Tag: ability

It’s Not Just You

It’s Not Just You

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Normalizing Phantom Pain

 

No matter what you think, every amputee has issues at some point or another.

No one is exempt from phantom pain or phantom sensations even though it appears as they do.

Most successful people, meaning those who appear to be living their best life after amputation, do not sit around thinking about phantom pain or wallowing in it, they keep moving, they keep pushing through it, until they make it through…for at least that episode.

I was once told that talking about it and harping about the phantom pain only gave it power over me, so I try very hard not to talk about it.

Moving through an episode, that is what I call them because they come on quick, last for a brief moment in time and then disappear as quickly as they came on…only to be repeated again in the future. But moving through an episode can be a lonely place and often times hard. Making a decision to keep doing life despite it and not letting it get the best of you takes mental fortitude. Some days I feel like I have it…other days, not so much.

This week is one of those weeks. Monday I struggled all day. Tuesday I forced myself to the gym and grocery shopping, only to feel exhausted by the end of it all and only to find it tough to get sleep Tuesday night… BUT, I made life happen for me, not to me!

I chose to get active and I felt better that I had, mentally, even though physically I was still struggling.

You have to choose your battles. Know when to push through  and know when your body and mind need a break.

Just don’t give up and never, for a second, think you are the only one that is struggling. You are NOT.

Be strong, dear Warrior! You will get through it!

 

I hope you have a blessed week and one filled with positive momentum forward!

U

ntil next week and as always,

Be Healthy,

Be Happy,

Be YOU!!

much love,


Staying Motivated

Staying Motivated

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How to Challenge Yourself Through Life’s Storms

 

What do you when you’ve lost your motivation?

What has you derailed?

This is often a problem for anyone going through a medical issue, including amputees.

As a 5 year amputee myself, I have a different story, one I want to share.

I spent most of my life participating in sports of one kind or another, only taking a break when we started our family.

As the boys grew so did my desire to get active again, for myself, my physical and mental well-being.

I joined karate with my kids when they were just littles, and I really enjoyed the challenge of it and feeling a part of something.

Unfortunately, onely about 2 years into it I tore my MCL which led to multiple surgeries over 5 years. I gained weight, a lot, and lost my drive.

When it got to a point that I wasn’t going to get better, and I had tried everything, a blood clot came along to drive me to the lumeing decision to amputate, and that I did, 5 years after the initial injury.

At this point, I was prepping my body and mind for what was to come and with that I began to set goals and challenges, after all I was ready to attack life once again…too many years of sitting around on my butt.

The very first challenge was learning how to walk again.

The beginning of the journey-My first prosthetic and me at my heaviest since my injury

 

 

This was no easy task and with the pain of amputation/surgery, ill-fitting sockets due to atrophy and weight change, and the actual weight of the prosthesis, I was in for a really challenging few months. But I was determined.

 

For the first 3 years the volume of my residual limb changed a LOT!

 

I had to learn to put my mindset into the positive and in hyper-overdrive. I needed to find something to push me, so I decided on virtual races.

My virtual race medal wall. My motivation to keep going!

 

I could do them on my time, in my area, and with no one else around. I was going to use these races to push myself to wear and master my prosthesis. My very first race was 150 mile spring virtual race! I calculated my daily miles to figure out how to finish on time and then set out to walk the miles.

Can I tell you, in all honesty, that the first day I set out to do my 2 miles (easy, right?) I could only muster up the energy and tolerance to walk to our mailbox!!! 1/4 mile total walk! I was doomed!

But, the next day I got started and walked another block further than the day before. I continued on this path, having good days and bad and taking advantage of the good days, and pressed forward. I was determined to win this mental and physical challenge, each and everyday!

Was it easy? Not a chance! But it was plausible and that was all I needed to rise to the challenge and succeed.

Some days I could get my 2 miles in, and then the very next day I could only go as far as around the block.

I tell you this because the path isn’t always straight forward. You can be doing really good one day and then nerve pains, or the fit, can take you out. You should know this going in so as to give yourself some grace and not get down on yourself.

