Tag: adaptive

A Work In Progress

A Work In Progress

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Taking Action During “Construction”

 

 

We are all a work in progress. That’s life, right? We all have those moments where you feel you are working on something in your life. Your health, a career, or relationships, you name it.

But what do you do in these moments? How do you continue to grow and better yourself during the construction?

It all starts within you. We begin by working on ourselves.

Right now, while I would rather be working out, being with my horses, and hiking, I can barely walk around my house due to having to use a test socket that is uncomfortable and rubbing me raw. And during this time, I am feeling miserable! I was trying to kick start my health since surgery but have hit moments where I need to work on patience, and heal. Now I feel so far removed from being in shape and that takes a toll on my mental game. Now that I’m in this situation I cannot get to my horses because it’s too hard to walk on normal surfaces, imagine walking across uneven ground of rock, sand and dirt.

 

 

This is my time to focus on my thoughts and heart. This is a time I am put into a slow down phase and being led to work on what I can.

 

How do we go about working on ourselves? We start with seeing the good in the world, seeing the good in our situation and finding joy in the moment despite your circumstances. Next we can assume the best, meaning when we assume the best in a person we can control our emotions much better which leads us to less anger and frustration and more joy. Finally, we must act!

 

 

 

This week we must ACT! Not when we feel it or when joyfulness is in us, but rather right now! Maybe you are struggling or hurting right now. This is the time to look outside of yourself and your situation and reach out to another human, your neighbor, to spread joy and positivity.

Maybe you check in on a neighbor, share a conversation and a smile.

Take care of your support system around you: your spouse, family member, a friend. Let them know you care and are grateful for all they have done for you.

Maybe you see someone struggling in a parking lot, getting groceries in their car. Spend time spreading love and helpfulness by giving them a hand.

It doesn’t take money or a lot of time, it just takes your attention and to show someone, “Hey, I see you. Thank you for all you do. Let me help you”.

 

Whatever you do, do in love, with patience, kindness, and selflessly.

When we give of ourselves, we share love, we show our humanity, and we spread goodness into the world. The world could use that right about now.

Imagine if everyone looked inward and made changes on themselves. Imagine the kind of world we would live in with that kind of kindness being spread!

Wouldn’t that be something!

So, Dear Warriors, what are you going to do while you are under construction this week?

How can you make a difference in spite of your circumstances?

When you focus on others you take the focus off of yourself and it allows you to get out of your own head and release what has been holding you back in your “construction time” and place it elsewhere. What you will see is that your life will be enriched and fuller. Your joy will overflow when you bring joy to others.

Try it and get back to me! Let me know how it’s going.

I’m rooting for you, Warriors! You are strong.  You are special. You are loved!

Have a blessed week ahead, and as always,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

 

 

 

 

To Travel is To Live

To Travel is To Live

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A Journey of a Thousand Miles Must Begin With a Single Step

-Lao Tzu.

 

Traveling is exciting but can also be stressful. Packing the right clothing for the weather, the events, and what makes you feel amazing. You try to pack neatly and concisely so you can pack everything you want and need.

As an amputee, things become a little more confusing and worrisome. What will you need? What MUST come with? What if this happens or that happens? All of a sudden, packing and traveling becomes almost impossible. How will you ever pack for every situation with the space you have?

There are so many rules with TSA and airports. There are so many unknowns in hotels. Knowing how to navigate these specifics with travel comes with experience. You learn more, for your unique situation, as you go but we can also help each other as we gain our own understanding and experiences.

Today I share my tips and tricks and my own experiences from the years of traveling, especially by plane, to help you on your own journey in hopes that you can enjoy your time more and worry less.

As you travel more you will become less worried about the process and be able to focus on the trip, and enjoy making memories.

You will find ways to make each trip a little more efficient and packing a little more streamlined.

If you are traveling soon, by plane, give yourself plenty of time the first few trips so you don’t feel rushed or miss your flight.

Don’t be too proud to use a wheelchair as you go through airports, and make sure you bring your basic amputee necessities. I kept a list that I accumulated as I went (things I realized I needed but never thought of or forgot in the beginning), this way I could check off the items I needed each time I packed for a trip. It eventually became unnecessary after traveling many times over the years.

