Tag: advocate

Finding Yourself By Letting Go

Finding Yourself By Letting Go

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Through The Eyes of a Horse

Horse Therapy-the horse who started it all: Cherokee

 

What can I say, I LOVE horses! I have always loved horses, just seeing them makes me smile. Yet as a girl growing up in the suburbs of Chicago I was never around any horses. The attraction is a mystery.

Never in my WILDEST dreams could I have imagined that at my age I would be surrounded by them every single day, training them, getting certified to train them, grooming them and now bringing a therapy to the public in which the horses becomes the teacher.

They are incredible creatures with so much to offer.

My journey began after my amputation and with the horse you see pictured above. Even though I was only around him for 30-45 minutes, the impact he made on my life was the most profound experience I have ever felt! Not only did my amputation change the trajectory of my life, now horses were a part of this ever changing path.

Now after 4 years of learning and teaching, observing and making mistakes,  I am ready to bring this mental healing to others, and I AM EXCITED!!!

 

CONNECTION

 

BEING PRESENT

 

TRUST

 

The benefits of just being in proximity to horses is incredible! The healing they can bring to our lives is unmatched.

I hope that one day you, too, can feel the healing power of horses in your life, and I would love to be the one to take you there.

Join me on this new journey that I never, EVER saw coming a mere 5 years ago.

Let’s work together and heal ourselves through the eyes of a horse.

 

I pray you have a beautiful week and a HAPPY HALLOWEEN!

And as always,

Be Healthy,

Be Happy,

Be YOU!!

Much Love,

 

My silly girl!
Prepping For Battle

Prepping For Battle

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Finding Peace and Comfort in This Hard Season

 

How does a warrior prepare for battle?

They need the right kind of armor to protect themself from harm.

They need weapons to defeat the enemy, too.

 

What is your armor?

What weapons do you wield as you go into this new season, this battle, for your health and livelihood?

Yes, you CAN prepare. There are things you can do to build yourself up to being stronger and able to handle the journey you are embarking on.

I am speaking from a perspective that I relate to, that is, elected amputation. Not everyone has this experience, and I cannot even begin to imagine what it must be like to have that taken from me with no choice, so I will not be speaking of that journey today.

I had four months to prepare, research, interview, seek help, and get a leg up (PUN intended!) on my forthcoming surgery.

I believe there are many things we need to address to feel even somewhat prepared for such a huge life-changing surgery, and even then, you are never going to be completely ready for that day and what is to come in the years to follow, but you might as well start from a positive, strong place.

I address 4 major areas to get yourself prepped for such a surgery: Mental, Emotional, Physical, and Insurance

Yep, Insurance! You are in control of those other areas of your life, but insurance can become the enemy very quickly if you are not researching and doing your due diligence with what your insurance covers…prosthetics are EXPENSIVE!!!

Like I said before, I had four months from the time I scheduled my surgery til the day of my amputation.

These four months were extremely challenging and emotional. I tried my best to stay positive and convinced that this was the right move, but some days were much harder to convince myself than others.

I began to go through the “What if’s….” A LOT! I had fears well up in the night as I lay in the dark and everyone else in my house was sleeping. I struggled with the idea of death, and I worried that I wouldn’t be a functioning amputee. So many questions, and I knew NO amputees at the time. So many fears and so many uncertainties. It was almost unbearable.

But I decided to not let negativity rule my months I had left as a ‘two-legger’, and I began to prepare my heart, mind and body for the battle ahead. And Insurance, unbeknownst to me, was going to be a very grueling battle!

Don’t get caught without a plan.

Don’t get caught without visualizing a better future.

Don’t get caught without setting goals.

These items are your armor and your weapons.

Be prepared, you are, after all, a WARRIOR!

We all have a warrior spirit, some of us just need to believe it to unleash it.

Believe in yourself. You can do this! I believe in YOU, Dear Warrior!

 

 

Start making a plan now, don’t wait!