I talk about Practice makes Permanence, not Practice makes Perfect. 5 years in and I still have days where I see my gait looking lazy or off, I still watch and correct, but I have learned muscle memory and I know right from wrong as I walk.

Practice makes permanence

 

Setting goals early on in your amputee journey, or any journey for that matter, is important to building healthy habits. There are no shortcuts to figuring it out, you just need to put in the work and build experience. A great basketball player doesn’t just shoot during the game, they practice that free throw hundreds of times a week, maybe even a day, to build muscle memory and get the form down. Why would learning how to walk again in a prosthetic be any different?

Spend the time in it, get use the feel, get good at the stride, practice the little things everyday, and take breaks when you need them, but keep pushing. It will come and then you’ll be able to move onto the next challenge you set before you.

 

 

Of course this week’s challenge is to challenge yourself.

Set a new goal, one that you know you can accomplish without it being too easy. Pick something you have been dying to accomplish (like getting stronger walking in your new prosthetic). Now figure out a plan that will get you from point A to point B, and give yourself a specific deadline. Mine happen to come with their own deadlines, being virtual races had “complete by” dates assigned to them. They were a challenge, for sure, but it was good for accountability reasons. I couldn’t wiggle out of those deadlines, not if I was being true to myself, and why wouldn’t I want to be true to myself? Don’t I deserve that?

You can do this.

Drop me a message and let me know what you’re challenging yourself with and then get after it!

You can do this!

You are a warrior, so attack life like a warrior!

 

I hope you found this to be motivating and you take on this Call to Action.

Have a beautiful week, and until next time,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

My funny girl
Purpose in the Waiting

Purpose in the Waiting

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Like a little kid excited and waiting for Christmas morning with great anticipation only to be sad when the presents are all opened, stockings are emptied and bedtime arrives once again.

We too, can find ourselves wrapped up in waiting for life.

We wait for the next appointment, the next fitting, the next promotion, the next relationship, the next thing to be excited about. But what about now? What about the moments that are hard and challenging? Are you letting life waste away and pass you by while you wait or are you living with intention and purpose?

One place I find my purpose

It’s hard, I understand that. As an amputee we spend the first 2-3 years just waiting on healing, the next socket, the insurance company, the follow-up appointment, refitting, adjustments, etc, etc, etc.

Just when we think we have everything going well with our leg something changes, and we start all over again.

I spent the first 3 1/2 years changing and fluctuating before I got my latest socket which I have been in for over a year. And yet, I still have my moments that are hard and challenging. Isn’t that life?

How about you? What’s got you stuck? Do you know what you’re living for?

 

 

This week, if you are in a funk and can’t focus on the present find someone that you can reach out to and help.

Maybe a neighbor could use a visit, or a friend needs an errand run. Whatever it is, whomever you choose to help, realize that you can do so much good and real live your life even in a season of waiting.

Sometimes the first step in helping ourselves is to think about others and find our purpose in being a help to them. Finding purpose in your waiting is key to happiness and feeling content. Remember that when you wake, and have breathe in your lungs then you are meant to be here and to make a difference in the world.

Go out and seize each day, live your life don’t wait to live it.

Tomorrow isn’t promised.

Let your warrior out and rise up! You deserve to live and be happy, even in the waiting.

 

Have a blessed week.

As always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

Compete

Compete

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Find Your Purpose, Set Goals, and Get to Work

This is me BEFORE my knee injury that led to amputation

Competition gives you focus and direction in life. It helps to define your day, provides a sense of purpose, and helps build character and resilience.

All my life I have been competitive. I had big brothers around always “toughening me up”, and sports were an every moment event, whether competing on our home basketball court or joining teams that played every weekend.

I think these moments served me well, and prepared me for a life after limb loss.

For some of you, the journey has been a long and hard one. It hasn’t been easy and you may feel like giving up.

Maybe you even think that “this is as good as it gets”, but I’m here to tell you, DON’T GIVE UP!!!

You can do this! Last week I talked about mindset, well, this is the time to put your mindset to the test and work on positive self-talk.