Traveling should be a way to unwind and enjoy life after all you’ve been through. When you’re ready to begin travels, don’t be held back by fears, just charge forward and live!

It’s time to experience life and move forward from your amputation. Go enjoy the world and make memories!

“A ship in harbor is safe, but that is not what ships are built for.” -John A. Shedd

 

 

You were built for more than sitting around and wishing for more. You were meant to experience it! Go out and enjoy these moments now and chase down those dreams!

 

Go out, Warriors, and explore the world. You deserve it!

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

The Process

The Process

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Healing Physically, Adapting Mentally and Emotionally

 

Amputation isn’t just the act of amputating a limb.

It isn’t just surgery, heal, and walk.

This is a process. It takes time, money, patience, and a whole lot of grit!

Unfortunately, most patients that knowingly go into amputation surgery can’t comprehend the struggles to come. For those who didn’t choose or prep for amputation, they have no idea of the life that’s ahead of them. For them, their emotional and mental state need to heal first, while they wait for their physical healing. They had their life torn apart by disease or war or an accident.

Whichever category you fall into know that you will get through this but it takes time, and commitment. You will need to work on, what I feel are, the four major components of successfully navigating amputee life: Physical, Mental, Emotional, and Financial.

Physical:

Obviously, you will take time to heal. You will need to learn to rebalance with less weight on one side of your body and also how to get around with crutches, a walker, or a wheelchair. You need to heal your incision but also the bone, muscle, and tissue. It was told to me that true healing takes up to 12 months. Within that time you will also experience new sensations and possibly phantom pains, all of which you will learn to adapt and work through. The whole wearing of a shrinker and then being cleared for a socket is a whole other side of the physical aspect you will need to come to grips with.

 

 

Mental:

As an elected amputee I had four months to prepare my mind for what was to come. I could ask questions, meet people, find peace with my decision, and set my future goals and dreams. Setting goals and daring to dream of a brighter future post-amputation is invaluable and can set you up for success. Manifesting your own destiny with a powerful and positive mindset is key! Get your mental game lined up as soon as you can.

 

 

Emotional:

Being ready to face your new life and new look is extremely important. Understanding how to deal with some of the struggles and hurdles you will face is hard to prepare for ahead of time, just know that when you do face a hardship that you need to take a step back, take a deep breathe and understand that these moments will end and good times will happen again. This journey is filled with ups and downs, highs and lows, pains and peace.

If you have dealt with an amputation due to someone else’s negligence, like an accident you were involved in, then you may have some extra baggage to address with your emotions, anger and hate. These emotions are poison to your healing. They can create some major problems for you and ultimately stifle your level of success as an amputee. Letting go of negativity will allow for healing and growth.

 

 

Insurance/Money:

My general practitioner gave me great advice ahead of my surgery, to contact my insurance company so I knew and understood my coverage and the rules of external prosthesis, but even then I got the short end of the stick (listen in to hear what happened!).

Remember that prosthetics are your new ‘forever’, being able to afford them or having coverage for them is highly important. Be prepared for what’s to come so you don’t feel like you’ve been duped. The reality is that you may be looking to get a new one every 3 years (most prosthetics have a 3 year warranty-at least that’s what I deal with as an above knee amputee with MPKs).

I wished more people had some of these basic facts before their surgery, but you learn as you go, that’s how my journey happened, and is still happening. Everyone’s experience is different, and you need to do what you need to do to embrace your new life as an amputee. The best teacher is time and experience.

 

 

 

 

This week is simple in detail but tough to execute.

Look yourself in the mirror and address what weakness you have and where you struggle the most in your life.

Are you weaker inner mental game or physical (being strong and healthy is important pre-surgery)?

Is your emotional state a struggle?

Be honest with yourself and really try to address your weaknesses.

Next, list your goals and dreams. Dare to go big! Manifest your future with positivity and standards you want to achieve and live up to. These will save you in times of struggle and give you incentive to keep fighting.

 

Being prepared doesn’t mean you won’t fall and falter, but it will give you a head start of your new life as an amputee.

