Month: May 2025

Facing Setbacks

Facing Setbacks

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Podcast: Play in new window | Download (Duration: 26:40 — 28.2MB)

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Setbacks to Comebacks

 

Life is full of ups and downs and as an amputee we must realize that we will face many more challenges, past the amputation itself, years later.

For one, our sound side becomes extremely important to us. Taking care of our good joints while still trying to live a full and healthy life yet protecting what we have left becomes a balancing act and can be very scaring when things go wrong.

We also struggle with pain in our residual limb when our socket doesn’t fit correctly or a neuroma decides to show up.

My current situation is a strained lower back because I work so hard with balance and bending over to pick things off the floor, all on my sound leg which puts undo pressure and tension on my lower back on the opposite side. That is my current setback, and it is not only painful, it’s frustrating!

I have 2 weeks until I take off for Boston to go through extensive reconstructive surgery on my residual limb, plus a unique procedure created by MIT and my doctor. My goal 2 weeks ago was to eat well, cut our alcohol and get back to the gym daily to get in the best shape for this surgery. Literally the first week into that plan I tweaked my back! Now I am trying to be patient and waiting for the slow healing process my back is going through.

 

1 year after my amputation I found a neuroma in my hamstring and had to go thru another surgery!
Stayed positive but at times it was hard, starting over with healing is hard!

 

Not being able to wear the prosthesis while healing can break you but setting goals and looking to the future helps. Stay positive!

 

What I have learned through all the setbacks since becoming an amputee:

-This too shall pass

-Stay positive

-Set goals

-Use this time to do what you CAN do at this moment.

-Setbacks tend to be moments that are setting you up for a comeback. Be ready!

 

Look to the future. Dream! Stay focused on your goals and objectives!

 

If you are going through a setback now, don’t get discouraged just keep focused on the positive and the future.

It is not the end, it’s just a moment for your mind and body to be prepared for something more.

 

 

This week I challenge you to be still and focus your attention to what you CAN do and positive thoughts during a setback or a rough patch.

Try these steps out:

-Realize that this moment won’t last forever.

-Use this time to stop and listen to your body and realize what it needs to heal, usually it is telling you to give it a break and let it heal.

-Set goals for yourself to do once your setback fades away.

-Visualize yourself being successful and accomplishing your goals. Visualize positivity!

-Remember your “Why”. What are you doing this all for? Yourself? Your mental health? Your family? Your job? What is it that drives you forward? Your “Why’s” should be clear because they are what will help you in hard times and when you feel like you are all alone. The Why’s are your motivation to keep moving forward.

Of all the setbacks I have endured since becoming an amputee, one thing has been certain, the hard times end and the comebacks win!

You are a warrior! Believe it! See yourself as the strong individual I know you are.

Have an amazing week ahead.

Get after this Call to Action and reach out to me if you have questions or want to give me an update on how you’re doing.

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

Much love,

 

 

 

Stressed Out!!

Stressed Out!!

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Podcast: Play in new window | Download (Duration: 27:14 — 23.4MB)

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Dealing With Stress to Alleviate Phantom Pain

 

Ahhh, stress!

It wouldn’t be a day or a week without something triggering stress. A bid decision, a deadline, a fight with a friend, or even traffic!

As amputees we also face the uphill battles of healing, socket fittings, sores and painful steps, and phantom pains. Sometimes it feels like we never get a break. It feels like the weight of the world is placed on our shoulders and we can’t come up for air.

What we all need to learn is that every time we feel stressed out we have, in our own power, the ability to change the outcome. We control the narrative and we control how we come out on the other side.

“Mind over Matter” isn’t just a cliche it is truth.

 

 

When we hold in stressors we destroy our immune system, disrupt our nervous system, and create more problems than we need to.

We need to find ways to release negativity and stressors in our life. They will always be there, so instead of letting them take control and reeking havoc on your health you need to find ways to work through them and find a peace in your life.

When we learn to breathe, slow down, relax, and let go of the things we cannot control, then start feeding our mind with positive and affirming words we can begin to heal ourselves and give our bodies a chance to heal.

This week I challenge you.

 

 

Find time to slow down and breathe slowly and deeply through troubles and stressors you are feeling. Realize what you can control and what you cannot. If you can’t control something it’s time to let it go.

Use animals to help you find quiet time and centering. Horses especially are extremely intuitive and can read you from a mile away. If you bring in negative energy or a lot of “baggage” they won’t want to be close to you, and I don’t know about you, but I go see my horses for the kisses and love they pour into me. If I come preoccupied and upset, holding onto something negative, they sense it and walk away from me. I must clear my mind and center/ground myself if I want meaningful interaction with them.

 

Our closeness happens when I let my fears, anxiety, and stressors melt away and I focus on being present with my girl.

Words of affirmation and positivity. Speak them and repeat them as often as you need to about yourself until you have created a positive mindset. If you consistently beat yourself up over little things or become negative about your healing then this is where you need the most work. Our brain is a very powerful tool that believes what we speak into it. Speak only good and positive and watch your circumstances change for the better!

 

 

Finally, have grace upon grace for yourself. You won’t be perfect and you will stumble as you go through life, we all do, the challenge is to pick yourself back up, dust yourself off, and try again.