 

 

On the hard days, when things hurt or you feel out of sorts, or maybe you are not at a point of wearing your prosthetic yet, you may get discouraged…heck! Maybe you ARE discouraged. Now is the time to buckle in and dig deep. This is the time to set those goals and reach for them.

When I find myself in the struggle where pain is winning and I feel like doing nothing and getting depressed about this moment in life that things aren’t going as planned, that’s when I find something to take my mind off of it. I usually find something that brings out the competitor in me. This gives me a goal, a purpose, and consumes my time which takes the attention off of what I’m struggling with.

 

How about you? What do you do to fill your time? Give yourself purpose? Or distract your thoughts changing them into a positive flow?

 

 

Now it’s your turn.

Let’s turn your situation into something positive and meaningful, even if you feel like everything is going wrong and you aren’t where you want to be.

 

Set goals.

Be realistic but challenging.

If you aren’t able to wear your prosthetic just yet then don’t get down on yourself, remember life is a journey, the good and bad of it, so make some lemonade while you wait.

Once you’ve reached those goals, then go ahead and set more. Keep creating challenges for yourself. Setting yourself up for success in the waiting will eventually make you see that you are not waiting for life to happen to you anymore, but that you are living it.

 

Enjoy the process.

You deserve it and you are strong enough.

You are a warrior!

Hope your goal setting is epic just like you!

And until next time, and as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

Believing in Yourself

Believing in Yourself

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Your Mindset is Your Greatest Asset

 

When it comes to getting it done, or being challenged to push through something tough in life, how do you fair?

Do you struggle to feel accomplished?

Do you feel like you are drowning and there is no way out?

Or how about giving up because the going got tough?

 

 

If this sounds like something you have been through before, or are going through currently, then it may be time to check your mindset and your self-talk.

There is no denying that life will through you curveballs.

Back in 2013 as I was literally kicking butt in karate for my 2nd degree black belt, I would never have thought I would have hurt myself, gone through 10 surgeries, gained almost 60 extra pounds and then elect to amputate my leg above the knee.

Just writing that sounds absolutely crazy and a horrible fiction story. But that was my reality.

Those were tough days, months and years- five years to be exact, and making the decision to amputate wasn’t the end of that journey but a beginning to a whole new shift in my life. I still had to struggle with pain, swelling, adjusting to my new body image and learning to love it. I had problems with fitting prosthetics, I had a huge neuroma that a year after my amputation I went under the knife again and had it removed. Through all of these trials, however, I was being conditioned and building my resilience to my new lifestyle.

Each of these steps I had to figure my way through physically and mentally.

Each of these moments was leading me to a better understanding of myself, my tolerance, showing my strengths and my weaknesses, so I could become better at handling the curveballs of life.

What did I find that helped me?

 

 

 

MINDSET MATTERS!

What I tell myself, how I speak to myself with my inner voice (and sometimes my outer voice). I realized that my words and thinking  could lift me up and allow me to soar,  or it was going to be my demise with negativity. Through trial and error I learned and grew.

I take challenges head on now. I am competitive with myself, and I know that my mind, my energy, and my will to succeed has brought me through tough times. I believe how I think is what has made becoming an amputee a life giving second chance for me versus my undoing.

 

 

I am no one special, but my ability to see the positive in my situation has helped me become more successful as an amputee.

It hasn’t been easy, even though it may appear that way. What you perceive as me “easily” going through something really hard has had it’s challenges, it’s pains and problems, I have cried and I have been angry, but at the end of the day I choose positive!

 

How about you?

 

 

I didn’t add a Call to Action in my podcast, forgive me. Got out of practice with April being all interviews but here’s one for those reading my site.

 

Check your attitude today.

What’s your mood?

How do you feel about yourself and your situation?

Now ask yourself if you can control what’s happening?

If you cannot control what is happening to you then this is a great time to practice patience, positive self-talk, getting active to change your thinking, and setting some goals to keep yourself motivated during the hard days.

You will get through this.

You were designed to be stronger than your circumstances, you only need too believe in yourself.

You are special!

You are unique!

You are loved!