Give yourself a fighting chance and reap the benefits of your preparedness and positive mindset.

You are stronger than you think and more resilient than you’ll ever know.

Rise up, Warriors, and prepare for battle!

 

Cheers to a blessed week ahead,

And until next week,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

 

 

Don’t Let Pain Gain Control

Don’t Let Pain Gain Control

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This has been a weekend!

Everything was set up perfectly. A family getaway for a long weekend, before our youngest goes back to college, and bringing the dogs to see the ocean for the first time. I couldn’t be happier!

We got to Carlsbad, California Friday late afternoon and took our pups for a walk. Dinner came and we fed them as normal but around 9:00 pm my year and half old pup started acting really weird, almost drunk. She tanked quickly after that, just as my boys were arriving. I called the All night pet ER and asked a few questions and was told by the doctor on call that she could’ve gotten into illicit drugs around the beach! Are you kidding me?!?!?

We took off for the clinic and when we arrived her heart rate was 160!

They gave her a sedative and took a urine sample to test.

We held her and waited. They continued to monitor her heart rate, which thankfully came back down to 70-80 bpm.

This is how our family vacation started! Needless to say I was completely stressed out and afraid for our pup. we brought her home where I monitored her all night long with no sleep….

Now let’s get to the pain part of this story.

 

Don’t get wrapped up in the moment of pain. Look out and see the beauty around you and a future that will get better.

 

This was the first full day in my newest socket since my surgery, add in the stress from the night and Saturday was painful! Phantom pains grew and I started to get a raw mark on my thigh from the top of the socket, plus for added fun, a stomach ache. I was a hot mess!

I did everything in my power to stay positive, deep breathing often and enjoying our beautiful view, but damage was done.

I didn’t get in the steps I had hoped I would get this weekend but I will take a small win- I wore my prosthesis everyday all day, even when I just wanted to take it off.

I let my husband know the pain I was in on Sunday as our kids were packing up to leave for home. I wanted him to know why I was a bit quieter than normal but that was it. I didn’t speak of it any other time, why? I won’t allow pain to gain power on my life. Even on those hard days. If it’s so bad that I can’t walk then I focus on what I can do to have a “win” in my corner-wearing it all day.

Our mind is so very powerful and when we allow pain to take over, consuming us, talking about it often and at every turn, that’s not healing that’s sabotaging yourself.

It’s ok to get quiet in those moments and allow yourself to muscle through hard times, just know that they will pass but talking about them can set you back and hold you down, downing you in the pain. It can be almost impossible to see a light at the end of the tunnel.

What do you do to help yourself in the midst of pain?

Do you give yourself grace knowing it’s a part of life or do you get consumed by pain?

What are steps you take to get your mind right when it seems impossible?

Do you have a good support system to help you navigate life during these trials?

Don’t give up, Warrior, this too shall pass.

Reach out and tell me how you are managing your setbacks.

And remember, you are stronger than you think.

Have a blessed week and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

 

 

The Secret Sauce

The Secret Sauce

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Letting Go and Leaning In

 

I have been an amputee for 6 1/2 years, but before that I had a taekwondo injury that took me through 5 years, 10 surgeons and 10 surgeries, plus a blood clot to decide it was time to start living again and make the biggest decision of my life.

Alone in the decision, I was not. I had an amazing support system with my husband, two boys and my family back home. I had friends rallying around me and a church I belonged to. However, I was exhausted.

I had put so much energy into saving my leg that I had depleted all of my positivity and resolve. How was I ever going to come terms with cutting off my leg?

Today I want to share with you all my story of Faith. I feel it is time to be true to myself and honor my beliefs.

I could NOT have done this without my “Secret Sauce”.

I get asked a lot how I handled making this big decision and how I keep going despite the pains and trials of being one leg down. I did NOT do it alone, but it takes something more than cheerleaders in my life. No, my “secret sauce” is greater than anything else, greater than my own drive or perfectionism. I needed to find peace and purpose in my decision.

If you are struggling my hope is that this brings some answers and help for you. Maybe you are curious as to where my positivity comes from or my resolve. Today I share my profound experience with my Faith that changed EVERYTHING in a moment…and I have never looked back.

