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Facing Setbacks

Facing Setbacks

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Setbacks to Comebacks

 

Life is full of ups and downs and as an amputee we must realize that we will face many more challenges, past the amputation itself, years later.

For one, our sound side becomes extremely important to us. Taking care of our good joints while still trying to live a full and healthy life yet protecting what we have left becomes a balancing act and can be very scaring when things go wrong.

We also struggle with pain in our residual limb when our socket doesn’t fit correctly or a neuroma decides to show up.

My current situation is a strained lower back because I work so hard with balance and bending over to pick things off the floor, all on my sound leg which puts undo pressure and tension on my lower back on the opposite side. That is my current setback, and it is not only painful, it’s frustrating!

I have 2 weeks until I take off for Boston to go through extensive reconstructive surgery on my residual limb, plus a unique procedure created by MIT and my doctor. My goal 2 weeks ago was to eat well, cut our alcohol and get back to the gym daily to get in the best shape for this surgery. Literally the first week into that plan I tweaked my back! Now I am trying to be patient and waiting for the slow healing process my back is going through.

 

1 year after my amputation I found a neuroma in my hamstring and had to go thru another surgery!
Stayed positive but at times it was hard, starting over with healing is hard!

 

Not being able to wear the prosthesis while healing can break you but setting goals and looking to the future helps. Stay positive!

 

What I have learned through all the setbacks since becoming an amputee:

-This too shall pass

-Stay positive

-Set goals

-Use this time to do what you CAN do at this moment.

-Setbacks tend to be moments that are setting you up for a comeback. Be ready!

 

Look to the future. Dream! Stay focused on your goals and objectives!

 

If you are going through a setback now, don’t get discouraged just keep focused on the positive and the future.

It is not the end, it’s just a moment for your mind and body to be prepared for something more.

 

 

This week I challenge you to be still and focus your attention to what you CAN do and positive thoughts during a setback or a rough patch.

Try these steps out:

-Realize that this moment won’t last forever.

-Use this time to stop and listen to your body and realize what it needs to heal, usually it is telling you to give it a break and let it heal.

-Set goals for yourself to do once your setback fades away.

-Visualize yourself being successful and accomplishing your goals. Visualize positivity!

-Remember your “Why”. What are you doing this all for? Yourself? Your mental health? Your family? Your job? What is it that drives you forward? Your “Why’s” should be clear because they are what will help you in hard times and when you feel like you are all alone. The Why’s are your motivation to keep moving forward.

Of all the setbacks I have endured since becoming an amputee, one thing has been certain, the hard times end and the comebacks win!

You are a warrior! Believe it! See yourself as the strong individual I know you are.

Have an amazing week ahead.

Get after this Call to Action and reach out to me if you have questions or want to give me an update on how you’re doing.

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

Stressed Out!!

Stressed Out!!

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Dealing With Stress to Alleviate Phantom Pain

 

Ahhh, stress!

It wouldn’t be a day or a week without something triggering stress. A bid decision, a deadline, a fight with a friend, or even traffic!

As amputees we also face the uphill battles of healing, socket fittings, sores and painful steps, and phantom pains. Sometimes it feels like we never get a break. It feels like the weight of the world is placed on our shoulders and we can’t come up for air.

What we all need to learn is that every time we feel stressed out we have, in our own power, the ability to change the outcome. We control the narrative and we control how we come out on the other side.

“Mind over Matter” isn’t just a cliche it is truth.

 

 

When we hold in stressors we destroy our immune system, disrupt our nervous system, and create more problems than we need to.

We need to find ways to release negativity and stressors in our life. They will always be there, so instead of letting them take control and reeking havoc on your health you need to find ways to work through them and find a peace in your life.

When we learn to breathe, slow down, relax, and let go of the things we cannot control, then start feeding our mind with positive and affirming words we can begin to heal ourselves and give our bodies a chance to heal.

This week I challenge you.

 

 

Find time to slow down and breathe slowly and deeply through troubles and stressors you are feeling. Realize what you can control and what you cannot. If you can’t control something it’s time to let it go.