 

Have an amazing week, be blessed.

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

 

Inventors & Innovators: Hugh Herr and Biomechatronics

Inventors & Innovators: Hugh Herr and Biomechatronics

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The New Age of Bionics

 

 

What happens to you when you find yourself in a do or die situation?

Hugh Herr was in that position as a teenager, barely making it out alive while doing something he loved and excelled at, a savant at his young age. But he didn’t make it out unscathed, he lost both of his legs below the knee.

What would you do? At that young age would you have given up, abandoned your dreams, or hid from life?

Would you believe that this situation inspired Hugh to become a creator, inventor and innovator in the prosthetic world?

He went from a kid set on rising to the top as a professional climber, to figuring out how to navigate life AND climbing again as a bilateral below knee amputee with prosthesis he created!

He changed his path to one of college and higher education. Getting his masters and doctorate degrees from Harvard and MIT, and is currently a professor at the MIT Media Lab and co-leads the Yang Center for Bionics at MIT.

He is known for creating bionic limbs that emulate the movement of natural limbs and has been called the “Leader of the Bionic Age” by Time Magazine.

He has TED talks, authored/co-authored over 200 peer-reviewed manuscripts and patents, and most recently Hugh and his research group invented the Agonist-Antagonist Myoneural Interface, which is a surgical procedure for limb amputation that allows the person with limb loss to control their synthetic limb with thought.

His research and studies are beyond amazing! The ideas and possibilities to come for those of us with limb loss from what he is inventing are going to be incredible and will make losing a limb less traumatic and more doable with the hope of what we will be capable of accomplishing with such high-tech and realistic bionics.

The age of bionics is growing by leaps and bounds and this past December 2023, I was blessed with the opportunity to work in the MIT Media Lab, meet Hugh, and participate in the current studies with several PhD students. I was blown away, to say the least, by what they are working on and what will be out on the market in the not too distant future. We are going to be seeing more stable, more controllable, and more comfortable fitting prosthesis which will give us our lives back and with more meaning.

 

So, yea, the first time I get to meet Hugh I look like this! Strapped in and ready to do research for the greater good!

 

This week, as we close Limb Loss/Limb Difference Awareness Month with my 4th and final interview with such an important innovator, as Hugh Herr, the pioneer of our bionic age, you do NOT want to miss what he shares about what is up and coming in the world of prosthesis and bionics.

Join me and Hugh Herr for this incredible interview!

Please share today’s podcast to bring hope and excitement for what’s to come to those in our amputee community.

Again, thank you, Hugh, for giving me the time to talk with you, pick your brain, and for your genius and creativity in helping us gain back our independence and ability to move smoothly despite our limb loss. I am truly inspired and excited for the future.

 

I hope you all enjoy today’s podcast and as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

John, Me and Tony-PhD students from MIT that were in charge of the study.

 

You can watch the NOVA production of Hugh Herr’s life: NOVA “Augmented” HERE

 

Inventors & Innovators: Surfing Brings Healing

Inventors & Innovators: Surfing Brings Healing

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Adaptive Surfing with Swell Surf Foot

 

 

The Ocean is healing.

The Mana (power) of the ocean has a way of grounding you and setting you free so you can soar. It’s an unbelievable feeling!

Just before my 1 year anniversary of my amputation I traveled to Kauai and tried my hand at surfing. I hadn’t been able to get in the ocean, or really any water, for over 5 years due to surgeries and my inability to maneuver because of my injury. I was excited, and nervous.

Once I learned the basics I found a rhythm to surfing, a rhythm to the ocean. I felt the energy it had, and I felt that energy surge through me.

I no longer felt nervous, I felt carefree and alive, and I felt that ANYTHING was possible!

Today I talk with Zach Samalonis, the co-creator/inventor of Swell Surf Foot. He and Yuhan Zhang started this endeavor for a college course. They talked with surfers in the amputee community to get the data they needed to create a prototype, then designed, created and then got a few of their original designs into the hands of amputees ready and willing to try it and give feedback. I was fortunate enough to be one of them.