I hope my experience helps you and opens a door you never knocked on. Let me know. Reach out to me with your own profound experience with faith over fear, or just let me know how you struggle. I would love to help you through my own challenges. There is no need to go it alone or to feel abandoned. You have a great cheer;eager in your corner that wants you to live a great life. Trust and look up, Warriors!

 

I hope you all have a blessed day and as always,

‘Be Healthy,

Be Happy,

Be You!!

 

Much love,

Hand Me That Weight

Hand Me That Weight

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We Need Each Other

 

 

We are creatures built to live in community.

This gives us a safe place to celebrate in great times, gain support in the bad ones, and everything in between.

Talking with people, sharing our journeys and stories, our ups and downs with others, plus listening to our friends and community during their moments is a beautiful symphony of give and take that allows us to feel valued and to give value to others.

I feel that when I hear people struggling that the one thing they are missing is connections with others and the outside world. I notice that about me too.

This past week after sutures were removed I decided I was in need of MY community,  the gym.

 

First day back at the gym since surgery on June 20

 

Despite the nerves I was feeling about walking thru the doors, missing my leg and clomping around on crutches, I felt at home and ready to push myself again.

People who knew me “showed up” for me with thumbs up, smiles, and positive comments that made me feel valued and supported. I was on cloud nine and pumped to be back again!

Those endorphines were ROCKIN’!

How about you?

Are you feeling alone and stuck?

Check below for some tips:

 

 

You were meant to deal with life in a community.

It doesn’t have to be huge, just people who love you, support you, are real with you, and hear you.

It is also. place where you can reciprocate those values through being a great listener.

Remember; Give and Take.

So this week, FIND YOUR COMMUNITY!

Women amputees, join my virtual meet ups through Facebook Events on Zoom, every Wednesday at either 4:00 pm or 8:00 pm EDT.

Pick up the phone and connect with a friend.

Get back to what you love, even if you’re on crutches or in a wheelchair. Time to ditch the vanity, and embrace the moment you are in right now, it won’t be forever. And if it is, even more reason to embrace it NOW! This is you, time to move forward.

If you like the gym, find a way to get there.

If you love book clubs, join one and create a new community for yourself.

Maybe you have a neighbor who would love some company, wouldn’t you?

It’s time!

Community also means you have people from whom you can ask help. I know for many of us, asking for help looks like we are conceding and are weak, but I am learning that asking for help is a sign of growth and knowing that in this moment, I can’t do everything I want to be able to do. You aren’t giving up or quitting, just accepting limits right now.

So get out there, connect, make new friends, reach out to old ones and live your life where you are at right now! Don’t wait for things to be perfect, that time will never come.

Make your life what you want, start now.

Rise up, dear Warriors, you are worthy!

 

Have a blessed week.

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

 

 

Starting Over and Facing Fears

Starting Over and Facing Fears

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Life after Revision Surgery for an Amputee

 

 

I must have been crazy, right? To CHOOSE to revise my amputation! To go from being uber active to starting over?!?!

Golfing on Kauai

 

Having fun catching waves

 

At the beginning of this interview process, to be eligible for the AMI procedure, I was very interested in the idea of being a part of something so “cutting edge” (pun intended) and chose to continue through the several interview steps to see if I was even eligible.

When it came down to having to go out to Boston for a face to face interview I knew that it was getting very real and that the decision to have it done was going to be all mine. That’s when I started to second guess myself and the reason why I would want to go through that again.

Decisions need to be made, but with a good, clear reason and with no doubts. I couldn’t do something like that again, and have my family be put out because of it… and what if? What if I was as good as I could get? What if I feel more phantom pains? What if, this time I get an infection and start down a harder road than ever before?

I will tell you that I never put those questions in my head or spoke of them before the surgery, but the reality is, those are the concerns that hide in the dark, when you are anxious, vulnerable, weak. These are the doubts that create fear, and then stop us from charging forward and achieving greatness.

Needless to say, my CT scan showed something that had to be dealt with that had nothing to do with the AMI and everything to do with the pains I had been dealing with for 6 years! THAT was what made my decision one I was at peace with. Now here I am 3 weeks post-op.

