Tag: advocate

“Sleigh” Your Goals

“Sleigh” Your Goals

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Start Today!

 

Start Now!

Today!

What are you waiting for?

 

I know, I know, it’s the holidays. You are busy and can’t find the time.

Me too! But, if you are serious about your goals, and know your ‘WHY’ then get to it.

I am not, nor have I ever been, a fan of “New Years Resolutions”. For a majority of people it is a procrastination technique to get thru the holidays, feel horrible about how you celebrated all holiday season, to join a gym or set goals that are extreme, only to drop them by February or March.  Instead of being excited and uplifted by the challenges, you are left feeling defeated and miserable for failing. Who needs that?

 

Instead, start small now.

No matter what your goals are in life, starting when you are busy just requires taking baby steps to begin a new routine and make it a habit.

If you want to stand and make dinner while wearing your prosthesis then start by wearing it longer each day, or refusing to take it off. Then stand to wash a few dishes. Eventually you’ll be able to maneuver around your kitchen and create a meal and feel proud of your accomplishment….which will inevitably lead to another goal to achieve.

If you want to get or stay physically active and you are struggling to find time then carve out some smaller portions that you CAN commit to and do it. For example, take a short walk around the block after dinner every night, or do some sit ups, push ups and/or planks before bed.

You don’t have to have a gym membership and commit 2-3 hours 4-5 days a week to be active and stay fit, you just need a plan and stick to it (again, to build a positive habit that will carry on thru the holidays and all next year).

 

 

 

Starting today and carrying you through the new year here’s what you need to do to form good habits that will keep you moving forward.

 

Write down your dreams and goals on paper, don’t keep them secret up in your head.

Decide the most important ons and which ones need to come before others. There probably is a progression of them for example, learning to wear your prosthesis comes before walking a mile in it.

Set deadlines to help keep you on track.

Make smaller steps that you will need to do to hit your goal by your deadline.

Speak positively: I want to go to the gym. I want to go for a walk. Etc, etc.

Find someone you can share your goals with who will push you and hold you accountable (when times get hard and they will, it’s good to have an outside person keeping you on track), and maybe they can join you in setting goals and you can hold each other accountable.

Have fun and know your ‘Why”. Why are you setting this goal? Who are you doing this for?

 

 

Setting these things into place will give you a better chance of succeeding at what you want.

As always, you don’t need to go it alone. We all have weak moments and need some help.

I hope you have a blessed holiday season and a happy healthy new year!

This is my last episode of Season 4. I’ll see you next year!

Until then,

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

 

From Fear to “Thanks Giving”

From Fear to “Thanks Giving”

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Moving Into the Right Mindset This Holiday

 

As an amputee I have so much to be grateful for in my life.

I am blessed to be alive.

 

My horses make me be present

 

I am thankful for my husband, two healthy sons, and a family who loves me.

 

 

 

 

 

 

I am grateful to be able to walk again, just to name a few.

 

 

Do I ever look back on the day that I injured myself, which led me to amputation, and wish it never happened?

NO! Never, not even once!

I am so fortunate to have been chosen for this journey. Looking back, wishing for something different sets  me up to fall into the trap, and vicious cycle, of never being satisfied or happy of where I am now.

I wouldn’t have met the people I’ve met.

I wouldn’t have overcome fears that I have had to face.

I wouldn’t have learned to trust in myself, the process, and my support system.

I wouldn’t have experienced the life I’m leading now with such gratitude because of what I have had to overcome and endure.

I am a stronger person, more passionate about my Faith, and better able to withstand immense pain and challenges than ever before.

 

This holiday season I challenge you to look past your fears, your disappointments,  your pain, your obstacles, your past, and your anger at your situation and see the small but relevant miracles happening in your life EVERY SINGLE DAY!

 

CHANGE YOUR MINDSET! Live for your happiness and to a brighter future.

When you change how you see your life and your circumstances you change the outcome. You see the good more easily in everyday encounters and silent moments. You will find yourself smiling more and grumbling less, and you will start to attract the type of people who want to be around you because you empower them with your outlook. It’s contagious!

What are you grateful for today?