Prepare yourself by addressing your mental and emotional capacity to handle what’s coming. How? Talk to people. When you talk about it you will find you relax the hold it has over you. I remember when I couldn’t even say “Amputation”, it made it too real if I said it, but that’s what I had to learn to do. The more I talked about it, the easier it became to say, eventually it got me then thinking about what was coming and how I might handle certain situations, like getting in and out of a car, going to the bathroom in the middle of the night, cooking dinner while on crutches, etc. I would not have those questions without open conversations with my family and friends.

Physically prepare by building your balance, core strength, and the limb that will be left behind to do all the work.

Finally, insurance. Please do your research. Ask questions about what is and is NOT covered by your insurance. Double check, and even triple check if time allows. The cost is profound, and the average household struggles to afford one.

You are strong enough to go through this, but you must prepare, just as a runner prepares for a marathoner and a warrior prepares for battle. Strengthen yourself and watch a new life unfold in front of you.

Your life is ending or diminished because of amputation, it has just turned onto a new path. And the adventures will be amazing!

So, Warriors, rise up to the challenge in front of you! You are strong enough. You are brave enough. You are ENOUGH!

Until next week and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

Independence

Independence

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Freedom and Joy in Movement

 

What do you dream about doing or accomplishing?

As amputees we tend to struggle with getting back out there, worried that we won’t be able to live full lives filled with goals set and conquered, but that couldn’t be farther from the truth!

Yes, the first couple of years there is a lot of changes taking place with your body, and a whole new routine of being fitted for your prosthesis every few months, but that doesn’t mean you can’t be getting active and finding the joy of becoming independent once again.

Prior to my amputation I spent 5 years in surgeries, icing and elevating my leg, and going to appointments. I had no time to do anything else, and my life became a series of tasks in hopes of getting better, but not truly living. I had no time to dream about the next ski trip or learning a new sport, I was in survival mode, plain and simple.

However, I set many goals for myself to accomplish by one year post-amputation. I never thought, “What if I can’t do this?” or “That’s not possible.” I just set my goals and worked toward them. No one told me that maybe I was being to aggressive on myself, or that I was dreaming too big. My family and friends just walked alongside of me, supporting me through it all.

What I can tell you about that first year is this: I was so happy! I found joy in life once again! I never looked back with regrets to having had the amputation, and in that first year I knew that I could do anything I put my mind to.

 

Life is meant to be lived fully. I aim to try new things whenever the opportunity arises!

 

The point: We each are traveling on our own unique journey, but we all want to have independence and the feeling of freedom that comes with that, this truly goes for those of us who have been laid up, or stuck in a medical crisis. Setting goals to keep us on track and moving forward is key to feeling the freedom of independence once again.

When I speak to other amputees about what they want to get back to doing to make them feel productive, and independent in life, some of the most basic life skills is what they speak of first; dressing themselves, standing in their kitchen to wash dishes or make a meal. Basic, right? But that’s what makes us feel productive and useful. I know I couldn’t wait to show my family that I could serve them the way I use to, before the accident. And when we experience these baby steps of accomplishment it leaves us thirsting for more!

The goals and aspirations grow and change. As we build strength and stamina, as we get better at using our prosthesis, we begin to really dream of the possibilities. That’s when the real fun begins, and the joy from accomplishing goals becomes a need not just a want.

So, What do you dream about accomplishing? What will give you back your independence or freedom?

Dare to dream because being an amputee isn’t what it use to be. You can do anything you put your mind to, if only you dare!

 

This week I want you to make a list of the things you most want to do. Maybe tasks around the house or at work. Maybe just getting dressed or making the bed. It doesn’t have to be big, monumental tasks or goals, just ones that will make you feel good that you can do on your own again.

It is also ok to add, to your list, goals for the future. Remember, dreaming is what keeps us motivated and moving forward.

Don’t be afraid to add whatever is on your heart. This is a great time to not think about the “how” of these longterm goals, just dream!

Finding independence again, is such a blessing and brings great joy.

Just remember to START WHERE YOU’RE AT.

Know that with these new goals there may be some fear or anxiety, but with anything worth achieving we must all face fears. I do all the time. Just remember what you’re made of. Remember what you’ve been through. YOU ARE A WARRIOR!!

Now make that list and start tackling those dreams!

 

I hope you all have a blessed week, thank you for listening,

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

Bunker Hill- 297 steps to the top! I was nervous but I did it!
Dress For Success

Dress For Success

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An Equine Analogy For Your Motivation

 

 

You must look the part.