Starting PT the day after surgery and having those flooding pains upon walking

 

My biggest support and the guy who has always had my back! <3

 

Back at the hotel and trying to rest

 

Fear is such a disabling emotion. It stops us from trying new things, meeting new people, and reaching our goals.

I don’t know about you but I don’t want to live a life where I’m not reaching out and living a full and amazing life because fear holds me back.

What fears are stopping you? What goals are you not hitting because you worry about the “What ifs”?

 

 

This week and each day in it I want you to face a fear!

It doesn’t have to be huge, like jumping from a plane, but what’s holding you back from living a full and happy life?

What scares you?

What goals have you been sitting on because something keeps you from achieving them, that YOU control?

Let’s face those fears together and start living!

You are a warrior, you need to believe it and know you have that within you!

You are strong, powerful, and capable!

Now get out there and SLAY YOUR FEARS!!!!

F-ace

E-verything

A-nd

R-ise

 

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

Stressed Out!!

Stressed Out!!

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Dealing With Stress to Alleviate Phantom Pain

 

Ahhh, stress!

It wouldn’t be a day or a week without something triggering stress. A bid decision, a deadline, a fight with a friend, or even traffic!

As amputees we also face the uphill battles of healing, socket fittings, sores and painful steps, and phantom pains. Sometimes it feels like we never get a break. It feels like the weight of the world is placed on our shoulders and we can’t come up for air.

What we all need to learn is that every time we feel stressed out we have, in our own power, the ability to change the outcome. We control the narrative and we control how we come out on the other side.

“Mind over Matter” isn’t just a cliche it is truth.

 

 

When we hold in stressors we destroy our immune system, disrupt our nervous system, and create more problems than we need to.

We need to find ways to release negativity and stressors in our life. They will always be there, so instead of letting them take control and reeking havoc on your health you need to find ways to work through them and find a peace in your life.

When we learn to breathe, slow down, relax, and let go of the things we cannot control, then start feeding our mind with positive and affirming words we can begin to heal ourselves and give our bodies a chance to heal.

This week I challenge you.

 

 

Find time to slow down and breathe slowly and deeply through troubles and stressors you are feeling. Realize what you can control and what you cannot. If you can’t control something it’s time to let it go.

Use animals to help you find quiet time and centering. Horses especially are extremely intuitive and can read you from a mile away. If you bring in negative energy or a lot of “baggage” they won’t want to be close to you, and I don’t know about you, but I go see my horses for the kisses and love they pour into me. If I come preoccupied and upset, holding onto something negative, they sense it and walk away from me. I must clear my mind and center/ground myself if I want meaningful interaction with them.

 

Our closeness happens when I let my fears, anxiety, and stressors melt away and I focus on being present with my girl.

Words of affirmation and positivity. Speak them and repeat them as often as you need to about yourself until you have created a positive mindset. If you consistently beat yourself up over little things or become negative about your healing then this is where you need the most work. Our brain is a very powerful tool that believes what we speak into it. Speak only good and positive and watch your circumstances change for the better!

 

 

Finally, have grace upon grace for yourself. You won’t be perfect and you will stumble as you go through life, we all do, the challenge is to pick yourself back up, dust yourself off, and try again.

You’ve got this and I know you can do it. As you begin to make the changes needed to reduce stressors in your life you will start to notice phantom pains not being your focal point which then makes their grip on you much less.

Don’t give your pain power! Deny them and don’t continue to talk about them. The less time you pay attention to the pains you feel the less likely you are to be consumed and debilitated by them. You deserve better!

You can do this!

Be positive, breathe and focus on the positives! Watch your stress melt away and your phantom pains calm down.

Wishing you a week filled with health and happy thoughts.

And as always,

Be Healthy,

Be Happy,

Be YOU!!

Much love,

 

 

That’s A Wrap!

That’s A Wrap!