You’ve got this and I know you can do it. As you begin to make the changes needed to reduce stressors in your life you will start to notice phantom pains not being your focal point which then makes their grip on you much less.

Don’t give your pain power! Deny them and don’t continue to talk about them. The less time you pay attention to the pains you feel the less likely you are to be consumed and debilitated by them. You deserve better!

You can do this!

Be positive, breathe and focus on the positives! Watch your stress melt away and your phantom pains calm down.

Wishing you a week filled with health and happy thoughts.

And as always,

Be Healthy,

Be Happy,

Be YOU!!

Much love,

 

 

The Neuroscience of Phantom Pain

The Neuroscience of Phantom Pain

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Podcast: Play in new window | Download (Duration: 1:06:55 — 23.0MB)

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The Latest Research Behind Phantom Pain

 

You may have heard the saying, “Mind over Matter” a few times in your life. I know I have, but did you know that it is more than just a saying? Did you know that our brains are capable of helping us cope when we struggle, especially when we deal with pain?

Today I learned how the brain can actually help us changing the way we think and perceive the pain we feel.

We have the ability to redirect and reconnect our brain waves to cope with phantom pain, or any pain, that we experience.

Today, I was honored to have on Dr Felipe Fregni, professor of Physical Medicine and Rehabilitation at Harvard Medical School and Professor of Epidemiology at Harvard TH Chan School of Public Health, as well as the Director of the laboratory of Neuromodulation at Spaulding Rehabilitation Hospital. He has been researching how the brain perceives pain and what is happening during bouts of pain to our brain.

Dr Felipe Fregni, Harvard Professor

 

The hope is that if we learn how our brain works and how it changes during moments of pain or discomfort then we can start to use that information to better equip the individual to work through pain and eliminate it without medication!

Wouldn’t that be something!

Studying the brain to find connections

 

Dr Fregni splits his time teaching at Harvard and working the lab at Spaulding Rehabilitation Hospital

 

Dr Fregni and his staff and students have been researching this topic for a while now and getting the data they need from participants, like myself, and they could use you too!

Their goal is to create a device that you can wear to assist in pain elimination through brain waves. They started this study with bringing people into their lab to trial what they had created. Now they are onto phase 2 and getting new participants to work from home with their device.

As an amputee I am excited to see research into phantom pain and how we deal with it and finding ways to cope without medication. Dr Fregni also mentioned that their research also branches into helping stroke victims and paralysis as well!

When we figure out how pain is communicated within our body we can then begin to find ways to lessen or even eliminate it.

One interesting thing we did touch on, which I stated at the very beginning was the mind over matter mentality. You may have heard me say that when I start hurting I tend to become active, I get moving and I find something to distract myself from thinking about the phantom pain. What Dr Fregni told me was that when we become active we start using our brain, we get neurons to fire and this makes for a healthy brain. So every time I’m struggling, my coping mechanism was to not think about the pain but to dive into something else. This is exactly what we should all be doing because we are creating connections in our brain, fire it up, and building it stronger. So mindset matters. Speaking to ourselves in positive ways matters. Even thinking about an activity we love to do creates connections in our brain for healing. What a powerful organ it is, indeed!

I want to thank Dr Fregni for coming on and guiding us through how our brain is capable of helping us heal and for building this community of researchers to help those of us who are struggling with pain and need a better way to handle it. I look forward to seeing how your research builds a stronger and healthier tomorrow for us! Thank you!

If you would like to take part in the clinical research happening right now, from the comfort of your own home you can reach out to Dr Fregni’s department with the link below.

I hope you all have a very blessed week.

And as always until next time,

Be Healthy,

Be Happy,

Be YOU!!!

Much love,

 

 

To see if you qualify to participate in their study please click HERE

That’s A Wrap!

That’s A Wrap!

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Podcast: Play in new window | Download (Duration: 23:31 — 26.1MB)

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Loss/Limb Difference Awareness Month 2025

 


Garrison Hayes and Eric Gutierrez-Camacho
Colorado State University

John McCollough: MIT
Ophelie Herve: UCLA
Mira Mutnick, Jake Kanetis, and Marty Kilbane
Colorado State University

Dan Levine: MIT

As April comes to a close we say a huge thank you to all of the university students ts who came on to share what they have been working on, in the fields of mechanical and biomedical engineering, robotics, and media arts and sciences. All of these amazing students have a passion for assisting and improving the lives of people in the amputee community with their genius and creative enhancements to prosthetics, sockets, surgical procedures and research.

I cannot thank them all enough for caring so deeply for our community and for working so hard to improve it.

As this month closes out I want to entice you all to subscribe to my channel as next week we begin to explore phantom pain.

I have a professor from Harvard coming on to talk about his study into how the mind works, and how it can be used as a tool to combat phantom pain. Very intriguing conversation and maybe a few cues for us amputees to use to begin taking charge of our bodies without the use of drugs.

Please make sure you stay tuned for future episodes!

hHave a very blessed and wonderful week,

And as always,

Be Healthy,

Be Happy,

Be YOU!!!

 

much love,

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