 

This is my original surf leg and foot alongside the Swell Surf Foot prototype.

 

Today we discuss how this adaptive equipment came to life from thoughts and research to designing and creating.

What amazes me is that neither Zach or Yuhan are amputees, but they were charged with finding a problem that needed to be solved and a community that needed their help for their capstone project their senior year at Thomas Jefferson University. The Swell Surf Foot can help bring surfing to more amputees and also brings those people to the ocean for healing. This low cost, water-proof prosthetic was developed with an increased ankle mobility to allow for correct surfing mechanics. In a world where most adaptive surfers have repurposed and fashioned make-shift surf feet because there was nothing on the market, this was filling a need, and want, in our amputee community.

What a beautiful gift their innovation is for adaptive surfers around the world.

Their dedication solving a problem and filling a need is genuine.

In a world where big companies rule the market, it is awesome to see individuals creating and making their mark.

Listen in to hear Zach talk about their inspiration, production, and dreams for the future of their product.

Find them online, give them a follow, and reach out to them if you’d like to try their product in it’s next gen status when it comes out.

 

Thank you Zach for your time today and sharing your story.

I look forward to putting on your surf foot again soon and feeling the freedom and energy of the ocean. Thanks to you and Yuhan, I have found a foot that brings comfortability, grip, and steadiness to my surfing sessions.

 

The ocean is a place for healing and finding freedom.

The Swell Surf Foot is a step in the right direction to getting more amputees out, active, and giving them the peace they need to move forward.

 

Have a blessed week and make sure you subscribe and share so that you and the people you care about don’t miss the amazing people coming up next on this podcast; each making a difference in the lives of amputees everywhere with their creativity, ingenuity, and dedication!

Check them out on Instagram @surfwithswell

or at Zachsamdesigns.com

 

As always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

Inventors & Innovators: TheraV for Phantom Pains

Inventors & Innovators: TheraV for Phantom Pains

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TheraV Founder and CEO Amira Radovic

We are kicking off Limb Loss/Limb Difference Awareness Month (LLLD) with the founder and CEO of TheraV.

Amira found her passion to help people by creating a non-invasive, non-pharmaceutical device that helps soften phantom pains through the use of vibration therapy.

Phantom pains are a very real, very painful, and often times disabling reaction after losing a limb. Most amputees will experience some level of phantom pain throughout the course of their lives. I would also say that all amputees feel some sort of phantom sensation (a feeling that the missing limb is still there and feels like pins and needles or a numbing sensation), I know I feel that everyday, all day, but I have become accustom to them.

Phantom pains, on the other hand, are intense. They come without warning, last days, sometimes weeks, and can feel like you are being shocked, set on fire, or like a knife stabbing your limb and cutting you open. I have had the distinct privilege (sarcastic voice) of experiencing those crazy, uncontrollable, and sleep depriving pains four times in my five years of being an amputee! I wouldn’t wish that on my worst enemy!

Amira’s father was a civil engineer and she had dreams of becoming an engineer, herself. She said she was always fascinated with the idea of using technology to enhance the human ability so she studied biomedical engineering at the University of Delaware. As a junior she had an opportunity to work at a prosthetic office. There she was introduced to the mental and physical pain that came with limb loss and the reality of phantom pain. She worked for years and talked to many amputees to come up with her TheraV for phantom pains, despite the lack of data and the stigma that surrounded phantom pains.

This week I had the honor of having her on my podcast to share where her idea came from, how it works, and where she’s taking it next. Like all great inventors, she is continuing to dive deeper into the mysterious world of phantom pains, what produces them, what helps, and how she can improve her already amazing product.

I am grateful for the time I got to speak with her and to hear her story, her passion, and what got her into the world of amputees and phantom pain.

An amazing thing about TheraV is that it can also be used by able-bodied individuals for things like restless leg syndrome or CRPS! Amazing, right?

If you are struggling with any of these issues, and would like to be rid of medications you might consider giving TheraV a shot.

Check out her website HERE.

