed.

Join me this week as I take you on my journey with the games that insurance companies play, and how you can play and beat them at their own game.

 

This is what I fought to get……

 

So I can do this….

 

…And this

 

….And this

 

…And this.

 

 

 

 

 

 

What are you fighting for? And if you’re not fighting for what you want, then who will???

 

Randy and David at The Limb Center and also Limbs For Humanity

 

 

This week, if you are in the middle of a big decision that takes medical insurance, make sure you do your homework and get confirmation about what is covered.

If you have been told “No” by your insurance company then it’s time to fight for what you want and need.

We must fight for ourselves, because only we know exactly what we need and want to make our lives worth living.

Help yourself by fighting for your future. Don’t give up, and don’t take “No” for an answer!

You are a warrior and you are WORTH IT!!

 

Have a blessed week and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

Life is a Journey

Life is a Journey

Stay the Course and Press On

 

This is the year. Embrace the journey and get your mindset right!

We started our year with a new puppy. I had forgotten how hard potty training was as an amputee. What does that mean, you might ask?  Night time wake up calls are very difficult when you don’t have a leg on, grabbing an energetic puppy, and crutching outside and down a step…all before that puppy has an accident! This week, I am navigating this alone for the first time, tonight I may just leave my leg on.

I tell you all this to show you the reality of being an amputee.

As I sit here and write this up I am working later than usual, because of said puppy, and her boundless amount of energy she’s had all day. She is finally asleep and I have a moment to finish up my post.

THIS is life.

This is part of the journey. The good times, the hard times, the moments that make me smile and the times that exhaust me and make me see my shortcomings as an amputee.

Would I change a thing? Would I do it differently?

NO!

I am a stronger person for what I’ve gone through.

I know myself even better than I ever have.

My faith is stronger than ever before, and the people and experiences I have met and had along this journey I wouldn’t trade for anything.

Mindset matters. I keep saying that. How we see ourselves, and our lives, DOES matter.

When we let go of our past, embrace our situation, learn to ride the ups and downs of life, that is when we can truly live a full and meaningful life. That is when you can find purpose and joy.

Don’t give up when it gets rough. Keep fighting the good fight. You can do it, you are strong enough.

 

 

 

This week, focus on the positive. Find your purpose by setting goals you can achieve, and that challenge you just enough. Create a list of the things you’ve been dreaming of doing, trying, or accomplishing.

Write them down then create timelines of when you want to try or accomplish them. Be specific so they don’t fade away.

Next, figure out what steps you’ll need to take to get to your goal.

Use the next week to get your list together and your mindset right, and go out and kick butt!

You’ve got this, Warrior!

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

 

 

 

 

Spreading Joy This Season

Spreading Joy This Season

Cheers to the End of Another Year!

 

As 2023 comes to a close and the holidays are now upon I want to wish you all a blessed and happy new year!

As I celebrate my 5th year anniversary of my amputation today I am realizing how blessed I have been with how much I have experienced, accomplished, and the people I have met through this journey.

I also know that the vibes you put out into the world come back to you 10 fold.

Our attitude is contagious. How we approach the world can either add joy to it or be a thorn. Which are you bringing to the world?

Today as you are experiencing the emotions of this season remember that many people are struggling. Some struggle with an invisible problem (missing a loved one, a rocky relationship, struggles with money or job) and other’s with something very real and visible (amputation, being alone, medical conditions).

Be kind.

Remember that we all struggle.

Spreading joy takes very little on our part and a smile goes a long way.

 

Finish this year strong and positive and reap the rewards of being kind and positive with the people you meet throughout your week.

I know this seems like a pretty basic and obvious statement, but when we get caught up in our own schedule and agenda we often miss helping someone in need, or miss an opportunity to brighten someone else’s day.

 

We all fight battles, we all need kindness shown to us.

As you struggle through your own situation (for me it can be phantom pains like I’m dealing with as I type this) there are others going through something even more difficult and debilitating, making it hard for them to function or find joy during this time of year, making them feel alone and isolated.

We are in charge of our own attitude and only we can choose to see our glass half full.

So where are you with your situation,  half empty or half full?

The next couple of weeks, as I take time off to be present and with my family, I challenge you to watch the world around you. Look for ways you can make it better. Smile more, see the silver lining in your situation, find ways to bring happiness and positive vibes into the world… then watch to see how those vibes come back to you and change your life.

I hope and pray you are able to find happiness and joy during this time of year and that good health befalls you this new year.

Change your perspective, change your life.

Happy Holidays and Happy New Year!!

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

Are You Listening?

Are You Listening?

Learning To Listen To Your Gut

When you are going through something have you noticed how many people have advice?

The questions of: Have you tried this? Did you see Dr. So and So? This is the only prosthetic that works…. etc, etc.