You need to rise up, clean up, and organize yourself if you want to achieve and succeed.

Trust me I know!

Today I found myself entranced on how much time I spend with my horses grooming them.

Why do we do that? Why do we spend so much time brushing them, wiping their faces down, conditioning their mane and tidying them up? It’s not like my horses are heading out on the town nor are they saddled and transported where others will see them… then why?

 

Getting in the Christmas Spirit last year

 

I’ll tell you why, because that keeps them looking kept and neat. It keeps them healthy and clean. I brush them, I wash them, I wipe out their nostrils and eye ducts, I clean out their hooves, all in the name of health. We need to do the same, especially when we aren’t feeling great. When we are down and out, our health depends on it, our outlook on life depends on it, and ultimately our success depends on it. It’s so easy to take the road less traveled when we are hurting and not at our best. When life throws us curveballs and tries to take us down that’s when we need to fight harder, rise quicker, and move forward. When we get wrapped up in negativity and cave to the easy path, or path of least resistance, we tend to let oursleves go, let our homes go and stop really living. That’s when we allow life to pass us by, while we wait for something better to happen to us or for us, for our situation to resolve itself. However, that’s not living life, that’s giving up and hoping things work out.

We need to rise up each day and prepare for life. We need to clean ourselves up, we need to make our bad, we need to get out and MAKE life happen! We all have issues. We will all have problems that arise, but the ones who succeed adjust and fight for what they want. The ones who succeed are the ones who dress for success, each and every day, despite what’s happening, despite the pain and frustrations they are going through. How about you? Are you “dressing” for success each day? Are you preparing for good to happen? That is the key.

I clean my horses up every single day so they are clean, healthy, and happy. When they get the grooming they need they can then attack the day with confidence and pride. Shouldn’t you be the same, if not more motivated to do so?

You are a warrior. Warriors plan for success and it starts with your physical appearance, at the very least. Start there and see where it takes you in life. You might be surprised.

So warriors, rise up and take on the day! You deserve that!

 

 

This week, take care of yourself, starting with your appearance-your physical self. Get up, get ready for the day, make your bed, and go do something.

Be active in your life.

Make life happen FOR you, not TO you.

Stop waiting for right time, the next day, or when you’ll feel better.  Sometimes we need to just start something positive and good with the simple act of looking “put together”, ready to tackle the day. That is your challenge this week.

Go get after life! You’ll be so glad you did!

 

Be an active

As always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

 

Inventors & Innovators: Hugh Herr and Biomechatronics

Inventors & Innovators: Hugh Herr and Biomechatronics

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The New Age of Bionics

 

 

What happens to you when you find yourself in a do or die situation?

Hugh Herr was in that position as a teenager, barely making it out alive while doing something he loved and excelled at, a savant at his young age. But he didn’t make it out unscathed, he lost both of his legs below the knee.

What would you do? At that young age would you have given up, abandoned your dreams, or hid from life?

Would you believe that this situation inspired Hugh to become a creator, inventor and innovator in the prosthetic world?

He went from a kid set on rising to the top as a professional climber, to figuring out how to navigate life AND climbing again as a bilateral below knee amputee with prosthesis he created!

He changed his path to one of college and higher education. Getting his masters and doctorate degrees from Harvard and MIT, and is currently a professor at the MIT Media Lab and co-leads the Yang Center for Bionics at MIT.

He is known for creating bionic limbs that emulate the movement of natural limbs and has been called the “Leader of the Bionic Age” by Time Magazine.

He has TED talks, authored/co-authored over 200 peer-reviewed manuscripts and patents, and most recently Hugh and his research group invented the Agonist-Antagonist Myoneural Interface, which is a surgical procedure for limb amputation that allows the person with limb loss to control their synthetic limb with thought.

His research and studies are beyond amazing! The ideas and possibilities to come for those of us with limb loss from what he is inventing are going to be incredible and will make losing a limb less traumatic and more doable with the hope of what we will be capable of accomplishing with such high-tech and realistic bionics.