Use animals to help you find quiet time and centering. Horses especially are extremely intuitive and can read you from a mile away. If you bring in negative energy or a lot of “baggage” they won’t want to be close to you, and I don’t know about you, but I go see my horses for the kisses and love they pour into me. If I come preoccupied and upset, holding onto something negative, they sense it and walk away from me. I must clear my mind and center/ground myself if I want meaningful interaction with them.

 

Our closeness happens when I let my fears, anxiety, and stressors melt away and I focus on being present with my girl.

Words of affirmation and positivity. Speak them and repeat them as often as you need to about yourself until you have created a positive mindset. If you consistently beat yourself up over little things or become negative about your healing then this is where you need the most work. Our brain is a very powerful tool that believes what we speak into it. Speak only good and positive and watch your circumstances change for the better!

 

 

Finally, have grace upon grace for yourself. You won’t be perfect and you will stumble as you go through life, we all do, the challenge is to pick yourself back up, dust yourself off, and try again.

You’ve got this and I know you can do it. As you begin to make the changes needed to reduce stressors in your life you will start to notice phantom pains not being your focal point which then makes their grip on you much less.

Don’t give your pain power! Deny them and don’t continue to talk about them. The less time you pay attention to the pains you feel the less likely you are to be consumed and debilitated by them. You deserve better!

You can do this!

Be positive, breathe and focus on the positives! Watch your stress melt away and your phantom pains calm down.

Wishing you a week filled with health and happy thoughts.

And as always,

Be Healthy,

Be Happy,

Be YOU!!

Much love,

 

 

The Neuroscience of Phantom Pain

The Neuroscience of Phantom Pain

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The Latest Research Behind Phantom Pain

 

You may have heard the saying, “Mind over Matter” a few times in your life. I know I have, but did you know that it is more than just a saying? Did you know that our brains are capable of helping us cope when we struggle, especially when we deal with pain?

Today I learned how the brain can actually help us changing the way we think and perceive the pain we feel.

We have the ability to redirect and reconnect our brain waves to cope with phantom pain, or any pain, that we experience.

Today, I was honored to have on Dr Felipe Fregni, professor of Physical Medicine and Rehabilitation at Harvard Medical School and Professor of Epidemiology at Harvard TH Chan School of Public Health, as well as the Director of the laboratory of Neuromodulation at Spaulding Rehabilitation Hospital. He has been researching how the brain perceives pain and what is happening during bouts of pain to our brain.

Dr Felipe Fregni, Harvard Professor

 

The hope is that if we learn how our brain works and how it changes during moments of pain or discomfort then we can start to use that information to better equip the individual to work through pain and eliminate it without medication!

Wouldn’t that be something!

Studying the brain to find connections

 

Dr Fregni splits his time teaching at Harvard and working the lab at Spaulding Rehabilitation Hospital

 

Dr Fregni and his staff and students have been researching this topic for a while now and getting the data they need from participants, like myself, and they could use you too!

Their goal is to create a device that you can wear to assist in pain elimination through brain waves. They started this study with bringing people into their lab to trial what they had created. Now they are onto phase 2 and getting new participants to work from home with their device.

As an amputee I am excited to see research into phantom pain and how we deal with it and finding ways to cope without medication. Dr Fregni also mentioned that their research also branches into helping stroke victims and paralysis as well!

When we figure out how pain is communicated within our body we can then begin to find ways to lessen or even eliminate it.

One interesting thing we did touch on, which I stated at the very beginning was the mind over matter mentality. You may have heard me say that when I start hurting I tend to become active, I get moving and I find something to distract myself from thinking about the phantom pain. What Dr Fregni told me was that when we become active we start using our brain, we get neurons to fire and this makes for a healthy brain. So every time I’m struggling, my coping mechanism was to not think about the pain but to dive into something else. This is exactly what we should all be doing because we are creating connections in our brain, fire it up, and building it stronger. So mindset matters. Speaking to ourselves in positive ways matters. Even thinking about an activity we love to do creates connections in our brain for healing. What a powerful organ it is, indeed!

I want to thank Dr Fregni for coming on and guiding us through how our brain is capable of helping us heal and for building this community of researchers to help those of us who are struggling with pain and need a better way to handle it. I look forward to seeing how your research builds a stronger and healthier tomorrow for us! Thank you!