 

 

Today, choose to be grateful!

Don’t wait any longer to see the joy in your life.

Start jotting down your blessings or what you are grateful for tonight.

Keep a list where you write 1-5 things that you are grateful for each night before bed. Fall asleep to gratitude in your heart and watch how refreshed and joyful you will start to be in the morning, just looking for the next moment.

I wish you and your families a very special, magical, and blessed Thanksgiving.

Until next week, and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

Cutting Edge Comfort

Cutting Edge Comfort

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Bionic Skins: Working Towards the Perfect Fit

We all want to feel our best, and live a life without pain, but at times it seems so out of reach for us amputees.

Donning a prosthesis that is suppose to emulate a real leg gets the job done but, trust me, it is far from comfortable and often it becomes such a painful devise that amputees choose not to wear it for too long, even taking days off from wearing it, leaving them feeling incomplete and frustrated.

Today I wanted to share with you an extraordinary company, created by Dr. Hugh Herr-bilateral below knee amputee, MIT professor and co-leader of the Yang Center for Bionics at MIT,  Bionic Skins is changing the comfort game for the better.

Lauren and Eric head up the Bionic Skins headquarters in Bedford, Mass. and graciously came on my podcast to share what Bionic Skins is, how it works, and the hopes and aspirations Hugh and his team have for building a better and more comfortable prosthesis for the amputee community.

Eric is the “numbers guy”, checking stats, running the biometrics of the patients and making sure the measurements taken are accurate…
among other hats he wears for the company.

 

 

Lauren is the prosthetist; working with the patients, creating the sockets,
and making sure the fit is everything it should be for comfort and durability.

 

As we sit down and talk you can see how bright the future is for amputees. The technology is getting better and the understanding of what is needed for improving the quality of life for amputees is increasing. More research is being done, and talking with amputees helps bridge the gap of what we currently have, what we struggles with,  and what is still needed to live actively and without restrictions.

Bionic Skins is doing just that.  They are currently work with patients, and taking new patients, that are below knee amputees all the while continuing to research, build studies, and improve on the technology that they are producing in house and through MIT’s Media Lab.

 

Check out their website HERE

You can also follow them on social Media platforms like Instagram and Facebook @bionicskins to stay up to date on their research and studies in which you may qualify to take part.

Also, you can listen to my interview with Hugh Herr, himself, from this past April, on my podcast HERE

Hugh and I discuss Bionic Skins toward the end of my interview where he discusses his design and how it was created.

 

Thank you again, Lauren and Eric, for taking time out of your busy schedule to talk to us about the incredible work you’re doing  to improve our lives. You are amazing people! Keep doing what you’re doing and I look forward to checking in with you again in the near future!

 

I hope you’ve enjoyed, and found promise for a brighter future, listening to today’s podcast. Please remember to like, share and SUBSCRIBE to my podcast and my YouTube channel so you don’t miss an episode!

Have an amazing week and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

Dr Hugh Herr-Founder of Bionic Skins and “Yours Truly’ all set up for a gait study I did last year at MIT.

 

Anticipation

Anticipation

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Let’s discuss Anticipation and Expectations as an amputee.

Every journey is different, every path navigated in life is unique, so why would anyone think that becoming an amputee that we would share the exact same journey?

We will have a similar structure as to what steps come first, second, third, etc, but wWHEN they come, HOW quickly you move from one step to the next, AND when setbacks will happen are all unique to each individual.

Understanding this, and excepting it will help with your success and also your stress.

When we drop the idea that “I want to be doing what Sue is doing.”, or “I want to run like John.” we can embrace our own journey for all its worth, and except the path we are on, which will reduce stressors and help us achieve.

Goal setting and POSITIVE expectations are found to be key to reducing stress and helping us reach success.

Join me for how to go about doing this, and at the end of the podcast check out your Call to Action on what you can be doing right now whether you are awaiting amputation, had an unexpected amputation, or just want to get out of your own way in life so you can find success.

 

Enjoy this episode, share with those you know who need some motivation and as always,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

Keep looking up! Reach for the stars, dear Warri0rs!!