The age of bionics is growing by leaps and bounds and this past December 2023, I was blessed with the opportunity to work in the MIT Media Lab, meet Hugh, and participate in the current studies with several PhD students. I was blown away, to say the least, by what they are working on and what will be out on the market in the not too distant future. We are going to be seeing more stable, more controllable, and more comfortable fitting prosthesis which will give us our lives back and with more meaning.

 

So, yea, the first time I get to meet Hugh I look like this! Strapped in and ready to do research for the greater good!

 

This week, as we close Limb Loss/Limb Difference Awareness Month with my 4th and final interview with such an important innovator, as Hugh Herr, the pioneer of our bionic age, you do NOT want to miss what he shares about what is up and coming in the world of prosthesis and bionics.

Join me and Hugh Herr for this incredible interview!

Please share today’s podcast to bring hope and excitement for what’s to come to those in our amputee community.

Again, thank you, Hugh, for giving me the time to talk with you, pick your brain, and for your genius and creativity in helping us gain back our independence and ability to move smoothly despite our limb loss. I am truly inspired and excited for the future.

 

I hope you all enjoy today’s podcast and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

John, Me and Tony-PhD students from MIT that were in charge of the study.

 

You can watch the NOVA production of Hugh Herr’s life: NOVA “Augmented” HERE

 

Inventors & Innovators: TheraV for Phantom Pains

Inventors & Innovators: TheraV for Phantom Pains

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TheraV Founder and CEO Amira Radovic

We are kicking off Limb Loss/Limb Difference Awareness Month (LLLD) with the founder and CEO of TheraV.

Amira found her passion to help people by creating a non-invasive, non-pharmaceutical device that helps soften phantom pains through the use of vibration therapy.

Phantom pains are a very real, very painful, and often times disabling reaction after losing a limb. Most amputees will experience some level of phantom pain throughout the course of their lives. I would also say that all amputees feel some sort of phantom sensation (a feeling that the missing limb is still there and feels like pins and needles or a numbing sensation), I know I feel that everyday, all day, but I have become accustom to them.

Phantom pains, on the other hand, are intense. They come without warning, last days, sometimes weeks, and can feel like you are being shocked, set on fire, or like a knife stabbing your limb and cutting you open. I have had the distinct privilege (sarcastic voice) of experiencing those crazy, uncontrollable, and sleep depriving pains four times in my five years of being an amputee! I wouldn’t wish that on my worst enemy!

Amira’s father was a civil engineer and she had dreams of becoming an engineer, herself. She said she was always fascinated with the idea of using technology to enhance the human ability so she studied biomedical engineering at the University of Delaware. As a junior she had an opportunity to work at a prosthetic office. There she was introduced to the mental and physical pain that came with limb loss and the reality of phantom pain. She worked for years and talked to many amputees to come up with her TheraV for phantom pains, despite the lack of data and the stigma that surrounded phantom pains.

This week I had the honor of having her on my podcast to share where her idea came from, how it works, and where she’s taking it next. Like all great inventors, she is continuing to dive deeper into the mysterious world of phantom pains, what produces them, what helps, and how she can improve her already amazing product.

I am grateful for the time I got to speak with her and to hear her story, her passion, and what got her into the world of amputees and phantom pain.

An amazing thing about TheraV is that it can also be used by able-bodied individuals for things like restless leg syndrome or CRPS! Amazing, right?

If you are struggling with any of these issues, and would like to be rid of medications you might consider giving TheraV a shot.

Check out her website HERE.

 

With a world of big Pharma and large corporations it’s hard for the individual to break into the market. Please visit TheraV website, check them out on social media and give them a follow. By purchasing your own therapy for your home you not only have a safe way to manage pain you are helping Amira reach more people and giving them a chance to live without pain.

Thank you, Amira, for joining my podcast this week and for all you are doing for our amputee community.

Phantom pains are real pains.

Your research and devotion to reducing and eliminating them is so commendable! Thank you!

 

 

 

Remember to subscribe to my podcast so you don’t miss out on a month packed with inventors and innovators who are making a huge impact in our amputee community! also. p

lease share this link and podcast with someone who could benefit. My goal is always to help empower and educate those in need. Help me make an impact this month!

 

Thank you and have a blessed week.