If you would like to take part in the clinical research happening right now, from the comfort of your own home you can reach out to Dr Fregni’s department with the link below.

I hope you all have a very blessed week.

And as always until next time,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

 

To see if you qualify to participate in their study please click HERE

That’s A Wrap!

That’s A Wrap!

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Loss/Limb Difference Awareness Month 2025

 


Garrison Hayes and Eric Gutierrez-Camacho
Colorado State University

John McCollough: MIT
Ophelie Herve: UCLA
Mira Mutnick, Jake Kanetis, and Marty Kilbane
Colorado State University

Dan Levine: MIT

As April comes to a close we say a huge thank you to all of the university students ts who came on to share what they have been working on, in the fields of mechanical and biomedical engineering, robotics, and media arts and sciences. All of these amazing students have a passion for assisting and improving the lives of people in the amputee community with their genius and creative enhancements to prosthetics, sockets, surgical procedures and research.

I cannot thank them all enough for caring so deeply for our community and for working so hard to improve it.

As this month closes out I want to entice you all to subscribe to my channel as next week we begin to explore phantom pain.

I have a professor from Harvard coming on to talk about his study into how the mind works, and how it can be used as a tool to combat phantom pain. Very intriguing conversation and maybe a few cues for us amputees to use to begin taking charge of our bodies without the use of drugs.

Please make sure you stay tuned for future episodes!

hHave a very blessed and wonderful week,

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

much love,

The Future is Now: Part 5 of 5

The Future is Now: Part 5 of 5

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MIT

Dan Levine

 

As we wrap up this Limb Loss/Limb Difference Awareness month I am also interviewing my final university student who has been working towards his PhD at MIT. Dan started his journey at Cornell with a degree in Mechanical engineering and Computer Science and is about to graduate from MIT with his doctorate in Media Arts and Sciences.

Dan had a fascinating beginning as he was able to spend some younger years in Thailand as his parents were working in the medical field. His excitement about nature and anything is possible to create if we just look, observe and study what is around us shows us that the brain is such an amazing muscle that can come up with the seemingly impossible, like making prosthetics more advanced and allow the amputee live a life as if nothing has changed for them. That is what the studies at the MIT Media Lab aim to accomplish.

He has had his hands on several projects in Assistive Technologies and as of late been working on advancing bionics in the ankle prothesis.

One very unique experiment he did was to create a video game based on movement technology for his non-sighted friend. Below is the board they actually used to accomplish this task.

 

This board was used to “translate” Mario Bros for his non-sighted friend

 

As I have stated each week this month, the field of mechanical, biomedical engineering and robotics is so very competitive around the nation and some discussions of these students’ projects cannot be divulged until they finish their dissertations and get published, so we discuss what we can during these interviews. My hope, though, is to whet your appetite as to what is coming in the world of prosthetics/bionics and the study of the human body in order to aid the amputee community.

 

Dan’s team of undergraduates enjoy team building time.

 

Another aspect of being at this level of his degree is bringing on undergraduates to add insight and diverse thinking to projects. As Dan worked with these students as a team they are able to all bring their specific talent to the projects and as Dan stated their level in school does not determine their level of expertise. Each team member is valued for what they bring to the table.

Dan has had the opportunity to explore, create and design a more robust and technologically advanced foot model to help be a more natural replacement of our natural foot, using the idea of biomechatronics, energy return, and studying our natural gait to help with his design.

 

Dan in the Media Lab working on specific parts of his design.
A very hands on project after the detailed research of measurements and calculations.
 “Measure twice, cut once” is more his philosophy.

 

I am totally amazed and completely impressed by Dan’s imagination, thoughts, and unique view of the world. It takes very special people to be in this space, creating the next great technological advancement in the engineering world and because of people, like Dan, our amputee community will be seeing some incredible advancements to our devices and thus our ability to live the best, most full life, as if we were not missing anything.

This is truly something to be celebrated!

Thank you, Dan, for spending your time with me diving into the world you have been in these past 6+ years. The devotion, the exhaustion, the hard work and at times, I’m sure, the frustration of getting things completed the way you envisioned them and the successes you have accomplished I thank you! Our community thanks you, for bringing us one step closer to higher potential (pun intended!).