 

With a world of big Pharma and large corporations it’s hard for the individual to break into the market. Please visit TheraV website, check them out on social media and give them a follow. By purchasing your own therapy for your home you not only have a safe way to manage pain you are helping Amira reach more people and giving them a chance to live without pain.

Thank you, Amira, for joining my podcast this week and for all you are doing for our amputee community.

Phantom pains are real pains.

Your research and devotion to reducing and eliminating them is so commendable! Thank you!

 

 

 

Remember to subscribe to my podcast so you don’t miss out on a month packed with inventors and innovators who are making a huge impact in our amputee community! also. p

lease share this link and podcast with someone who could benefit. My goal is always to help empower and educate those in need. Help me make an impact this month!

 

Thank you and have a blessed week.

As always,

Be Healthy,

Be Happy,

Be YOU!!!!

 

 

Much love,

 

 

 

 

Fear of Being Uncomfortable

Fear of Being Uncomfortable

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Skiing as an Amputee

 

The Canyons, Park City, Utah 2024

 

I don’t know about you but, sitting in a lodge, sipping a drink in front of a fire sounds wonderful. Doesn’t it?

However, I did that for 5 years, while my family all skied and I sat there with tears in my eyes, missing those special moments I knew I’d never get back.

My husband taught me to ski when we were teenagers. We had dreams of teaching our own kids someday and the retiring and skiing through life. 2013 struck me with a knee injury that sidelined me for 5 years! Then, by 2018 I elected to amputate my left leg above the knee.

 

My first goal, 3 1/2 months after amputation?  SKI!

Nice and easy

 

This is why I face my fears

 

Looks like I have 2 legs!!

 

Fast forward to last week and I can honestly tell you that despite my love of skiing and being with my family up on the mountains again, the fears I face before each day really try to take me down. Facing fears is no easy task, and yes, while sitting by the fireplace and sipping a drink in the warmth of a lodge is amazing, NOTHING compares to facing your fears and coming out on top! Not to mention, I will never regret getting out and living my life versus watching it pass before my eyes. I want to live life, and maybe that’s a product of being sidelined for so many years, but I won’t allow my irrational fears take me out of living my best life with my family.

 

Of course I’m going to challenge you to face a fear of yours. You don’t need to be an amputee, either. We all have fears that we can choose to face or turn away from. If you have been turning away, now is the time to stand up straight, adjust your hat, and take it head on! You won’t regret trying, succeed or fail. Because no matter the outcome, you did it! You faced a fear, overcame that emotion and gave it your best. No matter the outcome, you will know you tried and can feel great about yourself for going the distance.

Don’t let fears derail you and your goals. Stay the course, buckle down for the ride, and know that there is no sweeter victory than facing your fears like the true warrior you are and were built to be!

 

So today, decide what you are afraid of and take it on! Despite the butterflies, emotions that well up and want to hold you back, and no matter the outcome. Just go for it!

Rise up, warriors, rise up and face your fears head on! You will NOT regret it!!

 

Have a beautiful and blessed week!

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

Maybe I’ll see you on the mountains some day♥

“Normal”

“Normal”

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Don’t Be Normal, Just Be YOU!

 

A word I try very hard to stay away from using in dialogue is “Normal”, as in, “Is it normal that I haven’t healed yet?” or “Is it normal to feel this way?”, or even “Does my limb look normal to you?”

 

The reason I stay away from it is because we are all so very different that there cannot be a NORMAL, or Norm.

We all heal differently, we feel pain differently, we became amputees because of different reasons.

We are different sexes, ages, fitness levels, etc, etc, etc.

I say just be YOU!

Learn what your new “normal” is, and how that changes day to day or even hour to hour as an amputee. Only you can decide what doesn’t look or feel right for you and your circumstance. And when in doubt, don’t ask Social media, call your doctor or medical professional.

 

 

 

 

This week practice keeping “normal” out of your conversations and just listen and tune into your own body.

Accept that you are uniquely and wonderfully made and there is only one you and YOU are normal, for you!

Have a blessed couple of weeks as I will be off next week doing family time.

And as always,

Be Healthy,

Be Happy,

Be YOU!!

Much love,

 

 

 

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