 

A Leg Up On Life

A Leg Up On Life

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Dealing With Negative Emotions Post-Amputation

 

Anger, Guilt, Shame, and Fear are all such destructive emotions. They hold us back from realizing our full potential and no one is immune to feeling them at one time or another.

As amputees, we face unique challenges, including fears about our new life, future uncertainty, failures, prosthetics, and adapting to physical limitations.

As a wife and homeschooling mom amputee I often struggled with guilt. I was always worried about making mistakes and inadequacy.

Now, as an amputee, (and I ELECTED this), I was even more fearful of what might be my shortcomings.

This is a lot of pressure to put on myself. How about you? Are you adding this stress into your life?

All in all, any of those above mentioned emotions, are taking away your happiness and also adding a negative aspect to your life, one that is stress-inducing and impeding success.

Stress can harm our health, impeding healing and progress. We must recognize and tame these self-destructive emotions if we are to truly love ourselves, love our life and live it fully.

 

Enjoy the good days. Remember those feelings. Harness them and utilize them when you are struggling.

 

We must realize what we are doing to ourselves and how to tame that monster that is self-destructive in nature.

So what can you do when these emotions begin to rear their ugly heads in your mind and life?

 

First thing;

Stop beating yourself up over situations you cannot control. You cannot control infections, poor fitting sockets, blister and rashes, or phantom pains.

Next, you need to communicate with your family and support system about how you are feeling. and when you’re feeling like you are getting everyone down. They need to know where you are at during the harder times as you navigate being an amputee because they probably don’t have any other experience with amputees than YOU.  Help them understand how you see yourself, where you want to be and what’s currently holding you back from realizing your potential. More than likely they wouldn’t want you to be worrying about that, just about getting better and stronger.

Finally, use positive self-talk. Your brain is a powerful muscle and it will bend and move to what thoughts you are allowing it to feed off of. If you tell yourself you aren’t good enough, that you aren’t contributing, or you are letting down those around you, then that is what you will feel is true. BIG TIME STRESSOR!

Time to start forgiving yourself, forgiving those around you that have hurt you, breaking free from fears, and letting go of guilt. When you are sick and laid up, your first priority must be to get stronger and healthier so you CAN get back to your life and family.

You can do this, you are strong enough. This is a long journey, a marathon, not a sprint. You will find that when things are going well something will come along and take you back a step or two. Likewise, when you are struggling, I can promise you, it won’t last and soon everything will start working out for the positive.

Don’t distress, dear Warriors, this too shall pass.

Lift up your chin, put a smile on your face, and laugh despite your struggles.

The time is now to sharpen your mental sword and fight for what you want and how you want to live your life.

Don’t give up and don’t lose hope.

Make today a great day,

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

 

Finding Yourself By Letting Go

Finding Yourself By Letting Go

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Through The Eyes of a Horse

Horse Therapy-the horse who started it all: Cherokee

 

What can I say, I LOVE horses! I have always loved horses, just seeing them makes me smile. Yet as a girl growing up in the suburbs of Chicago I was never around any horses. The attraction is a mystery.

Never in my WILDEST dreams could I have imagined that at my age I would be surrounded by them every single day, training them, getting certified to train them, grooming them and now bringing a therapy to the public in which the horses becomes the teacher.

They are incredible creatures with so much to offer.

My journey began after my amputation and with the horse you see pictured above. Even though I was only around him for 30-45 minutes, the impact he made on my life was the most profound experience I have ever felt! Not only did my amputation change the trajectory of my life, now horses were a part of this ever changing path.

Now after 4 years of learning and teaching, observing and making mistakes,  I am ready to bring this mental healing to others, and I AM EXCITED!!!

 

CONNECTION

 

BEING PRESENT

 

TRUST

 

The benefits of just being in proximity to horses is incredible! The healing they can bring to our lives is unmatched.

I hope that one day you, too, can feel the healing power of horses in your life, and I would love to be the one to take you there.

Join me on this new journey that I never, EVER saw coming a mere 5 years ago.

Let’s work together and heal ourselves through the eyes of a horse.

 

I pray you have a beautiful week and a HAPPY HALLOWEEN!