And for all of the university students out there trying to make our world a better place, we see you and we thank you from the bottom of our hearts.

I look forward to what the future holds for myself and other amputees. A world where nothing inhibits us from achieving all of our hopes, dreams, and goals.

I hope you have all enjoyed hearing about the technology and advancements these young adults have been working on. Please help me spread their names and accomplishments by Liking, Sharing, and Subscribing to my podcast. My hope is to check back in with them in the near future to see the strides they have made and I wouldn’t want you to miss that!

 

Thank you and have a very blessed week!

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

The Future is Now: Part 4 of 5

The Future is Now: Part 4 of 5

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University of Michigan

Mira Mutnik, Jake Kanetis, and Marty Kilbane

 

 

Amazing conversation with not 1, not 2, but 3 PhD students at the University of Michigan this week!

A true, authentic conversation about the innovation and design of future prosthesis and the growth and research of creating a surgical procedures to aid in using these newly designed prosthesis all with the purpose of replicating the natural human movement.

We packed so much conversation into this episode with so much more we could have talked about.

Once again, we discussed what we could, but some details must be left out due to the highly competitive field these young adults are working in.

What I love about these three students is that even though they are all in a different sector, so to speak, of research: Mira-above limb amputees, Jake-below limb amputees, and Marty-prosthetics, they are all working towards the same goal; creating the best way to unify the surgical procedure and prosthesis to give the amputee the best, most natural movement possible.

 

Jake all hooked up to monitor human movement to collect data for his research

 

Marty working with a study participant on their design of a prosthesis they are working on in the lab.

 

Mira collecting data on her upper limb project and how to get the best hand movement and dexterity of a prosthesis.

 

We had a great discussion of what it could look like for the future of amputees and the length of time these studies take. There are a lot of hoops to jump through, safety regulations, data collecting, and trials. The FDA must approve procedures and products that they hope to take to market some day, but these students have become three of the many students going through the program at University of Michigan, working tirelessly to bring this technology closer to us being able to access it.

I find it so unique to see the shift from making the newest, coolest, most advanced products for us to wear, as amputees, to surgical procedures to make our bodies work in harmony with a prosthesis. The one thing we did dive deep into was the procedure of getting candidates who fit the bill to doing the trial procedures, and finding willing participants as well. This can be so tricky as we struggle with the idea of going back in and revision the original amputation in hopes that the outcome will be the same if not better, but the concern that it could be worse.

I hope you will join us today, listen to the entire podcast and see what dedication these students have for helping our amputee community, what motivates them to continue into this higher level of study, and what their plans are for their future after graduation.

Thank you Jake, Mira, and Marty for sharing your passion. Your dedication to helping our community find a better way to live is inspiring and deserves our gratitude!

Continue doing what you’re doing, and know we all thank you for the time, ideas, and ingenuity to take amputees to the next level!

Please make sure you all Like, Share, and Subscribe so you don’t miss an episode as we continue with our 5th Student interview next week as we visit MIT again from a different angle.

Wishing you all the best, and a blessed week ahead.

And as always,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

The Future is Now: Part 2 of 5

The Future is Now: Part 2 of 5

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Limb Loss Awareness Month

  1. MIT: John McCollough

 

John is a student at MIT in Cambridge, Massachusetts working towards his Masters and PhD in Medical Engineering.

I met him a year and half ago when he reached out to see if I was interested in coming to MIT for a Gait Study that he was assisting a student working toward his PhD. Of course I said Yes!

 

This is what it looks like when you agree to a gait study!

 

 

Now as time has flown by I have gone back to check on John’s progress in the field of Biomechatronics, stayed connected with those in the lab and couldn’t wait to have him on the podcast.

 

 

Once in the media Lab building you can see prototypes, unique sculptures, and their purpose and mission.

 

However, a quick disclaimer, some of the work being done in the MIT Media Lab, like other universities, is private and not up for discussion as they are still in the works of their projects in a very competitive field, but the topics we discuss today are amazing, eye-opening and incredibly groundbreaking and I can not wait for you all to hear what’s on the cusp of becoming products and procedures available to the amputee community!