As always,

Be Healthy,

Be Happy,

Be YOU!!!!

 

 

Much love,

 

 

 

 

Fear of Being Uncomfortable

Fear of Being Uncomfortable

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Skiing as an Amputee

 

The Canyons, Park City, Utah 2024

 

I don’t know about you but, sitting in a lodge, sipping a drink in front of a fire sounds wonderful. Doesn’t it?

However, I did that for 5 years, while my family all skied and I sat there with tears in my eyes, missing those special moments I knew I’d never get back.

My husband taught me to ski when we were teenagers. We had dreams of teaching our own kids someday and the retiring and skiing through life. 2013 struck me with a knee injury that sidelined me for 5 years! Then, by 2018 I elected to amputate my left leg above the knee.

 

My first goal, 3 1/2 months after amputation?  SKI!

Nice and easy

 

This is why I face my fears

 

Looks like I have 2 legs!!

 

Fast forward to last week and I can honestly tell you that despite my love of skiing and being with my family up on the mountains again, the fears I face before each day really try to take me down. Facing fears is no easy task, and yes, while sitting by the fireplace and sipping a drink in the warmth of a lodge is amazing, NOTHING compares to facing your fears and coming out on top! Not to mention, I will never regret getting out and living my life versus watching it pass before my eyes. I want to live life, and maybe that’s a product of being sidelined for so many years, but I won’t allow my irrational fears take me out of living my best life with my family.

 

Of course I’m going to challenge you to face a fear of yours. You don’t need to be an amputee, either. We all have fears that we can choose to face or turn away from. If you have been turning away, now is the time to stand up straight, adjust your hat, and take it head on! You won’t regret trying, succeed or fail. Because no matter the outcome, you did it! You faced a fear, overcame that emotion and gave it your best. No matter the outcome, you will know you tried and can feel great about yourself for going the distance.

Don’t let fears derail you and your goals. Stay the course, buckle down for the ride, and know that there is no sweeter victory than facing your fears like the true warrior you are and were built to be!

 

So today, decide what you are afraid of and take it on! Despite the butterflies, emotions that well up and want to hold you back, and no matter the outcome. Just go for it!

Rise up, warriors, rise up and face your fears head on! You will NOT regret it!!

 

Have a beautiful and blessed week!

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

Maybe I’ll see you on the mountains some day♥

Insurance Games

Insurance Games

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Playing To Win; Playing For Your Future

 

Dealing with insurance can be tricky and often frustrating. I speak from experience.

It’s unfortunate that insurance companies make it so hard to understand the ins and outs of their policies as well as getting approvals especially since those who are trying to get covered are often going through really tough emotional times.

As I got myself prepared for my amputation I was doing everything to prepare myself, mentally, emotionally, physically, and financially seeing as this would be a forever life changing surgery.

My experience was not smooth, nor was it kind, but I figured out how to handle my situation, found my voice, and fought for what was right and what I needed.

Join me this week as I take you on my journey with the games that insurance companies play, and how you can play and beat them at their own game.

 

This is what I fought to get……

 

So I can do this….

 

…And this

 

….And this

 

…And this.

 

 

 

 

 

 

What are you fighting for? And if you’re not fighting for what you want, then who will???

 

Randy and David at The Limb Center and also Limbs For Humanity

 

 

This week, if you are in the middle of a big decision that takes medical insurance, make sure you do your homework and get confirmation about what is covered.

If you have been told “No” by your insurance company then it’s time to fight for what you want and need.

We must fight for ourselves, because only we know exactly what we need and want to make our lives worth living.

Help yourself by fighting for your future. Don’t give up, and don’t take “No” for an answer!

You are a warrior and you are WORTH IT!!

 

Have a blessed week and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

Life is a Journey

Life is a Journey

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Stay the Course and Press On

 

This is the year. Embrace the journey and get your mindset right!

We started our year with a new puppy. I had forgotten how hard potty training was as an amputee. What does that mean, you might ask?  Night time wake up calls are very difficult when you don’t have a leg on, grabbing an energetic puppy, and crutching outside and down a step…all before that puppy has an accident! This week, I am navigating this alone for the first time, tonight I may just leave my leg on.