And as always,

Be Healthy,

Be Happy,

Be YOU!!

Much Love,

 

My silly girl!
Prepping For Battle

Prepping For Battle

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Finding Peace and Comfort in This Hard Season

 

How does a warrior prepare for battle?

They need the right kind of armor to protect themself from harm.

They need weapons to defeat the enemy, too.

 

What is your armor?

What weapons do you wield as you go into this new season, this battle, for your health and livelihood?

Yes, you CAN prepare. There are things you can do to build yourself up to being stronger and able to handle the journey you are embarking on.

I am speaking from a perspective that I relate to, that is, elected amputation. Not everyone has this experience, and I cannot even begin to imagine what it must be like to have that taken from me with no choice, so I will not be speaking of that journey today.

I had four months to prepare, research, interview, seek help, and get a leg up (PUN intended!) on my forthcoming surgery.

I believe there are many things we need to address to feel even somewhat prepared for such a huge life-changing surgery, and even then, you are never going to be completely ready for that day and what is to come in the years to follow, but you might as well start from a positive, strong place.

I address 4 major areas to get yourself prepped for such a surgery: Mental, Emotional, Physical, and Insurance

Yep, Insurance! You are in control of those other areas of your life, but insurance can become the enemy very quickly if you are not researching and doing your due diligence with what your insurance covers…prosthetics are EXPENSIVE!!!

Like I said before, I had four months from the time I scheduled my surgery til the day of my amputation.

These four months were extremely challenging and emotional. I tried my best to stay positive and convinced that this was the right move, but some days were much harder to convince myself than others.

I began to go through the “What if’s….” A LOT! I had fears well up in the night as I lay in the dark and everyone else in my house was sleeping. I struggled with the idea of death, and I worried that I wouldn’t be a functioning amputee. So many questions, and I knew NO amputees at the time. So many fears and so many uncertainties. It was almost unbearable.

But I decided to not let negativity rule my months I had left as a ‘two-legger’, and I began to prepare my heart, mind and body for the battle ahead. And Insurance, unbeknownst to me, was going to be a very grueling battle!

Don’t get caught without a plan.

Don’t get caught without visualizing a better future.

Don’t get caught without setting goals.

These items are your armor and your weapons.

Be prepared, you are, after all, a WARRIOR!

We all have a warrior spirit, some of us just need to believe it to unleash it.

Believe in yourself. You can do this! I believe in YOU, Dear Warrior!

 

 

Start making a plan now, don’t wait!

Prepare yourself by addressing your mental and emotional capacity to handle what’s coming. How? Talk to people. When you talk about it you will find you relax the hold it has over you. I remember when I couldn’t even say “Amputation”, it made it too real if I said it, but that’s what I had to learn to do. The more I talked about it, the easier it became to say, eventually it got me then thinking about what was coming and how I might handle certain situations, like getting in and out of a car, going to the bathroom in the middle of the night, cooking dinner while on crutches, etc. I would not have those questions without open conversations with my family and friends.

Physically prepare by building your balance, core strength, and the limb that will be left behind to do all the work.

Finally, insurance. Please do your research. Ask questions about what is and is NOT covered by your insurance. Double check, and even triple check if time allows. The cost is profound, and the average household struggles to afford one.

You are strong enough to go through this, but you must prepare, just as a runner prepares for a marathoner and a warrior prepares for battle. Strengthen yourself and watch a new life unfold in front of you.

Your life is ending or diminished because of amputation, it has just turned onto a new path. And the adventures will be amazing!

So, Warriors, rise up to the challenge in front of you! You are strong enough. You are brave enough. You are ENOUGH!

Until next week and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

Independence

Independence

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Freedom and Joy in Movement

 

What do you dream about doing or accomplishing?

As amputees we tend to struggle with getting back out there, worried that we won’t be able to live full lives filled with goals set and conquered, but that couldn’t be farther from the truth!

Yes, the first couple of years there is a lot of changes taking place with your body, and a whole new routine of being fitted for your prosthesis every few months, but that doesn’t mean you can’t be getting active and finding the joy of becoming independent once again.