John working on the project I took part in last year.

Let’s jump right into our conversation on the work being done with 3D printing, Oesteointegration, AMI procedure, and how students and university create, trademark, and market their designs and how long this process can take.

Once again, I am blown away at the desires of these young men and women to create a better world for our amputee community.

The future is looking so good and positive for us and I truly want these students to be seen for their hardwork and dedication to a community they are feeling led to assist. We are extremely blessed with what the future holds and I believe that the next 5, 10, 20 years we will see the struggles of amputees today become minimal if not obsolete, making our lives stronger, healthier, and physically complete.

Join me this week as John and I discuss all things on the drawing board and please don’t forget to Like, Share, and Subscribe so you don’t miss any of these university students’ conversations about the future of prosthetics.

 

John McCollough MIT Masters student Mechanical Engineering

John, thank you for spending time we me on the podcast and sharing so eloquently the field of study you are in, breaking down the process so we could understand the stages of a study, and for sharing the work that could be shared. I look forward to having you on again as you complete your Masters and PhD.

Thanks for joining us  and I hope you have a beautiful week ahead!

And as always, until next time,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

The Future is Now: Part 1 of 5

The Future is Now: Part 1 of 5

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Limb Loss Awareness Month 2025

Colorado State University: MediFlex Prosthetics LLC

 

CSU MediFlex Prosthetics team

 

Here we are again for the month of April and bringing awareness to the Limb Loss/Limb Difference community.

Every year, in the month of April, I shift gears on my podcast and create a theme centered on the amputee community and interview people versus talking from my personal experience.

Each year I have met some amazing people from doctors, to athletes, to innovators and entrepreneurs. This year I am excited to announce the future of our community, students!

Each of the 5 weeks of April I have students, of varying levels of their education, from all across our nation, talking about what they are studying, inventing, building, and perfecting in the prosthetic world. We have undergraduates to PhD students, all of whom are spending their college careers, and life after, making our community a better place by creating the next generation of products meant to allow us to live fuller lives as amputees.

 

Today, I am excited to introduce Garrison Hayes and Eric Gutierrez-Camacho, two of the five student team from Colorado State University, they are the founders of MediFlex Prosthetics LLC and their creation is part of their senior project at CSU.

                 

 

The work they do focuses primarily around 3D printed feet modules for amputees, both above knee and below knee. Their idea, which I will allow them to explain, is a tough, indestructible foot that allows for more energy return to the user.

This could be life changing, not to mention energy saving!

So many of us already struggle with moving around for long periods of time due to fit or phantom pains, but we also deal with exhaustion due to a loss of energy as our foot hits the ground, giving nothing back.

 

Internal carbon fiber skeleton of foot

 

3D printed foot shell that is built in sections for ease of replacing portion that might wear down over time

 

 

Garrison, a lead in the creation of this foot, is also an amputee. He has been able to trial each prototype and give instant feedback from an amputee’s true perspective. A vital component when making a new prosthesis before marketing it.

This team of students has created an LLC to continue building, bettering, and supplying this type of equipment to our amputee community well after their college careers end. Their goal is to make their product quick to get and affordable for everyone.

                               

As they formulated their ideas and worked around getting large 3D printers to create such strong feet with high quality materials they have also been competing in this field with their product and I am excited to say that this past weekend they received an overall 1st place finish at the Murals competition at CSU for their product The Goldilocks Foot.

Way to go,Team!!

 

These students are just one example of the intensely competitive world of biomedical and medical engineering that can be found in our universities around the nation. Each team, each level, building off of other projects, creating all new ideas, and researching the field of prosthesis and a deeper level, all in all, working towards making the life of an amputee as comfortable, balanced, and natural as they once were with the part they are missing.

This month, I want you to make sure to like, share and subscribe to my podcast as we go deeper into the world of engineering for the amputee community and what these inspiring students are bringing to the table.

If you would like to watch the whole interview it can be found on my YouTube channel

The future is NOW!

To find out more about Garrison and Eric’s prosthesis and the work their team is doing by visiting their Video HERE 

You can also ask for more information or ask questions that you may have for their team at: mediflex.co/outlook.com

They are also seeking testers that live near them or can travel, so if you would like to be on the cutting edge of this technology please scan the QR code below and fill out their form to join their testing program.