I tell you all this to show you the reality of being an amputee.

As I sit here and write this up I am working later than usual, because of said puppy, and her boundless amount of energy she’s had all day. She is finally asleep and I have a moment to finish up my post.

THIS is life.

This is part of the journey. The good times, the hard times, the moments that make me smile and the times that exhaust me and make me see my shortcomings as an amputee.

Would I change a thing? Would I do it differently?

NO!

I am a stronger person for what I’ve gone through.

I know myself even better than I ever have.

My faith is stronger than ever before, and the people and experiences I have met and had along this journey I wouldn’t trade for anything.

Mindset matters. I keep saying that. How we see ourselves, and our lives, DOES matter.

When we let go of our past, embrace our situation, learn to ride the ups and downs of life, that is when we can truly live a full and meaningful life. That is when you can find purpose and joy.

Don’t give up when it gets rough. Keep fighting the good fight. You can do it, you are strong enough.

 

 

 

This week, focus on the positive. Find your purpose by setting goals you can achieve, and that challenge you just enough. Create a list of the things you’ve been dreaming of doing, trying, or accomplishing.

Write them down then create timelines of when you want to try or accomplish them. Be specific so they don’t fade away.

Next, figure out what steps you’ll need to take to get to your goal.

Use the next week to get your list together and your mindset right, and go out and kick butt!

You’ve got this, Warrior!

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

 

 

 

 

You Can Do It!

You Can Do It!

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There are many facets to being an amputee, a lot revolves around the fit of prosthetics, dealing with phantom pains, and relearning to walk. However there are other obstacles to overcome, goals to achieve, finding your independence is usually on the top of the list!

This was a huge goal for me (and also for others I have talked to over the past few years). Independence looks different for each of us but when we decide what it is we are looking to achieve there’s no better feeling when we reach that goal.

For me, today was that day. I felt the complete independence of traveling alone-for the first time as an amputee! Packing up, getting to the airport, carrying my own luggage, finding my way through security and to my gate, all while being balanced, strong, and confident. I was able to grab my luggage, find my way to the Uber line, and check into a hotel.  These may seem like simple tasks, people do them everyday, but being with my husband since we were 17 and never traveling without him, he always took charge, he always looked out for me, and guarded me from uncertainty. With him I was always safe and taken care of, so you can imagine how exciting, and challenging, doing this was for me.

 

 

 

What a day of firsts!

 

If you ever wonder if you’ll be able to travel again, let alone, travel solo as an amputee, I’m here to tell you that you can and you will! You can find that independence if that’s what you want. It takes time and practice. You have to plan ahead, and be prepared.

Listen in to today’s podcast as I discuss the things I have learned over the past 4 1/2 years of traveling as an amputee, the items I make sure I pack, and how I navigate the airport hoopla.

Oh, and if you are curious as to why in the world I have traveled alone to the other side of the country, on my own, in the middle of the holiday season, leaving the beautiful Arizona weather behind for the biting cold east coast then make sure you tune in next week!!

 

This is no different from the last two weeks:

Join my Fierce and On Fire challenge today!! Don’t wait! Join me as I make a solid effort to pay attention to my own health needs this holiday season by making sure to exercise in some way, everyday for at least 30 minutes.

The challenge is 100 miles and is virtual. If you want a medal the click HERE to join me!

If you want to join me but don’t care about the medal, that’s cool, too!  I have a private Facebook group you can join for the motivation and community. You can also join my IG channel Fierce and On Fire for the community as well.

How can you compete against yourself?

Great question. You do whatever it is you love to do and are capable of doing, where you are right now in your health journey.

If you want and can run, walk, hike, bike, swim, then do it!

If you are bedridden or in a wheelchair try upper body exercises with bands. 15 minutes of exercise = 1 mile.

NO EXCUSES! If you want to help yourself then be kind to your mind and body. Don’t wait for January 1 to make the dreaded “New Year’s Resolution”. Start today. Challenge yourself today. Make yourself more of a priority and end 2023 on a high note.’

Let’s do this together, as a virtual team of sorts.

 

And as always,

Be Healthy,

Be Happy,

Be YO(U!!!

 

Much love,

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