I have had the opportunity to see many doctors throughout my injury, been to an amazing plastic surgeon, and have great prosthetists. I tell new amputees all about them but I try to stay conscious of pushy. My personal experience is MY personal experience, and I am always hopeful that it can be somebody else’s experience too, but it may not be. This just recently happened and it was heartbreaking to see. Without going into detail, because that’s what this podcast talks about, I had a couple of friends, amputees, use one of my doctors to help with revisions and their experiences were not like my positive experience.

I also watch social media posts and peruse the comments and am taken aback by the many people who believe their way is the only way, their doctor is the best doctor, their prosthetic brand is the best out there. Do you see where I’m going with this?

“Always”, “Never”, “The Best”, and “The Worst”, are red flags in my book, and should be avoided at all costs.

So why do we fall victim to adhering to these types of comments and following this type of advice? When we are in pain, scared, anxious, and in doubt we want ANYTHING that will get us out of that situation, and the faster the better. When we ask a large group of people (social media groups) how they handle this situation, or ask for help when we are experiencing phantom pain so extreme we are beside ourselves, we will take any advice if the person comes across unwavering and confident in their advice.

The problem? We are all DIFFERENT!

The love I have for my prosthetic. I am empowered to live my best life, with my new lease on life.

 

We have different reasons for our injury, different backgrounds, different personalities, different pain threshold levels, and completely different reasons for what we are feeling.

Just last week I experienced phantom pain, like my foot had been set on fire. It was non-stop, day and night. I haven’t had that in a long time. This time it was caused by my situation, not my fit. I was very upset and stressed about something (listen to last week’s podcast), and this was how my body dealt with it. However, if I had told any Facebook groups that I was dealing with this major burning, without giving the situational background, like so many people do, I would’ve been told that pain meds work, or gummies were the way to go, or try sleeping it off, etc. But what I needed to do was get outdoors for fresh air and allow myself to grieve. The fresh air and exercise helped me cope with my issue, which allowed my phantom pains to subside.

Fresh air and exercise! Just what I needed.

 

I knew what I needed. I trusted my gut on why I was experiencing what was happening to me.

We sometimes forget, in the midst of hard times, that if we just listen to our bodies, that we know what’s best and what is right for us.

When we schedule an appointment with a doctor but feel unsettled when in the office, we need to listen.

When we struggle with pain, we must quiet ourselves enough to listen to what our body is telling us.

Yes, it’s good to get some opinions, but take all advice with a grain of salt. We know ourselves better than a doctor with a PhD. We understand what we’ve been going through more than a random keyboard warrior who loves to put their two cents into everyone’s problems.

Aren’t we worth that?

Don’t we deserve the best care possible?

 

It’s time to advocate for yourself.

When you have an appointment, make sure you take questions you want answered so you don’t forget them if your train of thought gets derailed (mine did as soon as one doctor brought up amputation for the first time-I was stunned and my mind went blank. Luckily my husband was with me).

Bring someone you trust with you to the appointment (see comment above).

Listen to what your body is telling you. You know YOU best! DOn’t doubt yourself.

Remember, advice is great for optionality, but there is no “One size fits all” answer to your situation.

You are a warrior! Don’t you forget that! Fight for yourself! Fight for the life you’ve envisioned for yourself. You deserve the BEST!!!

I’m praying for you. Rise up and be heard, Warrior!

 

Until next week, as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

 

 

So You’re An Amputee…Now What?

So You’re An Amputee…Now What?

 

You have made it through a HUGE surgery. Maybe because of an accident or a sickness. Maybe you made the decision to amputate so you could live a better, healthier life. Whatever the reason, you have made it through that emotional decision, and come to terms with your new reality.

Unfortunately, your journey has just begun, but have no fear, you can shine and move forward with your new lifestyle and live an amazing and full life!

You might think that the act of being amputated is the hardest thing you will have to go through, or that you won’t ever live a full life with all the “restrictions”. And while it’s true that it takes time to adjust to your altered body, you can overcome the perceived restrictions.

A life as an amputee can be as good as you envision it, goal set for it, and how you approach it. It is mind over matter. It is about positivity, attitude, and courage.

Your journey, like life itself, will be filled with ups and downs, There will be storms and there will be rainbows. That’s life!

What can you start doing, now that you are an amputee, is adjusting your mindset, from being a victim to being the warrior in your story.

It’s time to goal set, dream of your future, build strength and grit. You will need all of that to find success, and if you prep correctly and envision the possibilities then you will succeed!

You define success.

You will get knocked down but if you realize this you will be better prepared for those moments and be ready to fight.

Remember, you are a warrior, not just because you have gone through something extreme, but because you fought to rise up after being knocked down. You have got into battle and continue to fight for what you want in life.

This week, listen in as I discuss what it took for me to find success after amputation.

 

 

This week is about coming to terms about your body.

Setting goals.

Understanding that this is a marathon and not a sprint, becoming prepared to fight for a better life and finding strength and resilience through adversity, and learning how to get back up after getting knocked down.

Be prepared for battle and fighting for what you want (and you should go into this knowing exactly what you want out of it).

 

You can achieve great and amazing things for your life. You are not a victim, you are a warrior!!!

 

Have a blessed week and as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,