Prior to my amputation I spent 5 years in surgeries, icing and elevating my leg, and going to appointments. I had no time to do anything else, and my life became a series of tasks in hopes of getting better, but not truly living. I had no time to dream about the next ski trip or learning a new sport, I was in survival mode, plain and simple.

However, I set many goals for myself to accomplish by one year post-amputation. I never thought, “What if I can’t do this?” or “That’s not possible.” I just set my goals and worked toward them. No one told me that maybe I was being to aggressive on myself, or that I was dreaming too big. My family and friends just walked alongside of me, supporting me through it all.

What I can tell you about that first year is this: I was so happy! I found joy in life once again! I never looked back with regrets to having had the amputation, and in that first year I knew that I could do anything I put my mind to.

 

Life is meant to be lived fully. I aim to try new things whenever the opportunity arises!

 

The point: We each are traveling on our own unique journey, but we all want to have independence and the feeling of freedom that comes with that, this truly goes for those of us who have been laid up, or stuck in a medical crisis. Setting goals to keep us on track and moving forward is key to feeling the freedom of independence once again.

When I speak to other amputees about what they want to get back to doing to make them feel productive, and independent in life, some of the most basic life skills is what they speak of first; dressing themselves, standing in their kitchen to wash dishes or make a meal. Basic, right? But that’s what makes us feel productive and useful. I know I couldn’t wait to show my family that I could serve them the way I use to, before the accident. And when we experience these baby steps of accomplishment it leaves us thirsting for more!

The goals and aspirations grow and change. As we build strength and stamina, as we get better at using our prosthesis, we begin to really dream of the possibilities. That’s when the real fun begins, and the joy from accomplishing goals becomes a need not just a want.

So, What do you dream about accomplishing? What will give you back your independence or freedom?

Dare to dream because being an amputee isn’t what it use to be. You can do anything you put your mind to, if only you dare!

 

This week I want you to make a list of the things you most want to do. Maybe tasks around the house or at work. Maybe just getting dressed or making the bed. It doesn’t have to be big, monumental tasks or goals, just ones that will make you feel good that you can do on your own again.

It is also ok to add, to your list, goals for the future. Remember, dreaming is what keeps us motivated and moving forward.

Don’t be afraid to add whatever is on your heart. This is a great time to not think about the “how” of these longterm goals, just dream!

Finding independence again, is such a blessing and brings great joy.

Just remember to START WHERE YOU’RE AT.

Know that with these new goals there may be some fear or anxiety, but with anything worth achieving we must all face fears. I do all the time. Just remember what you’re made of. Remember what you’ve been through. YOU ARE A WARRIOR!!

Now make that list and start tackling those dreams!

 

I hope you all have a blessed week, thank you for listening,

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

Bunker Hill- 297 steps to the top! I was nervous but I did it!
Dress For Success

Dress For Success

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An Equine Analogy For Your Motivation

 

 

You must look the part.

You need to rise up, clean up, and organize yourself if you want to achieve and succeed.

Trust me I know!

Today I found myself entranced on how much time I spend with my horses grooming them.

Why do we do that? Why do we spend so much time brushing them, wiping their faces down, conditioning their mane and tidying them up? It’s not like my horses are heading out on the town nor are they saddled and transported where others will see them… then why?

 

Getting in the Christmas Spirit last year

 

I’ll tell you why, because that keeps them looking kept and neat. It keeps them healthy and clean. I brush them, I wash them, I wipe out their nostrils and eye ducts, I clean out their hooves, all in the name of health. We need to do the same, especially when we aren’t feeling great. When we are down and out, our health depends on it, our outlook on life depends on it, and ultimately our success depends on it. It’s so easy to take the road less traveled when we are hurting and not at our best. When life throws us curveballs and tries to take us down that’s when we need to fight harder, rise quicker, and move forward. When we get wrapped up in negativity and cave to the easy path, or path of least resistance, we tend to let oursleves go, let our homes go and stop really living. That’s when we allow life to pass us by, while we wait for something better to happen to us or for us, for our situation to resolve itself. However, that’s not living life, that’s giving up and hoping things work out.