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Loss/Limb Difference Awareness Month 2025

 


Garrison Hayes and Eric Gutierrez-Camacho
Colorado State University

John McCollough: MIT
Ophelie Herve: UCLA
Mira Mutnick, Jake Kanetis, and Marty Kilbane
Colorado State University

Dan Levine: MIT

As April comes to a close we say a huge thank you to all of the university students ts who came on to share what they have been working on, in the fields of mechanical and biomedical engineering, robotics, and media arts and sciences. All of these amazing students have a passion for assisting and improving the lives of people in the amputee community with their genius and creative enhancements to prosthetics, sockets, surgical procedures and research.

I cannot thank them all enough for caring so deeply for our community and for working so hard to improve it.

As this month closes out I want to entice you all to subscribe to my channel as next week we begin to explore phantom pain.

I have a professor from Harvard coming on to talk about his study into how the mind works, and how it can be used as a tool to combat phantom pain. Very intriguing conversation and maybe a few cues for us amputees to use to begin taking charge of our bodies without the use of drugs.

Please make sure you stay tuned for future episodes!

hHave a very blessed and wonderful week,

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

much love,

The Future is Now: Part 5 of 5

The Future is Now: Part 5 of 5

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MIT

Dan Levine

 

As we wrap up this Limb Loss/Limb Difference Awareness month I am also interviewing my final university student who has been working towards his PhD at MIT. Dan started his journey at Cornell with a degree in Mechanical engineering and Computer Science and is about to graduate from MIT with his doctorate in Media Arts and Sciences.

Dan had a fascinating beginning as he was able to spend some younger years in Thailand as his parents were working in the medical field. His excitement about nature and anything is possible to create if we just look, observe and study what is around us shows us that the brain is such an amazing muscle that can come up with the seemingly impossible, like making prosthetics more advanced and allow the amputee live a life as if nothing has changed for them. That is what the studies at the MIT Media Lab aim to accomplish.

He has had his hands on several projects in Assistive Technologies and as of late been working on advancing bionics in the ankle prothesis.

One very unique experiment he did was to create a video game based on movement technology for his non-sighted friend. Below is the board they actually used to accomplish this task.

 

This board was used to “translate” Mario Bros for his non-sighted friend

 

As I have stated each week this month, the field of mechanical, biomedical engineering and robotics is so very competitive around the nation and some discussions of these students’ projects cannot be divulged until they finish their dissertations and get published, so we discuss what we can during these interviews. My hope, though, is to whet your appetite as to what is coming in the world of prosthetics/bionics and the study of the human body in order to aid the amputee community.

 

Dan’s team of undergraduates enjoy team building time.

 

Another aspect of being at this level of his degree is bringing on undergraduates to add insight and diverse thinking to projects. As Dan worked with these students as a team they are able to all bring their specific talent to the projects and as Dan stated their level in school does not determine their level of expertise. Each team member is valued for what they bring to the table.

Dan has had the opportunity to explore, create and design a more robust and technologically advanced foot model to help be a more natural replacement of our natural foot, using the idea of biomechatronics, energy return, and studying our natural gait to help with his design.

 

Dan in the Media Lab working on specific parts of his design.
A very hands on project after the detailed research of measurements and calculations.
 “Measure twice, cut once” is more his philosophy.

 

I am totally amazed and completely impressed by Dan’s imagination, thoughts, and unique view of the world. It takes very special people to be in this space, creating the next great technological advancement in the engineering world and because of people, like Dan, our amputee community will be seeing some incredible advancements to our devices and thus our ability to live the best, most full life, as if we were not missing anything.

This is truly something to be celebrated!

Thank you, Dan, for spending your time with me diving into the world you have been in these past 6+ years. The devotion, the exhaustion, the hard work and at times, I’m sure, the frustration of getting things completed the way you envisioned them and the successes you have accomplished I thank you! Our community thanks you, for bringing us one step closer to higher potential (pun intended!).

And for all of the university students out there trying to make our world a better place, we see you and we thank you from the bottom of our hearts.

I look forward to what the future holds for myself and other amputees. A world where nothing inhibits us from achieving all of our hopes, dreams, and goals.

I hope you have all enjoyed hearing about the technology and advancements these young adults have been working on. Please help me spread their names and accomplishments by Liking, Sharing, and Subscribing to my podcast. My hope is to check back in with them in the near future to see the strides they have made and I wouldn’t want you to miss that!

 

Thank you and have a very blessed week!

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

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