 

 

Thank you again, Garrison and Eric for reaching out and allowing me an hour of your day. As an amputee, I thank you from the bottom of my heart for caring, creating, and dreaming about a better future for all of us. You are all so inspiring! Keep doing what you’re doing and let’s chat again as you continue to grow and enhance your product.

I hope you all enjoyed hearing, first hand, what our college students are inspiring to do for the greater good of the amputee community.

Continue to listen in this week as I bring on students from east coast to west coast and undergraduates to PhD students. Their stories are inspiring and their drive to do good in our world needs to be shared. These students are our future, and the future is looking bright!

Have a beautifully blessed week!

And as always and until next time,

Be Healthy,

Be Happy,

Be YOU!!

 

Much love,

 

One Step At A Time

One Step At A Time

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Goal Setting and Climbing Your “Mountain”

 

Nothing in life that’s worth achieving is going to come easy. Working toward a goal, putting your best foot forward and sweating through it makes achieving it all the more sweet.

Why would becoming an amputee be anything different?

If you were active before your amputation, then you know what can be done with a lot of work, grit, and determination.

It won’t be easy. It’ll test your resolve MANY times, but, when you get to the goal you set for yourself, you will feel such a sense of excitement and joy like you’ve never felt!

Don’t worry about what others are doing or achieving. Remember that comparison is the thief of joy.

You focus on you! Do what you can do now, and each day try to be better than the last. The next thing you’ll realize is how far you’ve come since you started.

One step at a time has been my mantra since my amputation. I can’t look at the big picture or I’ll get nervous or doubt what I’m capable of. Instead I focus on putting one foot down at a time, at my pace, and what I can do in this moment. And each ,moment is different. Today I might be whipping around the neighborhood, feeling confident and without pain, and then tomorrow I could be struggling with just walking slowly around my home.

All you can do, is work hard with what you have been given each day, but if you can honestly say that you gave it your all then I promise that you will see strides at reaching your goals.

One step at a time is meant to be metaphorical, and also very literal, for us amputees. Don’t think about walking all day in your prosthesis when you get up, and don’t just tell yourself that you’ll put it on for a little bit or later today. Put it on with the mindset that you’ll wear it for all you can, however long that will be today, knowing that each day brings its own struggles and accomplishments, but you don’t know what kind of day it will be until you are in the midst of it.

 

Skiing on one leg is definitely a mind over matter exercise!

 

Mindset matters!

What you tell yourself first thing in the morning is how your day will go. When I wake up, I know I will put my leg on first then go through my day. Somedays I cannot get to the gym because it hurts too much so I do what I can at home, keeping it on, and building my tolerance up for wearing it. Other days, I put it on and get a burst of energy and hike 4 to 5 miles without even thinking about it.

Mindset matters and what you tell yourself will be the direction your mind takes, and what your body believes.

Always get moving with your best intentions and your heart and mind in the most positive place you can be and then see how your day unfolds. One step at a time.

 

This week, it is pretty straight forward.

This week I want you to remember to keep speaking positivity to yourself.

Write down “ONE STEP AT A TIME” on post it notes and place them in places you spend a lot of time in and around your house to remind yourself to take your goals and your actual steps at YOUR pace and ONE AT A TIME.

 

Hiking is my favorite activity. Every hike is different and challenges me to be focused and push myself.

 

Set a goal. Wherever you are right now physically, mentally, and based on your weather and location and decide what it will take each day to break it down and work towards it at your pace.

You can achieve anything you put your mind to if you set mini goals for yourself, or stepping stones to that goal. Make the steps small enough to find success, and big enough to challenge yourself.

 

First time hiking on snow!

 

And then watch yourself break the barriers that you thought were there because of your circumstance.

I believe in you! I believe we are all born to fight for what we want and desire. THAT is a Warrior mentality.

So, rise up warriors, and sieze this moment. You are not broken, or weak, or disabled. You are a warrior of epic proportions.

Get after your goals and dreams today, ONE STEP AT A TIME!!

 

Have a beautifully blessed week and as always, until next time,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

 

 

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