We need to rise up each day and prepare for life. We need to clean ourselves up, we need to make our bad, we need to get out and MAKE life happen! We all have issues. We will all have problems that arise, but the ones who succeed adjust and fight for what they want. The ones who succeed are the ones who dress for success, each and every day, despite what’s happening, despite the pain and frustrations they are going through. How about you? Are you “dressing” for success each day? Are you preparing for good to happen? That is the key.

I clean my horses up every single day so they are clean, healthy, and happy. When they get the grooming they need they can then attack the day with confidence and pride. Shouldn’t you be the same, if not more motivated to do so?

You are a warrior. Warriors plan for success and it starts with your physical appearance, at the very least. Start there and see where it takes you in life. You might be surprised.

So warriors, rise up and take on the day! You deserve that!

 

 

This week, take care of yourself, starting with your appearance-your physical self. Get up, get ready for the day, make your bed, and go do something.

Be active in your life.

Make life happen FOR you, not TO you.

Stop waiting for right time, the next day, or when you’ll feel better.  Sometimes we need to just start something positive and good with the simple act of looking “put together”, ready to tackle the day. That is your challenge this week.

Go get after life! You’ll be so glad you did!

 

Be an active

As always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

 

Inventors & Innovators: Hugh Herr and Biomechatronics

Inventors & Innovators: Hugh Herr and Biomechatronics

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The New Age of Bionics

 

 

What happens to you when you find yourself in a do or die situation?

Hugh Herr was in that position as a teenager, barely making it out alive while doing something he loved and excelled at, a savant at his young age. But he didn’t make it out unscathed, he lost both of his legs below the knee.

What would you do? At that young age would you have given up, abandoned your dreams, or hid from life?

Would you believe that this situation inspired Hugh to become a creator, inventor and innovator in the prosthetic world?

He went from a kid set on rising to the top as a professional climber, to figuring out how to navigate life AND climbing again as a bilateral below knee amputee with prosthesis he created!

He changed his path to one of college and higher education. Getting his masters and doctorate degrees from Harvard and MIT, and is currently a professor at the MIT Media Lab and co-leads the Yang Center for Bionics at MIT.

He is known for creating bionic limbs that emulate the movement of natural limbs and has been called the “Leader of the Bionic Age” by Time Magazine.

He has TED talks, authored/co-authored over 200 peer-reviewed manuscripts and patents, and most recently Hugh and his research group invented the Agonist-Antagonist Myoneural Interface, which is a surgical procedure for limb amputation that allows the person with limb loss to control their synthetic limb with thought.

His research and studies are beyond amazing! The ideas and possibilities to come for those of us with limb loss from what he is inventing are going to be incredible and will make losing a limb less traumatic and more doable with the hope of what we will be capable of accomplishing with such high-tech and realistic bionics.

The age of bionics is growing by leaps and bounds and this past December 2023, I was blessed with the opportunity to work in the MIT Media Lab, meet Hugh, and participate in the current studies with several PhD students. I was blown away, to say the least, by what they are working on and what will be out on the market in the not too distant future. We are going to be seeing more stable, more controllable, and more comfortable fitting prosthesis which will give us our lives back and with more meaning.

 

So, yea, the first time I get to meet Hugh I look like this! Strapped in and ready to do research for the greater good!

 

This week, as we close Limb Loss/Limb Difference Awareness Month with my 4th and final interview with such an important innovator, as Hugh Herr, the pioneer of our bionic age, you do NOT want to miss what he shares about what is up and coming in the world of prosthesis and bionics.

Join me and Hugh Herr for this incredible interview!

Please share today’s podcast to bring hope and excitement for what’s to come to those in our amputee community.

Again, thank you, Hugh, for giving me the time to talk with you, pick your brain, and for your genius and creativity in helping us gain back our independence and ability to move smoothly despite our limb loss. I am truly inspired and excited for the future.

 

I hope you all enjoy today’s podcast and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

John, Me and Tony-PhD students from MIT that were in charge of the study.

 

You can watch the NOVA production of Hugh Herr’s life: NOVA “Augmented” HERE

 

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